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Joint European Cancer Patient Coalition & PatientView mHealth meeting, European Parliament, 4:30-6:30pm, 25 May 2016

Final Programme for the ​"Unleashing the mHealth potential for cancer patients" event held on Wednesday 25th May 2016 (16​:30-18:30pm) in the European Parliament.

#mHealthCancer

​"​mHealth and eHealth are becoming realities in Europe: this is demonstrated by the growing size of mHealth apps’ market, by the raising investments in eHealth infrastructures and by the fast adoption, at various degrees, of mHealth applications by patients.

The burden of cancer is also raising: more than 10 million EU citizens are affected by cancer, incidence and prevalence are growing, and the socio-economic impact of cancer heavily burdens both healthcare systems and cancer patients.

The recent political agreement on the text the General Data Protection Regulation and the production of the Privacy Code of Conduct mHealth apps further stir the debate regarding the use of new mHealth technologies within cancer care pathways.

Are cancer patients enjoying the benefits of mHealth?
In which field can cancer patients profit the most from mHealth apps?
Is the regulatory framework supporting the development of useful and safe mHealth apps for cancer patients?
Are there other structural obstacles to the full integration of mHealth apps in the cancer patients’ journey?​"​

The event will be hosted by MEP Cristian-Silviu Busoi (EPP, Romania), one of ECPC closest champions within the European Parliament and a knowledgeable supporter of the development of eHealth/mHealth in Europe.

The event w​as followed by a cocktail reception.

Join the discussion on Twitter using​ ​#mHealthCancer​ The event is part of the initiatives for the
2016 European Week Against Cancer #EWAC2016​

Mor​e information can be found on the European Cancer Patient Coalition's website:

http://www.ecpc.org/pressroom/events/icalrepeat.detail/2016/04/26/61/-/-

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Joint European Cancer Patient Coalition & PatientView mHealth meeting, European Parliament, 4:30-6:30pm, 25 May 2016

  1. 1. Join the debate on Twitter using #mHealthCancer Follow @cancereu & @patientview for updates 1 UNLEASHING MHEALTH’S POTENTIAL FOR CANCER PATIENTS European Parliament, 25 May 2016, 16.30 – 18.30, Room 6Q2, JAN Building RATIONALE mHealth and eHealth are increasingly a reality in Europe: the market for mHealth apps is solid and growing, investments in eHealth infrastructures are rising and mHealth tools are beginning to be more widely adopted by physicians and cancer patients alike. The burden of cancer is also on the rise: more than 16 million EU citizens are affected by cancer, with both incidence and prevalence growing, while the socio-economic burden of cancer falls heavily on cancer patients and their families, and healthcare systems. The recent political agreement on the text of the General Data Protection Regulation, the ongoing work on a European Privacy Code of Conduct for mHealth apps, as well as the new EU Working Group looking at the assessment criteria needed for high quality, safe and reliable health apps, further stir the debate regarding the use of these new technologies within cancer care pathways. But there are still many issues to be addressed: Are cancer patients enjoying to the fullest the benefits of mHealth? In which areas can cancer patients profit the most from mHealth apps? Is the European regulatory framework supporting the development of useful and safe mHealth apps for cancer patients? Are there structural obstacles to the full integration of mHealth apps in cancer patients’ treatment and ongoing care? ECPC and PatientView will put these questions to a selected, high-level panel of experts, in order to assess the status of mHealth in cancer care and to draw up some recommendations for EU policy-makers regarding the development of mHealth/eHealth in the field of cancer. THE INITIATIVE EVENT AT THE EUROPEAN PARLIAMENT – 25TH MAY 2016 During a focused debate at the European Parliament, these questions will be addressed by ECPC, PatientView, expert speakers and other key stakeholders, in the context of patient safety, cost-benefit effectiveness, legal frameworks, technological barriers and patient-friendliness and need within mHealth. SUMMARY REPORT AND WHITE PAPER ECPC and PatientView will produce a summary report of the main findings of the European Parliament debate, which will be published in June. The report will serve to set the scene for a more comprehensive white paper on mHealth in cancer, providing recommendations/guidelines for the design of patient-friendly mHealth apps, which will be published in the autumn.
  2. 2. Join the debate on Twitter using #mHealthCancer Follow @cancereu & @patientview for updates 2 PROGRAMME 16.30 – 16.35 THE ROLE OF THE EUROPEAN PARLIAMENT IN SHAPING mHEALTH POLICY Event host: Cristian-Silviu Busoi MEP (EPP Group, Romania) @EPPgroup Kathi Apostolidis, ECPC Vice President and Member of the EC Working Group on mHealth Assessment Guidelines @kgapo 16.35 – 16.45 INTRODUCTION: THE VALUE OF A EUROPEAN APPROACH TO mHEALTH IN CANCER Pēteris Zilgalvis, Head of the Health & Wellbeing Unit, DG CONNECT, European Commission @PZilgalvis 16.45 – 17.10 PANEL 1: CANCER PATIENTS’ EXPECTATIONS ON mHEALTH Chair: Cristian-Silviu Busoi MEP Francesco Florindi, ECPC Public Affairs Coordinator @francescoflo What do cancer patients need from mHealth? Dee O’Sullivan, Director, myhealthapps.net/PatientView @PatientView Overview of mHealth app scene for cancer Prof Charles Lowe, Managing Director, Digital Health and Care Alliance/ Royal Society of Medicine (UK) @LoweCM Integrating mHealth into care pathways for cancer patients 17.10-17.40 PANEL 2: EXAMPLES OF PATIENT-ORIENTED APPS Chair: Eva Kaili MEP (S&D Group, Greece) @EvaKaili Dr Anne Bruinvels, Founder Px HealthCare / Owise @Owise_UK OWise: Developing mHealth with a foot in two shoes Prof Jourik Gietema, Oncologist, University of Groningen, Netherlands @UnivGroningen Survivor Care: an app to enhance survivors’ quality of life Dr Jo Arnes, Senior Lecturer, King's College London, UK @esmart_eu eSMART: patients’ and nurses’ mobile approach to PROs 17.40-18.00 PANEL 3: INDUSTRY PERSPECTIVE Chair: Michal Boni MEP (EPP Group, Poland) @MichalBoni Michele Pastore, Policy Manager Trade, Tax and Customs, Samsung @SamsungMobile mHealth and the Code of Conduct: Samsung’s perspective Allan Bowyer, EMEA Lead for Mobile Health & Patient Support Programs, Janssen @abowy New approaches to supporting patients 18.00-18.25 AUDIENCE DISCUSSION Chairs: Cristian-Silviu Busoi MEP and Dee O’Sullivan, PatientView 18.25-18.30 CONCLUSIONS AND CLOSING REMARKS Cristian-Silviu Busoi MEP and Alex Wyke, Founder and CEO,PatientView 18.30 NETWORKING COCKTAIL – Brasserie JAN 03 Q

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Final Programme for the ​"Unleashing the mHealth potential for cancer patients" event held on Wednesday 25th May 2016 (16​:30-18:30pm) in the European Parliament. #mHealthCancer ​"​mHealth and eHealth are becoming realities in Europe: this is demonstrated by the growing size of mHealth apps’ market, by the raising investments in eHealth infrastructures and by the fast adoption, at various degrees, of mHealth applications by patients. The burden of cancer is also raising: more than 10 million EU citizens are affected by cancer, incidence and prevalence are growing, and the socio-economic impact of cancer heavily burdens both healthcare systems and cancer patients. The recent political agreement on the text the General Data Protection Regulation and the production of the Privacy Code of Conduct mHealth apps further stir the debate regarding the use of new mHealth technologies within cancer care pathways. Are cancer patients enjoying the benefits of mHealth? In which field can cancer patients profit the most from mHealth apps? Is the regulatory framework supporting the development of useful and safe mHealth apps for cancer patients? Are there other structural obstacles to the full integration of mHealth apps in the cancer patients’ journey?​"​ The event will be hosted by MEP Cristian-Silviu Busoi (EPP, Romania), one of ECPC closest champions within the European Parliament and a knowledgeable supporter of the development of eHealth/mHealth in Europe. The event w​as followed by a cocktail reception. Join the discussion on Twitter using​ ​#mHealthCancer​ The event is part of the initiatives for the 2016 European Week Against Cancer #EWAC2016​ Mor​e information can be found on the European Cancer Patient Coalition's website: http://www.ecpc.org/pressroom/events/icalrepeat.detail/2016/04/26/61/-/-

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