CADTH 2015 Symposium

1. 1
Routine PROMs Collection in Canada
CADTH Symposium, April 13, 2015
Laura Faye
A/Manager, JRMS
Acute and Ambulatory Care Information Services Branch

2. CIHI - Background
• An independent, not-for-profit corporation funded by
federal, provincial and territorial governments
• Provides essential data on Canada's health system and the
health of Canadians.
• Information from 30 databases and registries available
– hospital care - specialized care
– community care - pharmaceuticals
– workforce - spending
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3. CIHI’s Health System Performance Framework
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4. Forum Objectives
1. Achieve a shared understanding of PROMs and how
PROMs can be used to support jurisdictions’ health
system goals
2. Discuss considerations for a common approach to PROMs
data collection and use
3. Assess interest in and capacity to participate in
standardized PROMs collection and reporting, and agree
on next steps for collaborative project work, including a
demonstration project
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5. 55
British Columbia
VR12 (with PREMs)
Manitoba
Winnipeg - Joint Replacement
SF-12, Oxford Scores
US
Medicare, Veterans Health
Administration VR-12, VR-36
Alberta
EQ-5D; Hip & Knee Replacements
SF-36, WOMAC
Saskatchewan
Joint replacement, lower leg ischemia
EQ-5D; Prostate EPIC; Pelvic Floor UIQ
Statistics Canada
Canadian Community Health
Survey HUI, SF-36
CIHR
SPOR
UK
NHS EQ-5D, Oxford Hip & Knee
Score, Aberdeen Varicose Vein Score

6. Jurisdictional Priorities and Considerations
• Health system goals would benefit from PROMs
– Quality / continuous improvement
– Evaluate impact of intervention
• Priority clinical areas
– Hip & knee replacement
– Mental health
– Renal care
• Most suitable tools for common use
– SF family
– EQ-5D
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7. Jurisdictional Priorities and Considerations
• Barriers
– Engagement of clinicians & administrative stakeholders
– Resources
• Advancing PROMs in Canada would require
– Well-defined purpose
– Jurisdictional support
• Strong interest in PROMs working group & pilot projects
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8. PROMs in Canada
• Impact
• Capacity
• Barriers
• Collaboration
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