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Library Services
for People with ASD, Part 1:
Getting to know and interact
with people who have ASD
Dr. Lesley Farmer,
CSULB
Let me
introduce
myself
Learning Objectives
 Identify characteristics of individuals with ASD.
 Explain developmental issues of individuals with ASD.
 Identify challenges that individuals with ASD may
experience when using the library.
 Describe ways to make the library environment
comfortable for individuals with ASD.
 Describe inclusion strategies.
 Discuss strategies for interacting successfully with
individuals having ASD.
 Describe effective social and behavior management
strategies to use with individuals having ASD.
Is There an Issue?
 1 in 59 children are born with autism
 Tenfold increase in the last 40 years
 Autism is now the second most common
serious developmental disability after mental
retardation/intellectual impairment (Centers for Disease
Control and Prevention, 2014)
 Little curricular attention is paid to meet
needs of mainstreamed students
 Few school libraries document any services
targeted to this population (more in public
libraries)
Autism Spectrum Disorder (ASD)
 5 developmental disorders: Autistic Disorder, Rett’s
Syndrome, Childhood Disintegrative Disorder,
Asperger Syndrome, and Pervasive Development
Disorder
 Symptoms can range from mild to extreme
 Children manifest symptoms of this group of
disorders either at birth (early infantile autism) or by
the age of three (regressive autism)
 More boys than girls are affected by autism,
although diagnosed girls tend to have more severe
behaviors (American Psychiatric Association, 1994)
 Sensory system for people with autism differs from
others; body language may also differ
DSM-5 Diagnostic Criteria:
Social Communication Disorder
* Difficulties in the social use of verbal and
nonverbal communication
communication for social purposes,
match communication with context,
follow conversation rules,
inferences/ nonliteral
* Results in functional limitations:
communication, social, academics, job
* Early onset
Diagnostic and Statistical Manual of Mental Disorders
Autism Spectrum Disorder
Diagnosis
 Deficits in social communication and social
interaction across multiple contexts:
Social-emotional reciprocity
Nonverbal communication
Relationships
 Restrictive repetitive patterns of behavior or
interests
 Early onset
 Clinically significant impairment
Mild (e.g., Asperger’s) ……. Moderate ……………Severe
Autistic Spectrum Disorder: the Distribution
Serving Children with Autism Spectrum Disorder (Feb. 2019)
A Word about the Brain
 Abnormal grown between 6-12 months, then
slow growth
 Differences in neural network pruning
 Short-distance vs. long distance cortical
connections
 Less cerebellum activity (automatic
movement) and more in planned movement
region
Spectrum of
Factors
Autism and Senses
 See: Fluorescent lights seem overly bright. Images
appear brighter or sometimes not bright enough.
 Hear: Sounds can often mimic a hearing aid.
Background sounds may seem as loud as someone
speaking next to you.
 Taste: Food textures can be overwhelming. Meat is very
unpopular with autistic children. Extremes of very soft
foods (e.g. pasta /yogurt) or hard crunchy (e.g., Kix/
pretzels/Cheetos) are favorites.
 Smell: Think in extremes. Either they are oblivious to
smell, or the smell may overwhelm them.
 Touch/feel: Tags inside shirts, scratchy fabrics can
distract an autistic to where their cries of suffering
appear to be non-compliant behavior.
Autistic Spectrum Disorder: Stimuli
Avoidance/Minimal ….......Normal …...…Maximum Stimuli-seeking
Sensory Tips
 Sight: Sunglasses to alleviate brightness
 Hear: Put student on edge of class.
 Taste: Have parent provide a box of dry
cereal or favorite healthy food as back up
 Smell: Smells can be overpowering
 Touch: shirt tags or clothes’ buttons? Your
observations can improve student’s
concentration levels once accommodated by
parent.
Characteristics Of Autistic
Children
 Difficulty relating to people, objects and events
 Difficulty imagining the perspective of another person
 Have repetitive movements such as rocking, spinning
and hand flapping
 Avoid eye contact
 Show little interest in social interaction
 Have a rigid need for sameness in the environment
 Speech development is usually impaired
developmentally
 Tend to think literally (Talay & Wood, 2000; LeComer, 2006)
Educational Challenges
 Social situations are very difficult because their social
skills do not evolve naturally.
 Autism affects thought, perception and attention span.
 Curriculum should include “skills that are typically
deficient in autism such as socialization, observational
learning, attention, and communication as well as
reduction of interfering behavior such as self-
stimulation.” (Olley, 1998)
 They need highly structured series of discrete
activities.
Challenges Dealing with the Library
 Spatial complexity
 Cleanliness
 Where is my seat? Where is my book?
 What are the procedures?
 Asking for help
 DDC might be cool (and unique)
 Don’t change things!
 As a child entering the library with ASD (Autism Spectrum Disorder) I must
first get past the sensory assault. Are people loud, is it bright? Will I be
yelled at by the librarian if I line up the books? The more I frequent my
school library, the less the stimuli bother me.
 I want to look at the video tapes to compare all the movie company logos;
Paramount, Disney and Tristar are my favorite logos to draw when I have
paper. I draw them repeatedly to soothe myself when my senses have had
too much input.
 I am now looking for books about TV and movie actors. Where is Sponge
Bob, Curious George and Thomas the Tank Engine? I hope there are real
pictures because drawings do not hold my interest as much. If there are a
lot of small objects on the table I will clear them off with my arm knocking
them on the floor to help the Teacher be clean.
 I want to check books out but need help waiting and standing still in line. I
have my books. I need paper to draw what I see in the books. Now that I am
back in my classroom I feel part of the class. However, the library is a great
place too.
Issues
 High-energy, noisy
atmosphere
 Unpredictably of
people and grouping
on site
 Need to participate
and conform
 Visit and learn rules
ahead of time
 Use “talking stick”
Elementary Issues
 May expect 1-1
attention
 Have to share a
variety of materials
 Difficulty with physical
activities
 Get to know child
 Provide routines
 Determine best
seating
 Create learning
stations
 Monitor social
interactions
Middle School Issues
 Difficulty transitioning
 More collaborative
work expected
 Cliques, rejection,
bullying
 Transition signals
 Stable advocate
 Peer buddies
 Differentiated library
space
 Serve as library aides
High School Issues
 High stakes
 More self-
management
expected
 Abstract thinking
expected
 More risk-taking
options
 Self-awareness and
hormones…
 Life transition plan
 Clubs
 Self-expression online
 Service as library
aides
College Age Youth
 Characteristics: honest, loyal, persistent,
conscientious, logical, detail-oriented, like
routine and clear expectations (Attwood, 2007)
 Communications: talk too much or too little,
odd wording, repetitious, abnormal focus,
lack social understanding, little reciprocal
conversation
 Executive function skill deficits
 Reduced central coherence
College Age Supports
 ADA, 504, Higher Ed Opportunity Act
 Be clear and specific
 Provide visual supports
 Ask person to repeat instructions to check for
understanding
 Get buddies
 Provide option to work with groups or alone
 Attend to social needs
 Work with student services
Adult Issues
 Under-diagnosed earlier
 Self-disclosure and issues of stigma
 Difficulty in decision making
 Difficulty finding a job
 Money management issues
 Lack support groups and services
 Need to learn self-advocacy
 https://www.nhs.uk/conditions/autism/adults/#
video-adults-with-autismiculties finding a job
Tips for Facilitating
Developmental Progress
 Arrange library to facilitate exploration and
social interaction.
 Provide an obvious, concrete theme or
purpose for action.
 Choose a highly motivating activity.
 Plan for repetitive action and ways to vary the
action.
 Structure action to support taking turns.
Universal Design
 Use accessible formats and methods, such
as ADA-compliant web pages.
 Keep processes simple, clear, intuitive.
 Provide choice and flexibility in seating,
resources, interaction, pacing.
 Encourage positive communication and
learning environment.
Strategies For Inclusion
 Get to know each child; sit near them.
 Select materials and activities based on the
child’s interest.
 Select resources based on representation,
readability, navigation.
 Have a predictable routine for programs and
discipline.
 Predict and prepare for behavior:
visual/auditory distraction, redirection, triggers.
 To assist with transition, give warnings and
visual cues before activities change.
 Promote positive participation, citizenship,
diversity, interdependence.
The Learning
Environment
 Establish an environment that is as
predictable as possible.
 Create physical & visual boundaries.
 Control lighting.
 Have quiet, less stimulating corners.
 Spread out space.
 Provide furniture that focuses the child
(e.g., carrels, single machine).
 Provide a variety of information formats.
 Provide behavior-based communication
Getting Started
 Collaborate!
 Address full scope of deficits.
 Remember developmental sequences of
physical, communication, social skills.
 Keep child close to instructional area.
 Use speech and gestures.
 Be explicit and literal.
 Avoid libraryese and library idioms.
 Take advantage of teachable moments.
 Reduce behavior incompatible with learning.
Behavior Tips
 Inappropriate behavior may be regular or
situational.
 Identify “triggers,” and avoid/mitigate them.
 Work with child to find socially acceptable
ways to reach child’s goal.
 Don’t expect reason during a melt-down.
Calm. Think safety first.
 Provide break time and down time.
 Be patient with yourself and others.
Applied Behavioral Analysis
 Applied: principles that can be applied in all
kinds of settings that have social significance
to the person with ASD
 Behavioral: observable, measurable actions
that are the focus of the intervention
 Analysis: data collection, measurement, and
assessment used to determine an
intervention’s effectiveness.
 Key: target behavior and reinforcement
Other Behavior Strategies
 Arranging environment for optimum behavior
 Contingent imitation: imitate youth’s behavior in order to
establish interaction
 Modeling
 Video modeling
 Peer-mediated intervention
 Social stories
 Direct instruction
 Teaching self-monitoring
 Behavior momentum: increase motivation when a
challenging task is required.
Training Staff about Autism
 Assess staff’s current knowledge and practice.
 Increase staffs’ knowledge about ASD and typical
behaviors of children with regard to expected behaviors
 Provide sample library lessons (e.g., Mitten Math and
Locating Library Books).
 Brainstorm accommodations.
 Provide bibliographies.
 Have Autism experts provide PD in PRT Pivotal
Response Training (easy to learn and no cost to
implement).
Facilitating Peer Interaction
Circle of Friends Program
1. Explain autism to the class. It is a lifelong disability that
affects the way a person communicates and relates to
others.
2. Ask students to think of ways that they can help their
classmate (e.g., involving him more and helping him in
class).
3. Illustrate ways to be clearer with their language.
4. Discuss ways to nicely correct their classmate if he does
something inappropriate.
5. Allow students to give feedback about inclusion while
reminding them about the link between their peers’ behavior
and ASD.
6. Collect and analyze data about amount of interactions since
class became involved in including autistic classmate.
The heaviest
burdens of
disability arise
from personal
interaction and
not from the
impairment itself.”
Helen Keller
Your turn…
https://www.surveymonkey.com/r/5GHC3VG

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Serving Children with Autism Spectrum Disorder (Feb. 2019)

  • 1. Library Services for People with ASD, Part 1: Getting to know and interact with people who have ASD Dr. Lesley Farmer, CSULB
  • 3. Learning Objectives  Identify characteristics of individuals with ASD.  Explain developmental issues of individuals with ASD.  Identify challenges that individuals with ASD may experience when using the library.  Describe ways to make the library environment comfortable for individuals with ASD.  Describe inclusion strategies.  Discuss strategies for interacting successfully with individuals having ASD.  Describe effective social and behavior management strategies to use with individuals having ASD.
  • 4. Is There an Issue?  1 in 59 children are born with autism  Tenfold increase in the last 40 years  Autism is now the second most common serious developmental disability after mental retardation/intellectual impairment (Centers for Disease Control and Prevention, 2014)  Little curricular attention is paid to meet needs of mainstreamed students  Few school libraries document any services targeted to this population (more in public libraries)
  • 5. Autism Spectrum Disorder (ASD)  5 developmental disorders: Autistic Disorder, Rett’s Syndrome, Childhood Disintegrative Disorder, Asperger Syndrome, and Pervasive Development Disorder  Symptoms can range from mild to extreme  Children manifest symptoms of this group of disorders either at birth (early infantile autism) or by the age of three (regressive autism)  More boys than girls are affected by autism, although diagnosed girls tend to have more severe behaviors (American Psychiatric Association, 1994)  Sensory system for people with autism differs from others; body language may also differ
  • 6. DSM-5 Diagnostic Criteria: Social Communication Disorder * Difficulties in the social use of verbal and nonverbal communication communication for social purposes, match communication with context, follow conversation rules, inferences/ nonliteral * Results in functional limitations: communication, social, academics, job * Early onset Diagnostic and Statistical Manual of Mental Disorders
  • 7. Autism Spectrum Disorder Diagnosis  Deficits in social communication and social interaction across multiple contexts: Social-emotional reciprocity Nonverbal communication Relationships  Restrictive repetitive patterns of behavior or interests  Early onset  Clinically significant impairment
  • 8. Mild (e.g., Asperger’s) ……. Moderate ……………Severe Autistic Spectrum Disorder: the Distribution
  • 10. A Word about the Brain  Abnormal grown between 6-12 months, then slow growth  Differences in neural network pruning  Short-distance vs. long distance cortical connections  Less cerebellum activity (automatic movement) and more in planned movement region
  • 12. Autism and Senses  See: Fluorescent lights seem overly bright. Images appear brighter or sometimes not bright enough.  Hear: Sounds can often mimic a hearing aid. Background sounds may seem as loud as someone speaking next to you.  Taste: Food textures can be overwhelming. Meat is very unpopular with autistic children. Extremes of very soft foods (e.g. pasta /yogurt) or hard crunchy (e.g., Kix/ pretzels/Cheetos) are favorites.  Smell: Think in extremes. Either they are oblivious to smell, or the smell may overwhelm them.  Touch/feel: Tags inside shirts, scratchy fabrics can distract an autistic to where their cries of suffering appear to be non-compliant behavior.
  • 13. Autistic Spectrum Disorder: Stimuli Avoidance/Minimal ….......Normal …...…Maximum Stimuli-seeking
  • 14. Sensory Tips  Sight: Sunglasses to alleviate brightness  Hear: Put student on edge of class.  Taste: Have parent provide a box of dry cereal or favorite healthy food as back up  Smell: Smells can be overpowering  Touch: shirt tags or clothes’ buttons? Your observations can improve student’s concentration levels once accommodated by parent.
  • 15. Characteristics Of Autistic Children  Difficulty relating to people, objects and events  Difficulty imagining the perspective of another person  Have repetitive movements such as rocking, spinning and hand flapping  Avoid eye contact  Show little interest in social interaction  Have a rigid need for sameness in the environment  Speech development is usually impaired developmentally  Tend to think literally (Talay & Wood, 2000; LeComer, 2006)
  • 16. Educational Challenges  Social situations are very difficult because their social skills do not evolve naturally.  Autism affects thought, perception and attention span.  Curriculum should include “skills that are typically deficient in autism such as socialization, observational learning, attention, and communication as well as reduction of interfering behavior such as self- stimulation.” (Olley, 1998)  They need highly structured series of discrete activities.
  • 17. Challenges Dealing with the Library  Spatial complexity  Cleanliness  Where is my seat? Where is my book?  What are the procedures?  Asking for help  DDC might be cool (and unique)  Don’t change things!
  • 18.  As a child entering the library with ASD (Autism Spectrum Disorder) I must first get past the sensory assault. Are people loud, is it bright? Will I be yelled at by the librarian if I line up the books? The more I frequent my school library, the less the stimuli bother me.  I want to look at the video tapes to compare all the movie company logos; Paramount, Disney and Tristar are my favorite logos to draw when I have paper. I draw them repeatedly to soothe myself when my senses have had too much input.  I am now looking for books about TV and movie actors. Where is Sponge Bob, Curious George and Thomas the Tank Engine? I hope there are real pictures because drawings do not hold my interest as much. If there are a lot of small objects on the table I will clear them off with my arm knocking them on the floor to help the Teacher be clean.  I want to check books out but need help waiting and standing still in line. I have my books. I need paper to draw what I see in the books. Now that I am back in my classroom I feel part of the class. However, the library is a great place too.
  • 19. Issues  High-energy, noisy atmosphere  Unpredictably of people and grouping on site  Need to participate and conform  Visit and learn rules ahead of time  Use “talking stick”
  • 20. Elementary Issues  May expect 1-1 attention  Have to share a variety of materials  Difficulty with physical activities  Get to know child  Provide routines  Determine best seating  Create learning stations  Monitor social interactions
  • 21. Middle School Issues  Difficulty transitioning  More collaborative work expected  Cliques, rejection, bullying  Transition signals  Stable advocate  Peer buddies  Differentiated library space  Serve as library aides
  • 22. High School Issues  High stakes  More self- management expected  Abstract thinking expected  More risk-taking options  Self-awareness and hormones…  Life transition plan  Clubs  Self-expression online  Service as library aides
  • 23. College Age Youth  Characteristics: honest, loyal, persistent, conscientious, logical, detail-oriented, like routine and clear expectations (Attwood, 2007)  Communications: talk too much or too little, odd wording, repetitious, abnormal focus, lack social understanding, little reciprocal conversation  Executive function skill deficits  Reduced central coherence
  • 24. College Age Supports  ADA, 504, Higher Ed Opportunity Act  Be clear and specific  Provide visual supports  Ask person to repeat instructions to check for understanding  Get buddies  Provide option to work with groups or alone  Attend to social needs  Work with student services
  • 25. Adult Issues  Under-diagnosed earlier  Self-disclosure and issues of stigma  Difficulty in decision making  Difficulty finding a job  Money management issues  Lack support groups and services  Need to learn self-advocacy  https://www.nhs.uk/conditions/autism/adults/# video-adults-with-autismiculties finding a job
  • 26. Tips for Facilitating Developmental Progress  Arrange library to facilitate exploration and social interaction.  Provide an obvious, concrete theme or purpose for action.  Choose a highly motivating activity.  Plan for repetitive action and ways to vary the action.  Structure action to support taking turns.
  • 27. Universal Design  Use accessible formats and methods, such as ADA-compliant web pages.  Keep processes simple, clear, intuitive.  Provide choice and flexibility in seating, resources, interaction, pacing.  Encourage positive communication and learning environment.
  • 28. Strategies For Inclusion  Get to know each child; sit near them.  Select materials and activities based on the child’s interest.  Select resources based on representation, readability, navigation.  Have a predictable routine for programs and discipline.  Predict and prepare for behavior: visual/auditory distraction, redirection, triggers.  To assist with transition, give warnings and visual cues before activities change.  Promote positive participation, citizenship, diversity, interdependence.
  • 29. The Learning Environment  Establish an environment that is as predictable as possible.  Create physical & visual boundaries.  Control lighting.  Have quiet, less stimulating corners.  Spread out space.  Provide furniture that focuses the child (e.g., carrels, single machine).  Provide a variety of information formats.  Provide behavior-based communication
  • 30. Getting Started  Collaborate!  Address full scope of deficits.  Remember developmental sequences of physical, communication, social skills.  Keep child close to instructional area.  Use speech and gestures.  Be explicit and literal.  Avoid libraryese and library idioms.  Take advantage of teachable moments.  Reduce behavior incompatible with learning.
  • 31. Behavior Tips  Inappropriate behavior may be regular or situational.  Identify “triggers,” and avoid/mitigate them.  Work with child to find socially acceptable ways to reach child’s goal.  Don’t expect reason during a melt-down. Calm. Think safety first.  Provide break time and down time.  Be patient with yourself and others.
  • 32. Applied Behavioral Analysis  Applied: principles that can be applied in all kinds of settings that have social significance to the person with ASD  Behavioral: observable, measurable actions that are the focus of the intervention  Analysis: data collection, measurement, and assessment used to determine an intervention’s effectiveness.  Key: target behavior and reinforcement
  • 33. Other Behavior Strategies  Arranging environment for optimum behavior  Contingent imitation: imitate youth’s behavior in order to establish interaction  Modeling  Video modeling  Peer-mediated intervention  Social stories  Direct instruction  Teaching self-monitoring  Behavior momentum: increase motivation when a challenging task is required.
  • 34. Training Staff about Autism  Assess staff’s current knowledge and practice.  Increase staffs’ knowledge about ASD and typical behaviors of children with regard to expected behaviors  Provide sample library lessons (e.g., Mitten Math and Locating Library Books).  Brainstorm accommodations.  Provide bibliographies.  Have Autism experts provide PD in PRT Pivotal Response Training (easy to learn and no cost to implement).
  • 35. Facilitating Peer Interaction Circle of Friends Program 1. Explain autism to the class. It is a lifelong disability that affects the way a person communicates and relates to others. 2. Ask students to think of ways that they can help their classmate (e.g., involving him more and helping him in class). 3. Illustrate ways to be clearer with their language. 4. Discuss ways to nicely correct their classmate if he does something inappropriate. 5. Allow students to give feedback about inclusion while reminding them about the link between their peers’ behavior and ASD. 6. Collect and analyze data about amount of interactions since class became involved in including autistic classmate.
  • 36. The heaviest burdens of disability arise from personal interaction and not from the impairment itself.” Helen Keller