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                    OHSU Knight Cancer Institute 
North Coast Breast Health Community Assessment: 
        Needs, Assets and Opportunities 

                                  September 30, 2011 
                                          Revised December 21, 2011 
                                                       




                                                                            
                                                       
                                        Developed by: 
                                Lisa Domenico and Dolly England 
 

 

Funded by NCI grant 3P30CA069533‐13S19 
Acknowledgements 
We would like to thank the following people for their contributions to this report.

        American Cancer Society: Gretchen Renggli; Hillary Orr
        Area Health Education Center (AHEC): Karen Bondley; Monica Di Pietrantonio
        Columbia County Health District: Lori Peterson
        Columbia County Women’s Resource Center: Rachael Barry-Dame
        Columbia Memorial Hospital: Nancy Magathan
        Clatsop County Health Department: Belinda Kruger, Margo Lalich, Steven Blakesley
        Lincoln County Breast Health Coalition
        Lincoln County Health and Human Services: Joell Archibald; Rebecca McBee-Wilson; Liz
         Young
        North Lincoln Hospital: Johneen Benham
        OHSU Center for Women’s Health: Michelle Berlin
        OHSU Let’s Get Healthy Program: Lisa Marriott; Adam Lipus; Stephano Cetola
        Oregon Breast and Cervical Cancer Program: Kathy Mix
        Oregon Office of Rural Health: Emerson Ong
        Samaritan Health Systems: Emily McNulty
        Susan G. Komen for the Cure, Oregon and SW Washington affiliate: Gail Brownmiller
        Samaritan Pacific Health Services: Rebecca Fransham-Mercer; Ursula Marinelli; Lorie
         Williams
        The Rinehart Clinic: Suzie Whalen
        Tillamook County Breast Health Coalition
        Tillamook General Hospital: Ginny Gabel
        Tuality Health Care: Mary Mulholland
        Women’s Cancer Coalition of Linn, Lincoln and Benton Counties: Cindy McConnell
 




Use of the contents of this report is permitted without prior approval with attribution to:
Domenico, Lisa J, England, D (2011). Oregon North Coast Breast Health Community Assessment:
Needs, Assets and Opportunities. Knight Cancer Institute at Oregon Health & Science University.




For more information about this report, please contact Dolly England at englandd@ohsu.edu or 503-
494-3389 or Lisa Domenico at domenico@ohsu.edu or 503-418-5332.                                




OHSU Knight Cancer Institute                                          September 30, 2011            2 
 List of Appendices 
Appendix A                            Breast Cancer Incidence and Mortality- Oregon State Cancer Registry
                                      (OSCaR) and Mammography Screening Rates-Behavioral Risk Factor
                                      Surveillance Survey (BRFSS)

Appendix B                            Oregon Office of Rural Health (ORH): Demographics: Population of Rural
                                      Women by Age

Appendix C                            Oregon Office of Rural Health (ORH): Poverty Levels/Minority Populations


Appendix D                            Breast Health Network 


Appendix E                            Key Informant Interview Questions




                                       




OHSU Knight Cancer Institute                                          September 30, 2011                     3 
North Coast Community Assessment:                
Needs, Assets and Opportunities 
This breast health resource and needs assessment was conducted by our Community Health Educator (CHE)
in 2011, specifically targeting Oregon’s North Coast counties of Columbia, Clatsop, Tillamook and Lincoln. We
used the following community assessment, constructed by county, to drive the development of a 4-year
outreach plan. Our intent is to impact the cancer health disparities, beginning with breast cancer, using an
innovative and interactive intervention called “Let’s Get Healthy!” (LGH!) and involving our CHE to affect
change in these communities using data and relationships built through this process. Our scope is the cancer
risk reduction and screening practices of Hispanics and lower socioeconomic populations of the
aforementioned counties but to also share our learning’s with others engaged in improving the burden of breast
cancer in their communities.


Data sources for Needs Assessment 
The development of our needs assessment is built upon a foundation of prior statewide data collection and
analysis and adds an in-depth examination of specific rural communities. We focus on four rural counties –
Columbia, Clatsop, Tillamook and Lincoln – obtaining data from a myriad of sources to develop a richer
understanding of the breast health/cancer issues and assets of these communities. The specifics of our data
collection process are noted below.

General background information was collected for each county from multiple sources including Oregon
Bluebook1 for county history information, major employers listed on local government web pages, economic
development alliances and community events from the Oregon Festivals & Events Association. The Oregon
Office of Rural Health (ORH)2 was a significant source of data. ORH defines rural as “a geographic area ten or
more miles from a population center of 30,000 or more.” They provided 2010 county demographics, such as
the number of age-appropriate rural women for mammography screening, the largest rural communities,
poverty data, federal designations (e.g. medically underserved), as well as income, race and ethnicity data.

From the Oregon State Cancer Registry (OSCaR), we acquired county-level average annual breast cancer
incidence and mortality counts3, and late stage diagnoses data.4 OSCaR identified any statistically significant
figures. The Behavioral Risk Factor Surveillance Survey (BRFSS) provided the percentage of women reporting
having received a mammogram in the past two years5 (See Appendix A). Driving times to mammography sites
was obtained from a statewide mammography capacity survey and analysis conducted by the t Knight Cancer
Institute’s Regional Cancer Control Strategies (RCCS) team in 2009. We derived driving time to the each
mammography site using zip codes. (These county-specific maps are included in the individual county
profiles.)

We utilized Catholic Healthcare West’s Community Need Index (CNI) maps6, developed in partnership with
Thomson Reuters. Using a four-point scale to identify severity of need, the CNI maps pinpoint neighborhoods
(by zip code) with significant barriers to health care for each county in our target area (These county-specific
maps are included in the individual county profiles.) Rather than relying solely on public health data, the CNI
accounts for the underlying social and economic barriers that affect overall health. Using a combination of
research, literature, and experiential evidence, Catholic Healthcare West identified the following five prominent
socio-economic barriers to quantify health care access in communities.


OHSU Knight Cancer Institute                                          September 30, 2011                        4 
1.   Income – percent of elderly, children, and single parents living in poverty.
    2.   Cultural/Language – percent of adults over the age of 25 with limited English proficiency
    3.   Educational – percent without high school diploma
    4.   Insurance – percent uninsured and unemployed
    5.   Housing – percent renting houses

In addition we looked at the population of rural women by age, socioeconomic status and race/ethnicity; all
data provided by the Office of Rural Health and the 2010 Census. (See Appendix B & C).

Finally, we compiled a “breast health network.” We collected breast health/cancer medical services (e.g.
hospitals, Federally Qualified Health Centers, mammography sites, Health Departments). Also included are
providers of the Oregon Breast and Cervical Cancer Program (OBCCP) that help low-income, uninsured, and
medically underserved women gain access to lifesaving screening programs for early detection of breast and
cervical cancers (See Appendix D). The OBCCP served 7,840 women statewide through approximately 120
enrolling providers. A significant and important component of our CHE’s effort was conducting key informant
interviews to learn of specific programs/activities and successes/concerns at the local level. A list of contacts
was developed from current relationships, Komen grantees and by asking for names of additional key players.
We developed a question set (see Appendix E) but also allowed the conversation to be driven by community
members. Already this process has begun to build relationships and engage more directly with those interested
in addressing the breast health needs in their communities.

Summary Findings 
Overall, the North Coast has great need but also tremendous potential. With the exception of one county,
mammography sites are housed within hospitals. There are strong connections between the hospitals, clinics
that provide primary care to low income or under-screened women, and the community organizations who
seek to drive women to those services. Much of the breast health outreach and education has been supported
by community grants from the local affiliate of Susan G. Komen for the Cure. In these rural communities, the
work has been largely done by staff of hospitals or clinics, some only to their patients, others to the broader
community. A few have been able to incorporate their grant-funded program into operational budgets, while
others risk losing their programs if not funded by Komen. Many of the programs are repeated each year, often
during Breast Cancer Awareness month in October. A number of key informants recognize the need to reach
the low income and Hispanic residents in their communities. A few have connected with food banks, domestic
violence shelters or laundry mats to provide resources and information; however, there has not been great
success reaching Hispanic populations. Many have asked for additional resources, particularly materials that
are free/low cost, written for low literacy levels or in Spanish.

                                       




OHSU Knight Cancer Institute                                          September 30, 2011                       5 
Columbia County  
 
Summary 
Columbia County, named for its location along the Columbia
River, was created in 1854. It encompasses almost 700 square
miles, with 62 of those miles being Columbia riverfront. The
Chinook and Clatskanie Native Americans inhabited this region
for centuries prior to the arrival of Robert Gray, captain of the
ship Columbia Rediviva, in 1792. (There are no designated tribal
lands in the county today.) The Lewis and Clark Expedition
traveled and camped along the Columbia River shore in the area later known as Columbia County in late 1805
and on their return journey in early 1806. 7

Columbia County has a strong economic heritage centered on forest products, shipbuilding, mining and
agriculture industries. The extensive stands of old growth timber, which had attracted many of the early settlers
to the area, were completely logged by the 1950s. Second growth timber provides the raw material for local
lumber and paper mills. The Trojan Nuclear Plant, located near Rainier, was in operation from 1975 to 1993.
8
 The Columbia River is a major route for ocean-going vessels and is a popular playground for fishing, boating,
camping and windsurfing. The rural lifestyle and scenic beauty of Columbia County, coupled with its proximity
to Portland, have drawn many new residents to the area. 9 Today, the majority of the population lives in three
rural cities – Clatskanie, St. Helens and Vernonia. All are designated Health Professional Shortage Areas
(HPSA) for Geography and Population. Vernonia is a Medically Underserved Area/Population area and
Clatskanie has an Oregon Office of Rural Health (ORH) designation of unmet need.10  Based upon access to
healthcare, the town of St. Helens has the greatest need.

Breast cancer resources are limited in Columbia County including a high provider turnover rate (as commented
by a key informant), a singular mammography screening site, lack of a community hospital (often the hub of
outreach activity), no dedicated resource to coordinate services to low income women through the Oregon
Breast and Cervical Cancer Program (OBCCP), and limited inventory of printed educational materials.
However, this county also has access to the only mobile mammography van in the state. Our contacts at the
Health Department and Women’s Resource Center (WRC) would be willing to distribute any breast health
materials, but do not have current resources to actively conduct any outreach. In addition, Public Health is
currently undergoing some organizational changes which may limit their ability to contribute to any outreach
efforts.

Geography and Demographics 
There are three major rural population centers in the county - Clatskanie, St. Helens and Vernonia. The total
                                              rural population of the county is just under 50,000 people. The
                                              percentage of women of mammography screening age is
                                              comparable to the state averages as noted below in Table 1. A
                                              small Hispanic population resides in this county. However, the
                                              percentage of households living below 200% of the FPL ranges
                                              from 22-28% in the largest towns of Clatskanie, St. Helens and
                                              Vernonia (Table 2). All have a Health Professional Shortage
                                              Area (HPSA) designation for Geography and Population.
                                              Vernonia has a Medically Underserved Area/Population areas
                                              designation, and Clatskanie has an Office of Rural Health (ORH)
                                              designation of unmet need.11   

OHSU Knight Cancer Institute                                          September 30, 2011                        6 
Table 1 Population of Rural Women by Age

                        Ages 45-64              Ages 65-74               Ages 75+
City                     #          %            #          %            #          %
Clatskanie            2,035      30.8%         565        8.5%         417        6.3%
St. Helens            5,047      29.5%        1,290       7.5%         975        5.7%
Vernonia               509       27.3%         137        7.3%          83        4.4%
Oregon                  27.6%             7.8%                                    7.7%
(Appendix B) 
 
Table 2 Poverty Levels/Minority Populations 

                  % Below 200%               % for               Largest             % for
                                                                                             % in OR
City                  FPL*                  County               Minority           County
Clatskanie           27.2%                  23.5%                Hispanic            2.9%    11.75%
St. Helens           22.1%                                       Hispanic            4.5%
Vernonia             27.9%                                       Hispanic            2.4%
Rural                   33.3%
Oregon                  29.6%
*Federal Poverty Level
(Appendix C) 




OHSU Knight Cancer Institute                                          September 30, 2011               7 
The Community Need Index (CNI) map, which indicates neighborhoods with significant healthcare barriers,
has pinpointed the greatest need in the northeast portion of the county, especially in St. Helens (zip code
97051).




                                                                                                               
Breast Heath Network 
There are no hospitals located in this county. The local health department is undergoing a transition to a non-
profit organizations and it is unclear whether they will continue to offer the current breadth of services
(Communicable Diseases, Emergency Preparedness, Environmental Health, Immunizations, School-Based
Health Centers, Sexually Transmitted Disease Program, Tobacco Prevention Education, Women, Infants,
Children (WIC) program). There is a primary care clinic, associated with a health system, located in St. Helens
which provides the county’s only mammography facility (Table 3).

OHSU Knight Cancer Institute                                          September 30, 2011                          8 
Table 3
                 Name of Organization                                  Location                                 Type

 Columbia County Health District                                      St. Helens                   Public Health Department

 Legacy Imaging Services at St. Helens                                St. Helens                       Mammography Site

 Oregon Health & Science University-Family                            Scappoose                        Primary Care Clinic
 Medicine Clinic

Mammography and Breast Cancer 
The county’s one mammography site is within a 30 minute drive if a woman lives along the I-5 corridor.
However, there are sections within this county that are less densely populated that would require driving
greater than 30 minutes each way. Columbia County has two OBCCP providers and a very limited number of
OBCCP allocations. Locally, most clients who utilize the program receive an annual exam and are referred to
nearby mammography site in Multnomah County.




             Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University 
              




OHSU Knight Cancer Institute                                          September 30, 2011                                      9 
In this county, neither the incidence not mortality rates are statistically higher than the state average. Based
upon a five-year average, 34 women are diagnosed with breast cancer and 6 die annually.12 (See Table 4)

Table 4
                 Mammography                                                Female Incidence                               Female Mortality
               Women     MMG                                          Cases Per 100,000     % Late                       Cases    Per 100,000
                 40+   Screening                                       per       (age        Stage                      per Year      (age
                         Rate                                         Year     adjusted)   Diagnosis                               adjusted)
      Columbia 12,338    74%                                            34      134.3        27%                            6         23.0
      Oregon   913,828  73.3%                                         2,707     131.9        27%*                         511         23.9
    Population estim ates: US Census Bureau, Am erican Com munity Survey (ACS) 2006-2008; ++ US Census Bureau, Population Estim ates 2008 data set
    Screening Data: BRFSS 2004-2007 Age Adjusted data
    Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles
    Late stage diagnosis: OSCaR 1996-2006


    ^ Rate/trend is not calculated due to instability of small num bers
    *Statistically Significant County (H=High, L=Low)
    + % Based upon lesds than 50 respondents, may not accurately reflect county
                                                                                                                                                      
(Appendix A)



Community Resources 
While there is recognition of need by our community contacts, there are no current resources to actively
engage in outreach. When the situation changes, there are a number of community events and worksites that
could be targeted as noted below.

Community Events of Interest 
     July: Columbia County Fair and Rodeo (St. Helens)
     July: Clatskanie Blues Festival (Clatskanie)
     September: Scappoose Sauerkraut Festival (Scappoose)
     October: Halloween Town (St. Helens)
     December: Christmas Ships Parade & Tree Lighting (St. Helens)

Major Employers (100 + Employees) 13 
     Manufacturing (2,230)
     Government (2,175)
     Retail trade (1,908)
     Health care and social assistance (1,489)
     Accommodation and food services (1,166)
     Other services except public administration (1,092)
     Real Estate, Rentals, Leasing (1015)
     Construction (916)
     Transportation and warehousing (722)
     Administrative and waste services (717)

 
 
 

                                                       




OHSU Knight Cancer Institute                                          September 30, 2011                                                                 10 
Key Informant Interviews 
Our key informant interviews were conducted in May 2011 by our Community Health Educator. She
interviewed staff of the Health Department, a women’s domestic violence resource center and the mobile
mammography van who provides services in this county.

1. Columbia County Health District - St. Helens, OR
   Lori Peterson: Office Manager, Family Planning/Prenatal Billing
   May 26, 2011

Columbia County Health District (CCHD) is Columbia County’s only safety net clinic providing valuable
resources for underinsured and uninsured residents. Their program is currently under transition as the
department changes from a publicly funded Health Department into a privately funded non-profit. CCHD is an
OBCCP provider. They provide mammography screening to approximately five women per quarter, which falls
short of the need. As with any county, they can request additional resources from the State. They utilize a
nurse practitioner two times per week to perform all the women’s health exams. As noted earlier, the only
mammography site is located at Legacy Imaging Services in St. Helens, so women are referred to that site or
to Portland, a 28 mile drive, for their imaging.

Strengths
 They are the health care resource to low-income/vulnerable populations within their community.


Challenges
 Transportation:
       o The County’s transportation system “CC Rider” has limited services often requiring women to make
         multiple transfers before getting to their final destination. Therefore, a one hour medical appointment
         could take significantly longer via public transit.
 Limited healthcare resources:
       o No OBGYN in Columbia County
       o Legacy clinic only accepts insured clients.
       o Our informant feels there is a high provider turnover rate in all specialties.

Outreach Activities 
Educational Trainings
 Outreach/Education- Most is done in clinic at the Health Department.

Partnerships
 Provider for the Oregon Breast and Cervical Cancer Program (OBCCP)
 
 
 
 
 
 
 
 
 


OHSU Knight Cancer Institute                                          September 30, 2011                      11 
2. Tuality Health Care, Vernonia, OR
   Mary Mulholland, Mobile Mammography Coordinator
   May 24, 2011

Tuality operates the only mobile mammography van in Oregon.
Staffed by one technologist and one nurse, they perform
screening exams only, no diagnostics. Currently the van is
equipped with analog technology, but there are near term plans
to convert to digital imaging.

The mobile van targets mainly insured or private-pay patients. Few, if any, are uninsured women. The van is
stationed most days in the parking lot of Tuality Health Care in Forest Grove (Washington County), providing
greater convenience to its patients than a hospital appointment. However, it does travel monthly to
communities within an approximately 25 mile radius of Tuality Health. The mobile van staff partners with
clinics, businesses, senior centers and others to provide mammography services for health fairs or other
gatherings. Appointments are pre-scheduled and organizations must recruit ten or more patients for each
event. They have current screening event partnerships with Nike, Intel and Fred Meyer and Coffee Creek
Correctional Facility. Most of the marketing for an employer screening event involves encouraging the business
or organization to put information about the mobile mammography screening event on their website, send out
information via an all staff email or place posters on employee bulletin boards. In partnership with the
Providence Health System, the Tuality van goes to once per month to their clinic in Vernonia, which has on-site
mammography capabilities. While this is an added local resource, it is not available to women in other parts of
the state.

Tuality Health is an OBCCP provider and serves a diverse group of women -- 25% of clients are non-English
speaking, most are Hispanic and Spanish speaking, as well as Asian/Pacific Islander and Russian/Slavic
women. No interpreter services are provided. One of the commonly visited workplaces is Intel, where many of
the non-English speaking women screened are the wives of employees originally from India.

                                                   Strengths
                                                      They developed an approach for doing outreach to insured
                                                       women
                                                      Have the State’s only mobile mammography van.

                                                   Challenges
                                                     Feel providers need more education around “when to screen”
                                                    
                                                    

                                                    

Outreach Activities 
Partnerships
   Provider for the Oregon Breast and Cervical Cancer Program (OBCCP)
   Mobile van to workplaces: Nike, Intel, and Fred Meyer
   Coffee Creek Correctional Facility




OHSU Knight Cancer Institute                                          September 30, 2011                           12 
 
3.   Columbia County Women’s Resource Center, St. Helens, OR
     Rachael Barry-Dame, Director
     May 26, 2011

The Columbia County Women’s Resource Center (WRC) is an organization dedicated to ending
family violence and sexual assault. Their program includes The Starting Place, which is a 22-bed shelter for
women and children who have experienced domestic and sexual abuse. The shelter is a safe haven where
women can begin to put their lives back together following traumatizing relationships. Their trained team of
advocates provides 24-hour services to victims and their families. They are there to listen and offer
whatever information and support they can.

Norma's Place Thrift Shop supports the Resource Center by providing funding for programs and services,
giving job training to those in need, and offering low-cost items for sale to the community. The Columbia
County Women’s Resource Center provides NO direct clinical services. Rachael feels the Women’s
Resource Center doesn’t have the capacity to do breast health outreach, but would stock and distribute
resources to her cliental. She would be interested in doing some kind of partnership with us on an
awareness event. Some data she offered:

  Large faith communities in Rainer and Clatskanie
  22,000 people living in unincorporated area of the county
  70% commute outside of the county everyday to work
  People travel outside the county for health services
       o Rainer or Clatskanie residents are likely to go to Cowlitz County, WA
       o Vernonia residents seek services in Washington County
       o St. Helens/Scappoose residents seek services in Multnomah County
       o Rainer is a hot place for Bingo! Proceeds benefit WRC

Strengths
   WRC has a good sense of the people within the community and how they seek out social services.
   Open to discussing education outreach collaboration.


Challenges
  No capacity for breast health outreach.
  Cliental may not feel breast health is a current priority.

Outreach Activities 

Events
  13 Nights on the River- Live music and market every Thursday during the summer.

Partnerships
  They offer job training via Norma’s Place with Oregon Department of Health Services (DHS).
  Community Action Team (CAT) is a local resource for housing and energy assistance. They provide
   services to veterans and operate head start and other early childhood learning programs.
  Family Violence Council is a group that is made up of local social services organizations as well as the
   commission on families, DHS and the District Attorney’s office.



OHSU Knight Cancer Institute                                 September 30, 2011                         13 
 
Clatsop County  
Summary  
Located in the most northwestern corner of the state,
Clatsop County encompasses just over 1,000 square
miles bordered by the Pacific Ocean to the west and
Columbia River to the north. The county gets its name
from the Clatsop tribe of Native Americans, who lived
along the coast of the Pacific Ocean prior to European
settlement. The Lewis and Clark Expedition stayed for
the winter of 1805-6. Astoria, Oregon's oldest city was
established as a fur trading post in 1811 and named
after John Jacob Astor. The first U.S. Post Office west of the Rocky Mountains was established in Astoria in
1847. The summer resort of Seaside was founded by Ben Holladay in the early 1870’s after he constructed
the Seaside House, a famous luxury hotel for which the city was named. 14

A popular point of interest is the Astoria Column, a tower 125 feet. It sits in a wooded area 600 feet above
sea level on Coxcomb Hill, Astoria’ s highest point. The column was built by the Astor family in 1926 to
commemorate the region's early history. 15 The forested coast range bisects the county creating travel
obstacles during the winter months. Forest products, retail and tourism and are the major industries.

The majority of the rural population lives in two cities along the western coastline. Both Astoria and Seaside
are designated Medically Underserved Area/Population areas.16 The greatest needs to access healthcare
are in the north and mid-section of the county, particularly Warrenton and near Astoria, and to a lesser
degree towards the south portion of the county.

Due to our inability to connect with Providence Seaside, all of our key informant interviews were conducted in
Astoria. Columbia Memorial Hospital in Astoria conducts a number of breast cancer outreach activities,
funded for multiple years through Komen community grants, which are now part of the hospital’s programs.
They understand the needs of their community but have limited resources. However, they are an eager
community partner for piloting our “Let’s Get Healthy!” intervention.

Geography & Demographics 

                                                                   The largest rural communities in Clatsop County are
                                                                   all along waterways - Astoria, Cannon Beach,
                                                                   Gearhart, Seaside, Warrenton – with approximately
                                                                   37,000 residents over 1,085 square miles. 17 As
                                                                   noted on the tables below (Table 1), the percent of
                                                                   women over 45, appropriate for mammography
                                                                   screening, is slightly higher than the state.
                                                                   Approximately a third of residents in Astoria and
                                                                   Seaside are below 200% of the Federal Poverty line
                                                                   (FPL), which is slightly higher than the state
                                                                   average. The greatest concentration of Hispanics is
                                                                   in Seaside at 9% of the population. (Table 2)


OHSU Knight Cancer Institute                                September 30, 2011                                  14 
 
Table 1 Population of Rural Women by Age

      City       Ages 45-64          Ages 65-74                 Ages 75+
                  #         %       #            %            #            %
  Astoria       3,602     28.8%   1,127         9%          1,131         9%
  Seaside       1,985     31.2%    693        10.9%          728        11.4%
  Oregon                  27.6%                7.8%                      7.7%
(Appendix B) 
 
Table 2 Poverty Levels/Minority Populations 
                % Below 200%       % for                      Largest            % for    % in
      City           FPL*         County                      Minority          County     OR
  Astoria           31.5%          31.9%                      Hispanic           5.9%    11.75%
  Seaside           31.9%                                     Hispanic            9%
    Rural                33.3%
    Oregon               29.6%
*Federal Poverty Level
(Appendix C) 
 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


OHSU Knight Cancer Institute                                  September 30, 2011                      15 
 
To indentify the greatest need in the county, the Community Need Index maps indicate a needed focus in the
north and mid-section of the county, particularly Warrenton (zip code 97121 and 97146) and near Astoria (zip
code 97103), and to a lesser degree to the south (zip code 97138).




 
                                                                                                                
 
Breast Health Network 
There are two major health systems in this county, both along the coast, that provide the cancer screening
and treatment services for the county -- Columbia Memorial Hospital in Astoria to the north and Providence
Hospital in Seaside to the south. There is a strong collaboration between Columbia Memorial Hospital and
OHSU Knight Cancer Institute for oncology services. These hospitals are the mammography screening sites
in the county. Astoria has the only low-income health clinic and three of the four OBCCP providers in the
county. (See Table 3)
 
 
OHSU Knight Cancer Institute                                September 30, 2011                           16 
 
Table 3
     Name of Organization                             Location                            Type
Columbia Memorial Hospital                             Astoria              Hospital
                                                                            Komen Grantee
                                                                            Mammography Site
Clatsop County Health Department                       Astoria              Public Health Department

Coastal Family Health                                  Astoria              Federally Qualified Health Center

Providence Seaside Hospital                           Seaside               Hospital
                                                                            Komen Grantee
                                                                            Mammography Site

Mammography and Breast Cancer 
As noted above, there are two places a woman can obtain a mammogram – in Astoria and Seaside. As the
map below depicts, if a woman lives in the northwest corner of this county, her one-way drive is within 30
minutes of a mammography site. However there are sections within this county that are less densely
populated that would require a drive greater than 30 minutes each way, mainly the southern portion of the
county.




                                                                                                                            
                                                                        
           Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University 
                                                                         
          Legend:
               61 to 180 minutes
               31 to 60 minutes
               0 to 30 minutes 
OHSU Knight Cancer Institute                                        September 30, 2011                                         17 
 
Oregon consistently ranks in the top 10 states for incidence and mid-range for mortality, so while neither the
incidence nor mortality is statistically higher compared to that state average, there is significant burden of
breast cancer in this county. (See Table 4)

Table 4
                        Mammography                                       Female Incidence                                   Female Mortality
                      Women    MMG                                Cases     Per 100,000    % Late                         Cases     Per 100,000
                       40+   Screening                           per Year (age adjusted)    Stage                        per Year (age adjusted)
                                Rate                                                      Diagnosis
 Clatsop               10,021                64.0%                    32             132.5              30%                   7                   28.0
 Oregon               913,828                73.3%                  2,707            131.9              27%*                 511                  23.9
Population es tim ates : US Cens us Bureau, Am erican Com m unity Survey (ACS) 2006-2008; ++ US Cens us Bureau, Population Es tim ates 2008 data s et
Screening Data: BRFSS 2004-2007 Age Adjus ted data
Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles
Late s tage diagnos is : OSCaR 1996-2006


^ Rate/trend is not calculated due to ins tability of s m all num bers
*Statis tically Significant County (H=High, L=Low)
+ % Bas ed upon les ds than 50 res pondents , m ay not accurately reflect county                                                                               
(Appendix A)


Community Resources 
Much of the cancer awareness/outreach in the county is associated with the American Cancer Society (ACS)
Relay for Life event and the outreach efforts of Columbia Memorial Hospital, both in Astoria. While Seaside
Providence Hospital is a large health system and presumably has their own outreach programs, to this point
we have been unable to make direct connections with them to include their activities in our report. The major
community events are in the summer months in the coastal communities of Astoria and Seaside. There are
numerous worksites that employ a large number of people which could provide outreach opportunities.

Community Events of Interest 
  April: Astoria/Warrenton Crab, Seafood and Wine Festival
  June: Astoria Music Festival
  June: Seaside Beach Soccer Tournament
  July: All coastal towns have an event for the 4th
  July: 2011 Relay For life of Clatsop County (Astoria)
  August: Annual Seaside Beach Volleyball Tournament (30 years!)
  September: Seaside Wheels & Waves

Major Employers (100 + Employees) 18 
 Georgia-Pacific (1,038)                                                                   Costco (100)
  State Agencies (430)                                                                     Seaside School District (187)
  Clatsop County (224)                                                                     Safeway (two locations) (180)
  Pig N Pancake (80 up to 130 Seasonal)                                                    Steve Martin Management (24)
  U.S. Coast Guard (391)
  Astoria School District (249)
  Columbia Memorial Hospital (240)
  Fred Meyer (220)
  Safeway (two locations) (180)
  Weyerhaeuser Co. (155)
  Clatsop Community College (145)
  Pacific Coast Seafood Co. (125)
OHSU Knight Cancer Institute                                                   September 30, 2011                                                       18 
 
Key Informant Interviews 
Our Community Health Educator was able to personally speak with breast health resources in Astoria only. We
will continue to build this section more is learned.

1. Columbia Memorial Hospital, Astoria, OR
   Nancy Magathan, RN; Breast Health & Cancer Resource Coordinator
   March 4, 2011

Clatsop County has a champion for breast health outreach and education -- Nancy Magathan. She has built a
robust breast cancer education program, first with Komen grant funding and now supported by the hospital.
Her programs could be models for other hospitals looking to develop similar programs. According to Nancy, not
all Clatsop residents seek care in the county, and instead travel to Pacific, Wahkiakum or Cowlitz counties in
Washington State. Cancer treatment services are also sometimes sought at St. John Medical Center in
Longview, WA (Cowlitz Co.), even though Columbia Memorial is closer.

Strengths
   Successful in using print media for outreach. Placing ads in the local newspaper, “The Daily Astorian,” is a
    popular outreach method. Usually receive referral calls from local women within 48 hours of ad placement.
   Initially started with a Komen grant, the Breast Health education program is now financially supported by
    the hospital. They have added a Patient Navigator to their breast health program with funding from Susan
    G. Komen for the Cure, Oregon and SW Washington affiliate. The purpose of the grant is to assist women
    in the screening and treatment process.

Challenges
  Columbia Memorial only has one outreach person so they are limited in the amount of outreach they can
   do.
  Hospital business practice requires a woman get a referral from her medical provider to obtain a screening
   mammogram.
  Some people living in Clatsop County seek services in Washington State. To inform women that they can
   access those same mammography and cancer treatment services in Clatsop County, Nancy uses
   newspaper ads and articles to reach women outside her area of direct contact.
  There is confusion about recent U.S. Preventive Services Task Force (USPSTF) mammography
   recommendations. Nancy stated that “most insurance companies follow recommendations of USPSTF so
   while a woman can get a mammogram at age 40, insurance may not cover the cost of the mammogram
   until she is 50.” She has heard this from women who see healthcare providers in Seaside.
 
Outreach Activities 
 
Direct Care Services                                                  Educational Trainings
   Assisting women to access screening services                       Breast/Colorectal health (Quarterly)
    at hospital
                                                                      Health Fairs & Tabling Events
Awareness Events                                                       County Employee Health Fair (Annually)
 Project Homeless Connect- (Annually)                                 Relay for Life (Annually)
                                                                       County Fair (Annually)
                                                                       Costco


OHSU Knight Cancer Institute                                September 30, 2011                                   19 
 
Partnerships
 Provider for State of Oregon Breast and Cervical Cancer Program (OBCCP)
 Philanthropic Educational Organization
 Clatsop Community College
 Job Corps
 Women’s Resource Center
 Churches
 Business


Indirect
 Newspapers: Daily Astorian (reaches 74% of Clatsop County including: Astoria, Warrenton, Gearhart,
   Seaside, Cannon Beach, Manzanita, Rockaway Beach; WA- Ilwaco, Sea view, Long Beach, Ocean Park
   Nahcotta and Oysterville.)
 Social Media/websites: http://www.y-me.org/
 Hand Out’s: Patient reminder post card, breast health brochures etc.




2. Clatsop County Health Department, Astoria, OR
Steven Blakesley, Health Promotion Specialist
November, 2011

Clatsop County Public Health is not currently involved with Oregon Breast and Cervical Cancer Program
(OBCCP). The clinic does not do any breast cancer outreach or education as it is focused on family planning,
STD/HIV testing, and immunizations. The public health program that is most aligned with the OBCCP is the
Health Promotion and Chronic Disease Prevention program. The focus is primarily on reducing chronic disease
prevalence by promoting changes to policy and environments that support increased physical activity and
healthier food choices. The health promotion coordinator partners with both hospitals on various initiatives.
Together with the Oregon Health Authority a colorectal cancer screening campaign was successfully piloted in
Clatsop County in 2010.

Strengths
     Facilitate broad base of partnerships throughout the north and south region of the county, e.g. ongoing
        partnerships with both Seaside Providence and Columbia Memorial hospitals
     Worked in partnership to pilot Colorectal Cancer Screening Campaign in 2010
     Strong network of community partners including local rep for American Cancer Society

Challenges
    OBCCP not supported through current grant funding




                                 




OHSU Knight Cancer Institute                                    September 30, 2011                    20 
 
Tillamook County  
Summary 
Tillamook County is the land of trees, cheese and ocean breeze! The
county was named after the Tillamook Indians who lived in the areas
surrounding the Tillamook and Nehalem Bays. Tillamook is a Native
American word meaning "Land of Many Waters." The major physical
features of Tillamook County are a rocky and irregular coastline,
stretches of coastal lowlands, and heavily timbered mountains of the
Coast Range. With seventy-five miles of coastline, four bays, and nine
rivers, recreational and tourist opportunities are numerous.19 The
forested Coastal Range divides the county east to west, where snow
is common resulting in travel obstacles during the winter months.
When early settlers saw these green valley’s in 1851, they recognized
that Tillamook’s mild climate, abundant water, and year around
pastures were perfect for raising dairy cattle. Dairy farming and timber
are the county's most significant employment sectors; there are 150 family dairy farms and 93% of the county
is classified as forest land.

The major rural communities are Medically Underserved Area/Population areas and have higher than state
average poverty levels. Its residents are generally older than those living in other parts of the state, and
Hispanics are the largest minority population.

The county is served by one hospital, one mammography site and four, Federally Qualified Health Centers
(FQHC). The FQHC in Wheeler conducts much of the community breast cancer outreach in this county funded
by Komen grants. There is a local breast health coalition made up mostly by hospital staff and other safety net
clinics. Most of this groups activities are centered around October Breast Cancer Awareness Month, although
this group did collaborated with the Knight’s Regional Cancer Control Strategies team in 2009 to address a
community concern surrounding confusion around the change in mammography screening guidelines.
Statistically significant low mammography screening rates have been the issue the community has sought to
address and therefore, may be an ideal community partner.
     
Geography & Demographics 

                                                     Tillamook County encompasses just over 1,133 sq miles. The
                                                     population of its rural communities is 25,250 with the majority
                                                     living in three rural cities along the western coastline –
                                                     Tillamook, Cloverdale, and Nehalem. All three are designated
                                                     Medically Underserved Area/Population areas.20 The towns of
                                                     Tillamook and Nehalem have a higher percentage of
                                                     households living below 200% of the FPL at 38% and 37%,
                                                     respectfully, than the state at 29.6%. (Table 1) As noted below
                                                     (Table 2), the percentage of 65+ year old women is twice the
                                                     state average and Hispanics represent the largest minority
                                                     population and are concentrated in the town of Tillamook.


OHSU Knight Cancer Institute                                September 30, 2011                                21 
 
Table 1 Poverty Levels/Minority populations 
                   % Below 200%         % for                 Largest            % for       % in
         City          FPL*            County                 Minority          County        OR
    Cloverdale        27.7%            35.6%                  Hispanic           5.2%       11.75%
    Nehalem           38.0%                                   Hispanic           5.0%
    Tillamook         35.6%                                   Hispanic          10.3%
    Rural                33.3%
    Oregon               29.6%
*Federal Poverty Level
(Appendix C) 

 

Table 2 Population of Rural Women by Age
                            Ages 45-64            Ages 65-74              Ages 75+
            City            #       %             #      %                #     %

Cloverdale                 798     33.2%         275       11.4%        258         10.7%

Nehalem                    555     32.9%        256        15.2%        242         14.3%
Tillamook                 2,463    28.2%         907       10.3%        884         10.1%

Oregon                             27.6%                   7.8%                     7.7%
(Appendix D) 




OHSU Knight Cancer Institute                                  September 30, 2011                         22 
 
To target the greatest access need in the county, the Community Needs Index map identifies the communities
of Wheeler (zip code 97136), Cape Meares (zip code 97141) and Bay City (zip code 97107).




                                                                                                              


 
 



OHSU Knight Cancer Institute                                September 30, 2011                     23 
 
Breast Health Network  
There are four Federally Qualified Health Centers (FQHC) located in Cloverdale, Rockaway Beach and
Tillamook. Tillamook County General Hospital (in Tillamook) is the only hospital and mammography site in the
county. There are only two OBCCP providers for the county to serve low income women.

         Name of Organization                                 Location                                     Type
Tillamook County Cloverdale Clinic                       Cloverdale                      Federally Qualified Health Center
Rockaway Beach Clinic                                    Rockaway Beach                  Federally Qualified Health Center
Tillamook County Health Department                       Tillamook                       Federally Qualified Health Center

Tillamook County General Hospital                        Tillamook                       Hospital
                                                                                         Mammography Site
Rinehart Clinic                                          Wheeler                         Federally Qualified Health Center
                                                                                         Komen Grantee
 
Mammography and Breast Cancer 
While there is one mammography site in Tillamook County located in the town of Tillamook, many residents
can drive to the mammography site in less than 30 minutes. Those in the northern portion of the county have a
30-60 minute drive one way to Tillamook, but also have the option of driving north to Seaside into Clatsop
County.




                                                                                                                              
                                                                         
           Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University 
            

        


OHSU Knight Cancer Institute                                       September 30, 2011                                            24 
 
While the county level incidence and mortality rates are numerically higher than the state average, they are not
statistically different. Based upon a five-year average, in this county just over 25 women are diagnosed with
breast cancer and 5 die annually.21 Until recently, Tillamook County had a statistically significantly lower
mammography rate (55%) than the state average. That has improved based upon the most recent BRFSS
data (61%). However, there is a recognized community need to continue to address awareness and access to
mammography for its residents, especially given its older female population. (Table 3)

Table 3
                               Mammography                                       Female Incidence                                     Female Mortality

                          Women                   MMG                  Cases        Per 100,000              % Late    Cases                    Per 100,000
                           40+                  Screening               per             (age                  Stage   per Year                      (age
                                                  Rate                  Year         adjusted)              Diagnosis                            adjusted)
Tillamook  7,198                                  61%                    25            134.5                  26%         5                         25.0
Oregon    913,828                                73.3%                 2,707           131.9                  27%       511                         23.9
Population estim ates: US Census Bureau, American Com munity Survey (ACS) 2006-2008; ++ US Census Bureau, Population Estim ates 2008 data set
Screening Data: BRFSS 2004-2007 Age Adjusted data
Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles
Late stage diagnosis: OSCaR 1996-2006


^ Rate/trend is not calculated due to instability of sm all num bers
*Statistically Significant County (H=High, L=Low)
+ % Based upon lesds than 50 respondents, may not accurately reflect county                                                                       
(Appendix A)



Community Resources 
Local efforts over the past 3-5 years have been focused on improving the mammography screening rates
through transportation assistance and awareness campaigns. Much of that outreach in the county is
associated with the Rinehart Clinic, an FQHC and a Komen grantee, located in Wheeler, as well as the Breast
Cancer Coalition located in Tillamook. While the latter group is small, they have been effective in local
awareness raising and fundraising efforts to support breast cancer screening in their community. There are a
number of community events and workplaces that, along with the energy of the breast health coalition, might
be suitable venues for our “Let’s Get Healthy!” intervention.

Community Events of Interest 
 March: Great Oregon Spring Beach Cleanup (Entire Oregon Coast)
 May: Kite Festival (Rockaway Beach)
 June: Dairy Parade “Tillamook County, Butter than the rest!” (Tillamook)
 June: Tillamook County Rodeo (Tillamook)
 July: American Cancer Society 2011 Relay For life (Tillamook)
                                                 th
 July: All coastal towns have an event for the 4
 August: Tillamook County Fair (Tillamook)

Major Employers (# of employees) 
 Dairy Manufacturing (474)
 Timber/Saw Mills (341)
 Meat Processing (275)
 Fresh and Frozen Seafood Processing (66)




OHSU Knight Cancer Institute                                                                September 30, 2011                                                25 
 
Key Informant Interviews  
Our Community Health Educator was able to interview all the players for breast health/cancer outreach in the
county. They include the FQHC, the hospital and the breast health coalition. In 2009, the Knight worked with
these same players to address a need they identified in their community – discussing the changes in the
mammography screening guidelines.

1.  The Rinehart Clinic - Wheeler, OR
   Suzie Whalen: Breast Health Coordinator
   June 15, 2011

Tillamook County has a champion for breast health outreach and education in Suzie Whalen at the Rinehart
Clinic. She is knowledgeable about the screening issues in her community and is actively working to address
them. She connects women with local, state and national resources and administers a transportation
assistance program, made possible by a grant from Susan G. Komen, ACS and local fundraising efforts. This
program provides a woman under 250% of the Federal Poverty Level (FPL) a $25 gas card to help to cover
expenses for a well woman exam, mammogram or follow up breast health procedures. In addition, they can
provide a gas card to any patient that requests help or has significant barriers, regardless of income level, to
obtain her mammography screening or breast cancer treatment. This is significant as the average drive
between Tillamook and Wheeler is 25 miles each way. In addition, the Rinehart Clinic organizes several
community awareness events in October for Breast Cancer Awareness Month including a bra fashion show, art
exhibit and fundraiser. Unlike many counties, Tillamook has an excess of OBCCP slots, potentially an
indication of the lack of readiness of some the county’s low income women to obtain a mammogram.

Tillamook General Hospital has a breast health educator one day per week via a partnership with the Rinehart
Clinic that allows employee wellness events such as receiving their mammogram while “on the clock”. Women
also receive a 15 minute neck and shoulder massage in addition to educational materials and other “pink”
giveaways. Finally, the American Cancer Society holds an annual “Relay for Life” event to raise funds and
increase cancer awareness in the community.

Strengths
 Started outreach with clinic patients. They had 17% compliance on screening rate and were able to increase
   it to 59%.
 Has successfully organized multiple fundraising/awareness events including a bra fashion show which is
   now being hosted by the local museum.
 Successfully implemented two Spa Days. Currently working on the third “Latina Spa Day”
 Rinehart clinic has a solid relationship with the local hospital Tillamook General Hospital including providing
   office space for the Rinehart Clinic breast health educator.
 They have a system for follow up with clients. Suzie works evenings 2 weeks per quarter to call Rinehart
   Clinic patients who are due for MMG. 1 day per month is spent following up with patients who have had an
   abnormal finding and require further diagnostics.

Challenges
 Distance to mammography services (general transportation)
 Resources for men with breast cancer. (Currently there are three men with breast cancer in the county)
 Large deductible’s make receiving preventative screenings difficult for some women
 Suzie felt unsure about whether outreach information was getting to the patients via the providers and clinic
  staff (county-wide)
OHSU Knight Cancer Institute                                September 30, 2011                           26 
 
 Susie feels that people in this county will only seek care if they are sick, won’t go to the doctor for
  preventative care. She feels more patient education is needed. Lack of ability to fill all the OBCCP vouchers
  available. It seems they started with 12 OBCCP slots then increased to 35 slots. In 2010 they entered into a
  partnership with OHSU and their OBCCP slots increased again to 65. It seems they now have more slots
  than they can fill with their current outreach strategies.
 Lack of Spanish speaking staff. Poor attendance of a Latina Spa day (only four of the 35 slots were filled).

Outreach Activities 

Direct Care Services
 Assisting women in setting mammography appointments
 Patient Navigator is available one day per week at Tillamook General Hospital to provide support services to
   women receiving breast cancer treatment at the hospital.

Events
 October Breast Cancer Awareness Month Events including: bra fashion show and exhibit
 Spa Day


Educational Trainings
 Provider and clinic staff education happens via an early morning breakfast that takes place in the clinics.
  This method of outreach seems to work well for giving providers and clinic staff updates to the breast health
  program locally.

Health Fairs & Tabling Events
 They participate in a health fair that is part of the local County Fair. Approximately 500 women received
  educational materials last year.

Partnerships
 Tillamook Creamery
 Tillamook General Hospital
 Churches
 Senator Betsy Johnson
 OHSU- Dr. Elizabeth Steiner
 School District
 Women’s Resource Center


Indirect
 News Paper: Tillamook Headlight Harold a free local newspaper- usually gets a few referrals from the
   advertisements.
 Flyers & Posters




OHSU Knight Cancer Institute                                September 30, 2011                          27 
 
2. Tillamook General Hospital, Tillamook, OR
   Ginny Gabel: Community Health Education & Community Health Improvement Partnership (CHIP) Director
   June 15, 2011

Ginny Gabel is a nurse and health educator at Tillamook General Hospital. She provides health education on
various topics to patients and interested community members. Topics range from nutrition, to managing
chronic illnesses, to breast cancer education. She also organizes various support groups including the
Women’s Cancer support group.

Ginny conducts outreach throughout the county, although infrequently in South County. She has identified
Pacific City, located in south Tillamook County, as a tourist population. She is trying to reach residents and not
the transient tourist population. She thinks locals living near Pacific City may be seeking screening services
south in Lincoln City; or “over the hill” in Portland. In addition, Ginny feels that many people in Tillamook
County have a “What I don’t know won’t hurt me” mentality, especially when it comes to preventative cancer
screenings. People are VERY private, being a small community that they may be reluctant to allow others to
know what’s happening in their lives.

Strengths
     Ginny and the staff at Tillamook General know their community and the concerns they have around
      confidentiality. She understands their general health and mammography screening issues.

Challenges
    Not enough printed materials and other educational resources that talk about cancer and lifestyle/diet
     changes
    Low Literacy rates
    Low Health Literacy rates

Outreach Activities 
 
Direct
      American Cancer Society: Look Good Feel Better Program
      Provides support to the Women’s Cancer Support Group

Educational Trainings
    Quarterly Breast Cancer Education


Partnerships
    Rinehart Clinic
    American Cancer Society
    Tillamook County Breast Health Coalition


Indirect/Trusted Resources
     Book: “The Cancer Project” by Neal D. Barnard and Jennifer K. Reilly




OHSU Knight Cancer Institute                                September 30, 2011                             28 
 
3. Tillamook County Breast Health Coalition, Tillamook, OR
   June 15, 2011

Our Community Health Educator was invited by Suzie Whalen to participate in the Tillamook County Breast
Health Coalition meeting which took place at Tillamook General Hospital. It was a small group that met, but
representatives from Tillamook General Hospital, The Rinehart Clinic, Area Health Education Center (AHEC)
and American Cancer Society (ACS) were present. We learned about the groups collaborations with ACS,
Tillamook General Hospital and the Rinehart clinic. They are in the process of planning a Latina Spa Day and
were looking for advice on how to outreach to the Latina community.

In addition they were excited to share that the ACS program “Look Good...Feel Better” is now happening in
Tillamook County. “Look Good…Feel Better” provides a free two-hour workshop for women undergoing cancer
treatment. This program helps improve the self-image, appearance, and quality of life of patients by teaching
beauty techniques to help cope with the temporary appearance-related side effects of cancer treatment.

Overall this group is trying to work together to address the Breast Cancer issues within Tillamook County.
While they may have limited participants, they have been effective in mobilizing the people, resources and
partnerships they do have.

Strengths
     Effective in mobilizing people, resources and partnerships within their community


Challenges
    Small group of people

Outreach Activities 

Events
    Latina Spa Day (Tillamook)


Partnerships
    Tillamook General Hospital
    Rinehart Clinic
    American Cancer Society
    Area Health Education Center
    OHSU Knight Cancer Institute
    North Lincoln Women’s Cancer Coalition



                                 




OHSU Knight Cancer Institute                                    September 30, 2011                     29 
 
Lincoln County  
Summary 
With miles of beach and coastline, Lincoln County is one of the most popular
visitor destinations on the Oregon Coast.22 Lincoln County encompasses
almost 1,000 square miles bordered by the Pacific Ocean. Named for Abraham
Lincoln, 16th president of the United States, Lincoln County was created by the
Oregon Legislature in 1893. For the first decades of its existence, Lincoln
County was isolated from the rest of the state. The construction of U.S.
Highway 101 (completed in 1925), and the Salmon River Highway (completed
in 1930) created easy access to the more populated Willamette Valley. In 1936,
as one of many federally funded construction projects, bridges were
constructed across the bays at Waldport, Newport, and Siletz, eliminating the
ferries needed to cross these bays.

Principal industries of the county are tourism, trade, health services and construction. Paper manufacturing
and fishing are still important sectors, although they contribute proportionally less to the county's employment
than in the past. Newport is one of the two major fishing ports of Oregon (along with Astoria) and ranks in the
top twenty of fishing ports in the U.S. The cities of Blodgett-Eddyville, Lincoln City, Toledo and Yachats are
designated Medically Underserved Area/Population areas.23 Both Newport and Yachats have almost 40% of
households living below 200% of the FPL. The percentage of women 65+ years old is twice the state average
in Lincoln City, Waldport and Yachats. (Table 1)

Lincoln County is served by the Samaritan Health System that operates two of its five hospitals in this county.
There are Federally Qualified Health Centers, a health department and school-based health centers that serve
low income women and their families. However, the breast cancer statistics reflect statistically significantly high
rates for both of mortality in women 40 to 64 and late stage diagnoses in women over 65 years. There are
many outreach efforts across this county to raise money for screening services. It seems many things happen
in the northern part of the county as well as the southern portion, however there seems to be little happening in
the middle section of the county.
 
Geography and Demographics 

                                The majority of the population, accounting for 46,000 residents, lives along the
                                western coastline in one of seven cities. The female population in Lincoln City,
                                Waldport and Yachats is proportionately older with 12-14% and 11-12% of the
                                population of women 65-74 years and 75+, respectively, compared to
                                approximately 7% statewide (Table 2). Hispanics are the largest minority
                                population in many Lincoln County communities, but Newport has the highest
                                concentration at almost 13%. The northern part of Lincoln County includes
                                the Siletz Reservation, created by treaty in 1855. The reservation was open to
                                non-Indian settlement between 1895 and 1925. The Siletz's tribal status was
                                terminated by the federal government in 1954, but became the first Oregon tribe
                                to have their tribal status reinstated in 1977. As a result, there is a significant
                                Native American community, 16% of the county’s population, in Siletz. The
                                current reservation encompasses 3,666 acres (15 km).24

OHSU Knight Cancer Institute                                September 30, 2011                             30 
 
Table 1 Poverty Level/Minority populations 
                          % Below           % for                                           % for
    City                 200% FPL*         County               Largest Minority           County   % in OR
    Blodgett-Eddyville     36.0%           36.1%                      Hispanic              3.4%    11.75%

    Lincoln City           36.4%                                      Hispanic              8.6%

    Newport                39.7%                                      Hispanic             12.9%

    Waldport               34.5%                                      Hispanic              3.7%

    Yachats                39.5%                                      Hispanic              4.9%

    Siletz                 31.1%                                 Native American           15.9%     1.4%

    Toledo                 30.7%                                 Native American            3.5%

    Rural                  33.3%

    Oregon                 29.6%
*Federal Poverty Level
(Appendix C)

Table 2 Population of Rural Women by Age25 


             City         Ages 45-64                  Ages 65-74                      Ages 75+
                          #        %                  #        %                     #       %

Blodgett-Eddyville        211       27.6%            53           7.8%               48    7.6%

Lincoln City             2,936      32.6%          1,092         12.1%         1,089      12.1%

Newport                  1,815      29.7%            632         10.3%           683      11.1%

Siletz                    342       29.8%            90           7.8%               70    6.1%

Toledo                    777       29.6%            189          7.2%           166       6.3%

Waldport                 1,226      34.4%            501         14.4%           391      11.3%

Yachats                   309       38.0%            116         14.2%               97   11.9%
Oregon                              27.6%                         7.8%                     7.7%
(Appendix B)

 
 




OHSU Knight Cancer Institute                                   September 30, 2011                                 31 
 
Pinpointing need based upon access to healthcare, the Community Index map indicates highest need in
Newport (zip code 97367), followed closely by Toledo (zip code 97391), Logsden (zip code 97357) and Neotsu
(zip code 97364).




                                                                  


 
 




OHSU Knight Cancer Institute                                September 30, 2011                     32 
 
Breast Health Network  
There are two hospitals from one health system in this community; Samaritan North Lincoln Hospital in the
north and Samaritan Pacific Communities Hospital in the south. There are four low-income health clinics in this
county – three in Newport and one in South Beach – as well as multiple school based health centers (See
Table 3).

Table 3
               Name of Organization                               Location                                Type
    Samaritan North Lincoln Hospital                            Lincoln City          Hospital Mammography Site
    North Lincoln Women’s Cancer Coalition                      Lincoln City          Cancer Coalition
    Samaritan Pacific Communities Hospital                      Newport               Hospital Mammography Site
    Lincoln County Health and Human Services                    Newport               Federally Qualified Health Center
    Newport Primary Care Clinic                                 Newport               Federally Qualified Health Center
    Centro De Ayudo                                             Newport               Federally Qualified Health Center
    Women’s Cancer Coalition of Linn, Lincoln                   Newport               Cancer Coalition
    and Benton Counties
    South Beach Behavioral Health Clinic                        South Beach           Federally Qualified Health Center

Mammography and Breast Cancer 
There are two mammography sites in Lincoln County located in Lincoln City in the north and Newport in the
south. For women who live in the cities and towns along the coastline, access to mammography is generally
less than 30 minutes one way. For those living in the hills or to the south, drive times increase to an hour or
more each way. The Coast Range which bisects the county north to south creates a travel obstacle during the
winter months with many on the east side traveling into Benton, Linn and Polk counties for services. 




                                                                                                                             
            Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University 
             
OHSU Knight Cancer Institute                                        September 30, 2011                                          33 
 
Lincoln County has statistically significant high mortality rates, as well as late stage diagnoses. While the
screening rate is only 66% versus the state at 73%, this is not considered a significant difference. Based upon
a five year average for this county, 45 women are diagnosed with breast cancer and 11 die annually.26 The
percentage of women over 45, appropriate for mammography screening, is slightly higher than the state. (See
Table 4)

Table 4
                       Mammography                                       Female Incidence                           Female Mortality
                    Women     MMG                              Cases       Per 100,000   % Late                   Cases    Per 100,000
                      40+   Screening                           per            (age       Stage                  per Year      (age
                              Rate                              Year        adjusted)   Diagnosis                           adjusted)
County               14,241   66%                                45           130.8       31%*                      11        31.0*
Oregon              913,828  73.3%                             2,707          131.9       27%*                     511         23.9
Population estimates: US Census Bureau, American Community Survey (ACS) 2006-2008; ++ US Census Bureau, Population Estimates 2008 data set
Screening Data: BRFSS 2004-2007 Age Adjusted data
Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles
Late stage diagnosis: OSCaR 1996-2006


^ Rate/trend is not calculated due to instability of small numbers
*Statistically Significant County (H=High, L=Low)
+ % Based upon lesds than 50 respondents, may not accurately reflect county
                                                                                                                                              
(Appendix A)

Community Resources 
Much of the cancer awareness outreach activities in the county are incorporated into fundraisers for local
screening programs. An annual Fashion Show put on by Pacific Communities Hospital Foundation raises
money for the screening services at Samaritan Pacific Communities Hospital. They have also been successful
in implementing a Surviving to Thrive program for survivors in their community. In North Lincoln County, Area
Health Education Center (AHEC) and North Lincoln Hospital partner with a group of local business women who
put on a similar fundraiser. American Cancer Society programs are also visible here with Relay for Life being a
successful event in this community. The Women’s Cancer Coalition of Linn, Lincoln and Benton Counties are a
tri-county partnership to address women’s cancers within their community. This group has implemented a
screening event in Benton County called “Mammathon” which successfully screened 100 women in one day
last year. They hope to bring this program to Lincoln County. There is also an active Community Health
Improvement Program (CHIP) that addresses many local health issues including breast health/cancer. There
are year-around community events and large employers that could be leveraged for our outreach efforts.

Community Events of Interest 
 January: Crab Krack (Newport)
 April: Wooden Boat Show & Crab feed (Depoe Bay)
 May :Waldport Great Garage Sale (Waldport)
 May: Fashion Show Fundraiser for local mammography screening and patient care services (Newport)
 June: Lincoln City Summer Kite Festival (Lincoln City)
 July: Newport Clambake and Seafood BBQ: (Newport)
 July: Lincoln County Fair (Newport)
 August: Relay for Life (Newport)
 August: Nesika Illahee Pow-Wow (Siletz)
 August: Garage sale fundraiser for mammography screenings.( Newport)
                 th
 September: 56 Annual Indian-Style Salmon Bake (Depoe Bay)
 October: Lincoln City Fall Kite Festival (Lincoln City)
 October: Health Fair at Chinook Winds Casino (Lincoln City)

OHSU Knight Cancer Institute                                                       September 30, 2011                                            34 
 
 November: Siletz Tribal Restoration Pow-Wow (Siletz)
 November: Chowder Cook Off (Lincoln City)
 December: Fashion Show Fundraiser for local mammography screenings (Lincoln City)
 December: Festival of Trees (Newport)

Major Employers (100 + employees) 
 Confederated Tribes of Siletz Indians (1,127)
 Samaritan Health Services (800)
 Lincoln County School District (500)
 Lincoln County (425)
 Georgia Pacific Toledo (420)
 OSU Hatfield Marine Science Center (401)
 Pacific Seafood (200)
 Fred Meyer (200)
 City of Lincoln City (160)
 Wal-Mart (157)
 Central Lincoln PUD (136)
 Salishan Lodge (130)
 City of Newport (125)
 Trident Seafood (seasonal) (120)
 Shilo Inns (100) 
 Inn at Spanish Head (100) 
                                 




OHSU Knight Cancer Institute                                    September 30, 2011        35 
 
Key Informant Interviews 
 

1. Lincoln County Health and Human Services (HHS) - Newport, OR
   Joell Archibald, RN, BSN, MBA; (Director)
   Rebecca McBee-Wilson: (Primary Care Division Director)
   Liz Young, BSN, RNC (Clinic Coordinator for Primary Care)
   June 16, 2011

    Linn, Lincoln and Benton counties have a partnership with Samaritan called the “Coast to Cascade Wellness
    Network.” Prompted by grant requirements, HHS recently completed the Robert Wood Johnson Foundation
    (RWJF) health rankings; the Public Health Department just completed a health assessment utilizing the
    CDC’s CHANGE tool as a requirement of their Healthy Communities Grant. The county tobacco use is 3rd
    highest in the state with 26.9%.27

    Our informant describes the socioeconomic climate as mixed -- high and low income earners with various
    levels of education. There are large numbers of retired people, tourists and those who work in the tourist
    industry, in often lower wage jobs. Those individuals who have health insurance may seek services “in the
    valley” (Corvallis & Salem) as opposed to locally. Low wage earners, often without insurance or unable to
    leave their jobs without losing pay, are less likely to seek services until they are sick. In her clinical
    experience, many never receive preventative health services like dental or vision screenings. Low income
    residents, particularly Hispanics, are served through school base health centers that have been successful in
    building trust within these vulnerable populations.

    The other two clinics run by the county are shared in a cooperative with Veterans Affairs (VA) one day per
    week. This clinic brings a VA doctor to the community including specialty doctors. This is the first clinic of its
    kind in the nation. It has been very successful and people appreciate having this resource in the community.
    The downside to sharing space is that the county-run clinics cannot operate when the VA runs their clinics.
    They are currently operating at maximum capacity but are looking to expand.

Strengths
     Public Health really understands their community and the challenges some community members face.
     They have a community needs assessment and evaluation tools needed to track progress.


Challenges
    Women within the community do not know where to go for information
    They feel there are communication issues with the two Samaritan hospitals that make creating a
     cohesive county-wide program difficult.
    North Lincoln- concerned that there is no outreach person to engage with community
    More women want to be screened through the OBCCP than is currently allocated to the county
                             




OHSU Knight Cancer Institute                                    September 30, 2011                              36 
 
Outreach Activities 
 
Direct Care Services
       4 school based health centers
       2 county FQHCs

Events
    Lincoln County Fair (Senior Day)- Annually


Educational Trainings
    Limited- by invitation


Health Fairs & Tabling Events
    Senior Health Fair (2,500 attended in past years) at Casino- Annually


Partnerships
    Dental Group
    Obesity Group
    Early Childhood Committee- Weekly
    Veterans Affairs (VA)


Indirect
     The local radio station allows interviews and other advertisements. Public Health has been on before
      talking about health




OHSU Knight Cancer Institute                                September 30, 2011                         37 
 
2. Women’s Cancer Coalition of Linn, Lincoln and Benton Counties
   Cindy McConnell, RN
   June 16, 2011

The Women’s Cancer Coalition is a group of women who formed a coalition to address the unmet breast
health screening needs within their community. This group meets quarterly and is made up of volunteers: Beth
Evans (Samaritan), Jane Glassman and Joann Stutzman (Corvallis Clinic), Sarah Blanton (Project
HER/Corvallis Clinic) and Cindy McConnell (Community Cancer Survivor). It is a small but effective group. This
group began as the Benton Breast and Cervical Coalition, but has since expanded to all three counties.

Most of their work is around fundraising for one of their annual screening events, Mammathon which is
collaboration with local clinics and generous funders to screen up to 100 women in one day. In previous years
they have been able to enroll 50 women onto the OBCCP program and have detected as many as three
cervical and two breast cancers. Many more women received biopsies and colposcopies from the screenings
they received at this event. Mammathon has been so successful that they have added information packets,
transportation child care and snacks. They hope to expand this event in upcoming years to Lincoln County.
This event is possible because of successful fundraising throughout the year, as well as local clinicians who
volunteer their time to staff the screening event.

When talking about educational resources Cindy mentioned a few resources that were not currently available
within her community, and that she wishes was available. She explained the need for simple materials that are
visually pleasing, nothing “too bulky.” In addition, the materials need to be available for different age levels
including young people and the elderly. This was important to her because so much of their outreach is done
via information sharing.

Strengths
     They learned how to effectively run a large scale screening event with limited financial resources and
      great partnerships.
     As a coalition, they are small in numbers but highly effective in getting work done.
     There group has managed to survive and thrive even through structural changes.
     They have gained community support for their screening event.


Challenges
    There are some difficult business relationships between the Corvallis Clinic and Samaritan Hospital.
    Newport is lacking resources.
    Feeling that there is misinformation by providers about available services.
    Lacking a good tracking system for documenting the mammography screening events and other
     outreach.
    Problems printing NCI materials. Limited funding to print resources, and need to be in Spanish and Asian
     languages.

                                 




OHSU Knight Cancer Institute                                    September 30, 2011                       38 
 
Outreach Activities 
 
Events
    Pink Ribbon Tea
    Homeless Connect
Partnerships
   Samaritan Health System
   Corvallis Clinic in Benton County
   Luna Bars


Indirect
    Flyers
    Newspaper ads (2 weeks prior to event)
    Word of mouth
    Radio


Trusted Cancer Resources
    NCI website




OHSU Knight Cancer Institute                                September 30, 2011        39 
 
    3. Samaritan Pacific Health Services, Newport, OR
       Rebecca Fransham (Social Worker),
       Ursula Marinelli (Pacific Communities Health District Foundation Director),
       Lorie Williams (RN, CWCN)
       June 16, 2011

    Samaritan Women’s Clinic is based out of Samaritan Pacific Hospital in Newport, OR (south Lincoln County).
    They see a mix of unemployed, uninsured or underinsured women. Many women are diagnosed with breast
    cancer at late stages.

    Pacific Community Hospital Foundation organizes a few fundraisers for Samaritan Pacific Hospital, including
    a fashion show which provides prescription assistance, mammography screening and gas card vouchers. The
    American Cancer Society (ACS) program “Relay for Life” event occurs annually at Newport High School.
    Samaritan Pacific works primarily with women in treatment services, but is interested in getting more involved
    with preventive breast health.

    Strengths
        Work well with local community groups to organize fundraising events to support their screening program
         and support services for women in treatment.
        Have patient education information for patients going through treatment within their hospital.


    Challenges
      Transportation to appointments or screenings is a challenge for some women.
      No programs for undocumented clients who have an abnormal finding and require follow up services or
       treatment.
      Samaritan requires a doctor’s referral to get a mammogram; a woman cannot self-refer. This is an issue
       for women who can’t afford the office visit. However, once established with a provider, the reminder letter
       can be used to schedule future screenings.
      Women, clinicians and clinic staff need to be educated that there is no longer a deductible or co-pay for
       mammography screening.
      Education and literacy levels are low in some populations.
      Need patient education materials on pain management.
 
Outreach Activities 
 
  Events                                                                   Partnerships
     Fashion shows raise money and patient                                    American Cancer Society
    support for women’s cancer program (May)                                   Janet Sutherland: volunteer esthetician, lives
                                                                           in south county (Waldport)
    Educational Trainings
        Educational opportunities for patients going                      Indirect
    through treatment                                                          Resources- NCI, American Cancer Society
                                                                               Created patient education packets and DVD




OHSU Knight Cancer Institute                                   September 30, 2011                                      40 
 
    4.   Area Health Education Center Lincoln City, OR
         Karen Bondley (Program Manager)
         Monica Di Pietrantonio (Admin Assistant)
         June 16, 2011

     The Area Health Education Center (AHEC) implements health education to many different age groups in
     Lincoln County, but especially K-12. AHEC understand the needs of the local clinics, have worked with
     community based organizations and local Parish Nurses on a variety of health topics. The Parish Nurses
     promote OBCCP on an ongoing basis. Much of AHEC’s local breast health activities are centered on their
     leadership in the Lincoln County Breast Cancer Coalition which meet quarterly at North Lincoln Hospital. As
     a result, they are particularly familiar with the players in North County. They have a partnership with the
     Snowflake Foundation, a sub-committee of the North Lincoln Hospital Foundation, which is made up of local
     business women who raise funds to support local mammography screening and follow-up services. They
     have also been involved in breast health education via the OBCCP Program and act as an educational
     resource for women interested in getting screened. In the past, AHEC been instrumental in getting 165
     women screened through the OBCCP over a 60 day period through community partnerships, including the
     OHSU Knight Cancer Institute, and other outreach activities. It is their experience that working with private
     clinics is easier than working within hospital systems.

     Strengths
       Lincoln County Breast Cancer Coalition
       Lincoln Co is supportive of women’s health issues
       AHEC is good at delivering health education to small populations within the community, especially youth.
       Organizing educational screening events for nurses and providers.
       Understand North Lincoln County and the dynamics of the clinics and hospital systems in the surrounding
        area.
       They have worked with OHSU in the past and completed a community breast health needs assessment
        and program implementation in 2009 (provider education on mammography screening guidelines).

     Challenges
       Lack of insurance
       Lack of understanding that there is no a co-pay for mammograms.
       Fear of mammogram and that it will be painful.
       Many “Hispanic Healers” in the community. Some Latino women seek their services instead of a western
        medical provider.
       Not reaching the Latino /Undocumented communities
       Social issues around breast health
       Middle aged women working in tourist industry are not being reached.
       Low literacy levels
       29% high school dropout rate
       Young women lack info on breast health
                                 




OHSU Knight Cancer Institute                                  September 30, 2011                          41 
 
Outreach Activities 
 
Education
   Youth Education


Events
   Snowflake Foundation Fashion Show- run by local business women


Partnerships
  Lincoln County Breast Cancer Coalition
  Partnerships with 4 clinics (2 in Newport 2 in Lincoln City)
  Snowflake Foundation


Indirect Outreach Activities
   Newspaper
   102.7 radio station offers free ads for non-profits
   Informational posters in dressing rooms, laundry mats, etc.


Trusted Cancer Resources
   National Library of Medicine
   Medline Plus
   Mayo clinic
   Susan G. Komen for the Cure




OHSU Knight Cancer Institute                                September 30, 2011        42 
 
5. North Lincoln Hospital; Lincoln City, OR
   Johneen Benham
   July 19, 2011

Johneen Benham is a Mammography Technologist at North Lincoln Hospital in Lincoln City, OR. Johneen
provided similar information as AHEC and the Lincoln County Breast Cancer Coalition as she is an active
participant and collaborator.

As a Mammography Technologist, Johneen’s perspective is on how women access mammography screening
services locally. Samaritan North Lincoln Hospital screens approximately 2,000 women per year. Samaritan
North Lincoln Foundation has funding to assist any women interested in a screening mammogram. If the
woman has an abnormal result however, she would be responsible for any follow up costs. If cost is an issue,
the hospital will work out payment plan options. When needed, Samaritan North Lincoln refers patients to
other Samaritan Health System hospitals in Corvallis or Albany where they provide the newest treatments in
chemotherapy and radiation therapy in Lincoln City and Corvallis, respectively.

North Lincoln Hospital and staff, like Johneen, understand the needs and challenges within their community
and collaborate with local partners to address those issues. North Lincoln Hospital actively partners with AHEC
and the Lincoln County Breast Health Coalition for breast cancer screening, education and outreach
opportunities in North Lincoln County.


Strengths
      Educating women about mammography during screening visit.

Challenges
      Not enough providers are aware of the OBCCP program.
      Transportation

Outreach Activities 

Partnerships
      Lincoln County Breast Cancer Coalition
      AHEC




OHSU Knight Cancer Institute                                September 30, 2011                         43 
North Coast Breast Health Community Assessment: Needs, Assets and Opportunities
North Coast Breast Health Community Assessment: Needs, Assets and Opportunities
North Coast Breast Health Community Assessment: Needs, Assets and Opportunities
North Coast Breast Health Community Assessment: Needs, Assets and Opportunities

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North Coast Breast Health Community Assessment: Needs, Assets and Opportunities

  • 1.         OHSU Knight Cancer Institute  North Coast Breast Health Community Assessment:  Needs, Assets and Opportunities  September 30, 2011  Revised December 21, 2011        Developed by:  Lisa Domenico and Dolly England      Funded by NCI grant 3P30CA069533‐13S19 
  • 2. Acknowledgements  We would like to thank the following people for their contributions to this report.  American Cancer Society: Gretchen Renggli; Hillary Orr  Area Health Education Center (AHEC): Karen Bondley; Monica Di Pietrantonio  Columbia County Health District: Lori Peterson  Columbia County Women’s Resource Center: Rachael Barry-Dame  Columbia Memorial Hospital: Nancy Magathan  Clatsop County Health Department: Belinda Kruger, Margo Lalich, Steven Blakesley  Lincoln County Breast Health Coalition  Lincoln County Health and Human Services: Joell Archibald; Rebecca McBee-Wilson; Liz Young  North Lincoln Hospital: Johneen Benham  OHSU Center for Women’s Health: Michelle Berlin  OHSU Let’s Get Healthy Program: Lisa Marriott; Adam Lipus; Stephano Cetola  Oregon Breast and Cervical Cancer Program: Kathy Mix  Oregon Office of Rural Health: Emerson Ong  Samaritan Health Systems: Emily McNulty  Susan G. Komen for the Cure, Oregon and SW Washington affiliate: Gail Brownmiller  Samaritan Pacific Health Services: Rebecca Fransham-Mercer; Ursula Marinelli; Lorie Williams  The Rinehart Clinic: Suzie Whalen  Tillamook County Breast Health Coalition  Tillamook General Hospital: Ginny Gabel  Tuality Health Care: Mary Mulholland  Women’s Cancer Coalition of Linn, Lincoln and Benton Counties: Cindy McConnell   Use of the contents of this report is permitted without prior approval with attribution to: Domenico, Lisa J, England, D (2011). Oregon North Coast Breast Health Community Assessment: Needs, Assets and Opportunities. Knight Cancer Institute at Oregon Health & Science University. For more information about this report, please contact Dolly England at englandd@ohsu.edu or 503- 494-3389 or Lisa Domenico at domenico@ohsu.edu or 503-418-5332.    OHSU Knight Cancer Institute                                          September 30, 2011  2 
  • 3.  List of Appendices  Appendix A Breast Cancer Incidence and Mortality- Oregon State Cancer Registry (OSCaR) and Mammography Screening Rates-Behavioral Risk Factor Surveillance Survey (BRFSS) Appendix B Oregon Office of Rural Health (ORH): Demographics: Population of Rural Women by Age Appendix C Oregon Office of Rural Health (ORH): Poverty Levels/Minority Populations Appendix D Breast Health Network  Appendix E Key Informant Interview Questions     OHSU Knight Cancer Institute                                          September 30, 2011  3 
  • 4. North Coast Community Assessment:                 Needs, Assets and Opportunities  This breast health resource and needs assessment was conducted by our Community Health Educator (CHE) in 2011, specifically targeting Oregon’s North Coast counties of Columbia, Clatsop, Tillamook and Lincoln. We used the following community assessment, constructed by county, to drive the development of a 4-year outreach plan. Our intent is to impact the cancer health disparities, beginning with breast cancer, using an innovative and interactive intervention called “Let’s Get Healthy!” (LGH!) and involving our CHE to affect change in these communities using data and relationships built through this process. Our scope is the cancer risk reduction and screening practices of Hispanics and lower socioeconomic populations of the aforementioned counties but to also share our learning’s with others engaged in improving the burden of breast cancer in their communities. Data sources for Needs Assessment  The development of our needs assessment is built upon a foundation of prior statewide data collection and analysis and adds an in-depth examination of specific rural communities. We focus on four rural counties – Columbia, Clatsop, Tillamook and Lincoln – obtaining data from a myriad of sources to develop a richer understanding of the breast health/cancer issues and assets of these communities. The specifics of our data collection process are noted below. General background information was collected for each county from multiple sources including Oregon Bluebook1 for county history information, major employers listed on local government web pages, economic development alliances and community events from the Oregon Festivals & Events Association. The Oregon Office of Rural Health (ORH)2 was a significant source of data. ORH defines rural as “a geographic area ten or more miles from a population center of 30,000 or more.” They provided 2010 county demographics, such as the number of age-appropriate rural women for mammography screening, the largest rural communities, poverty data, federal designations (e.g. medically underserved), as well as income, race and ethnicity data. From the Oregon State Cancer Registry (OSCaR), we acquired county-level average annual breast cancer incidence and mortality counts3, and late stage diagnoses data.4 OSCaR identified any statistically significant figures. The Behavioral Risk Factor Surveillance Survey (BRFSS) provided the percentage of women reporting having received a mammogram in the past two years5 (See Appendix A). Driving times to mammography sites was obtained from a statewide mammography capacity survey and analysis conducted by the t Knight Cancer Institute’s Regional Cancer Control Strategies (RCCS) team in 2009. We derived driving time to the each mammography site using zip codes. (These county-specific maps are included in the individual county profiles.) We utilized Catholic Healthcare West’s Community Need Index (CNI) maps6, developed in partnership with Thomson Reuters. Using a four-point scale to identify severity of need, the CNI maps pinpoint neighborhoods (by zip code) with significant barriers to health care for each county in our target area (These county-specific maps are included in the individual county profiles.) Rather than relying solely on public health data, the CNI accounts for the underlying social and economic barriers that affect overall health. Using a combination of research, literature, and experiential evidence, Catholic Healthcare West identified the following five prominent socio-economic barriers to quantify health care access in communities. OHSU Knight Cancer Institute                                          September 30, 2011  4 
  • 5. 1. Income – percent of elderly, children, and single parents living in poverty. 2. Cultural/Language – percent of adults over the age of 25 with limited English proficiency 3. Educational – percent without high school diploma 4. Insurance – percent uninsured and unemployed 5. Housing – percent renting houses In addition we looked at the population of rural women by age, socioeconomic status and race/ethnicity; all data provided by the Office of Rural Health and the 2010 Census. (See Appendix B & C). Finally, we compiled a “breast health network.” We collected breast health/cancer medical services (e.g. hospitals, Federally Qualified Health Centers, mammography sites, Health Departments). Also included are providers of the Oregon Breast and Cervical Cancer Program (OBCCP) that help low-income, uninsured, and medically underserved women gain access to lifesaving screening programs for early detection of breast and cervical cancers (See Appendix D). The OBCCP served 7,840 women statewide through approximately 120 enrolling providers. A significant and important component of our CHE’s effort was conducting key informant interviews to learn of specific programs/activities and successes/concerns at the local level. A list of contacts was developed from current relationships, Komen grantees and by asking for names of additional key players. We developed a question set (see Appendix E) but also allowed the conversation to be driven by community members. Already this process has begun to build relationships and engage more directly with those interested in addressing the breast health needs in their communities. Summary Findings  Overall, the North Coast has great need but also tremendous potential. With the exception of one county, mammography sites are housed within hospitals. There are strong connections between the hospitals, clinics that provide primary care to low income or under-screened women, and the community organizations who seek to drive women to those services. Much of the breast health outreach and education has been supported by community grants from the local affiliate of Susan G. Komen for the Cure. In these rural communities, the work has been largely done by staff of hospitals or clinics, some only to their patients, others to the broader community. A few have been able to incorporate their grant-funded program into operational budgets, while others risk losing their programs if not funded by Komen. Many of the programs are repeated each year, often during Breast Cancer Awareness month in October. A number of key informants recognize the need to reach the low income and Hispanic residents in their communities. A few have connected with food banks, domestic violence shelters or laundry mats to provide resources and information; however, there has not been great success reaching Hispanic populations. Many have asked for additional resources, particularly materials that are free/low cost, written for low literacy levels or in Spanish.     OHSU Knight Cancer Institute                                          September 30, 2011  5 
  • 6. Columbia County     Summary  Columbia County, named for its location along the Columbia River, was created in 1854. It encompasses almost 700 square miles, with 62 of those miles being Columbia riverfront. The Chinook and Clatskanie Native Americans inhabited this region for centuries prior to the arrival of Robert Gray, captain of the ship Columbia Rediviva, in 1792. (There are no designated tribal lands in the county today.) The Lewis and Clark Expedition traveled and camped along the Columbia River shore in the area later known as Columbia County in late 1805 and on their return journey in early 1806. 7 Columbia County has a strong economic heritage centered on forest products, shipbuilding, mining and agriculture industries. The extensive stands of old growth timber, which had attracted many of the early settlers to the area, were completely logged by the 1950s. Second growth timber provides the raw material for local lumber and paper mills. The Trojan Nuclear Plant, located near Rainier, was in operation from 1975 to 1993. 8 The Columbia River is a major route for ocean-going vessels and is a popular playground for fishing, boating, camping and windsurfing. The rural lifestyle and scenic beauty of Columbia County, coupled with its proximity to Portland, have drawn many new residents to the area. 9 Today, the majority of the population lives in three rural cities – Clatskanie, St. Helens and Vernonia. All are designated Health Professional Shortage Areas (HPSA) for Geography and Population. Vernonia is a Medically Underserved Area/Population area and Clatskanie has an Oregon Office of Rural Health (ORH) designation of unmet need.10  Based upon access to healthcare, the town of St. Helens has the greatest need. Breast cancer resources are limited in Columbia County including a high provider turnover rate (as commented by a key informant), a singular mammography screening site, lack of a community hospital (often the hub of outreach activity), no dedicated resource to coordinate services to low income women through the Oregon Breast and Cervical Cancer Program (OBCCP), and limited inventory of printed educational materials. However, this county also has access to the only mobile mammography van in the state. Our contacts at the Health Department and Women’s Resource Center (WRC) would be willing to distribute any breast health materials, but do not have current resources to actively conduct any outreach. In addition, Public Health is currently undergoing some organizational changes which may limit their ability to contribute to any outreach efforts. Geography and Demographics  There are three major rural population centers in the county - Clatskanie, St. Helens and Vernonia. The total rural population of the county is just under 50,000 people. The percentage of women of mammography screening age is comparable to the state averages as noted below in Table 1. A small Hispanic population resides in this county. However, the percentage of households living below 200% of the FPL ranges from 22-28% in the largest towns of Clatskanie, St. Helens and Vernonia (Table 2). All have a Health Professional Shortage Area (HPSA) designation for Geography and Population. Vernonia has a Medically Underserved Area/Population areas designation, and Clatskanie has an Office of Rural Health (ORH) designation of unmet need.11    OHSU Knight Cancer Institute                                          September 30, 2011  6 
  • 7. Table 1 Population of Rural Women by Age Ages 45-64 Ages 65-74 Ages 75+ City # % # % # % Clatskanie 2,035 30.8% 565 8.5% 417 6.3% St. Helens 5,047 29.5% 1,290 7.5% 975 5.7% Vernonia 509 27.3% 137 7.3% 83 4.4% Oregon 27.6% 7.8% 7.7% (Appendix B)    Table 2 Poverty Levels/Minority Populations  % Below 200% % for Largest % for % in OR City FPL* County Minority County Clatskanie 27.2% 23.5% Hispanic 2.9% 11.75% St. Helens 22.1% Hispanic 4.5% Vernonia 27.9% Hispanic 2.4% Rural 33.3% Oregon 29.6% *Federal Poverty Level (Appendix C)  OHSU Knight Cancer Institute                                          September 30, 2011  7 
  • 8. The Community Need Index (CNI) map, which indicates neighborhoods with significant healthcare barriers, has pinpointed the greatest need in the northeast portion of the county, especially in St. Helens (zip code 97051).   Breast Heath Network  There are no hospitals located in this county. The local health department is undergoing a transition to a non- profit organizations and it is unclear whether they will continue to offer the current breadth of services (Communicable Diseases, Emergency Preparedness, Environmental Health, Immunizations, School-Based Health Centers, Sexually Transmitted Disease Program, Tobacco Prevention Education, Women, Infants, Children (WIC) program). There is a primary care clinic, associated with a health system, located in St. Helens which provides the county’s only mammography facility (Table 3). OHSU Knight Cancer Institute                                          September 30, 2011  8 
  • 9. Table 3 Name of Organization Location Type Columbia County Health District St. Helens Public Health Department Legacy Imaging Services at St. Helens St. Helens Mammography Site Oregon Health & Science University-Family Scappoose Primary Care Clinic Medicine Clinic Mammography and Breast Cancer  The county’s one mammography site is within a 30 minute drive if a woman lives along the I-5 corridor. However, there are sections within this county that are less densely populated that would require driving greater than 30 minutes each way. Columbia County has two OBCCP providers and a very limited number of OBCCP allocations. Locally, most clients who utilize the program receive an annual exam and are referred to nearby mammography site in Multnomah County. Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University    OHSU Knight Cancer Institute                                          September 30, 2011  9 
  • 10. In this county, neither the incidence not mortality rates are statistically higher than the state average. Based upon a five-year average, 34 women are diagnosed with breast cancer and 6 die annually.12 (See Table 4) Table 4 Mammography Female Incidence Female Mortality Women MMG Cases Per 100,000 % Late Cases Per 100,000 40+ Screening per (age Stage per Year (age Rate Year adjusted) Diagnosis adjusted) Columbia 12,338 74% 34 134.3 27% 6 23.0 Oregon 913,828 73.3% 2,707 131.9 27%* 511 23.9 Population estim ates: US Census Bureau, Am erican Com munity Survey (ACS) 2006-2008; ++ US Census Bureau, Population Estim ates 2008 data set Screening Data: BRFSS 2004-2007 Age Adjusted data Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles Late stage diagnosis: OSCaR 1996-2006 ^ Rate/trend is not calculated due to instability of small num bers *Statistically Significant County (H=High, L=Low) + % Based upon lesds than 50 respondents, may not accurately reflect county   (Appendix A) Community Resources  While there is recognition of need by our community contacts, there are no current resources to actively engage in outreach. When the situation changes, there are a number of community events and worksites that could be targeted as noted below. Community Events of Interest   July: Columbia County Fair and Rodeo (St. Helens)  July: Clatskanie Blues Festival (Clatskanie)  September: Scappoose Sauerkraut Festival (Scappoose)  October: Halloween Town (St. Helens)  December: Christmas Ships Parade & Tree Lighting (St. Helens) Major Employers (100 + Employees) 13   Manufacturing (2,230)  Government (2,175)  Retail trade (1,908)  Health care and social assistance (1,489)  Accommodation and food services (1,166)  Other services except public administration (1,092)  Real Estate, Rentals, Leasing (1015)  Construction (916)  Transportation and warehousing (722)  Administrative and waste services (717)           OHSU Knight Cancer Institute                                          September 30, 2011  10 
  • 11. Key Informant Interviews  Our key informant interviews were conducted in May 2011 by our Community Health Educator. She interviewed staff of the Health Department, a women’s domestic violence resource center and the mobile mammography van who provides services in this county. 1. Columbia County Health District - St. Helens, OR Lori Peterson: Office Manager, Family Planning/Prenatal Billing May 26, 2011 Columbia County Health District (CCHD) is Columbia County’s only safety net clinic providing valuable resources for underinsured and uninsured residents. Their program is currently under transition as the department changes from a publicly funded Health Department into a privately funded non-profit. CCHD is an OBCCP provider. They provide mammography screening to approximately five women per quarter, which falls short of the need. As with any county, they can request additional resources from the State. They utilize a nurse practitioner two times per week to perform all the women’s health exams. As noted earlier, the only mammography site is located at Legacy Imaging Services in St. Helens, so women are referred to that site or to Portland, a 28 mile drive, for their imaging. Strengths  They are the health care resource to low-income/vulnerable populations within their community. Challenges  Transportation: o The County’s transportation system “CC Rider” has limited services often requiring women to make multiple transfers before getting to their final destination. Therefore, a one hour medical appointment could take significantly longer via public transit.  Limited healthcare resources: o No OBGYN in Columbia County o Legacy clinic only accepts insured clients. o Our informant feels there is a high provider turnover rate in all specialties. Outreach Activities  Educational Trainings  Outreach/Education- Most is done in clinic at the Health Department. Partnerships  Provider for the Oregon Breast and Cervical Cancer Program (OBCCP)                   OHSU Knight Cancer Institute                                          September 30, 2011  11 
  • 12. 2. Tuality Health Care, Vernonia, OR Mary Mulholland, Mobile Mammography Coordinator May 24, 2011 Tuality operates the only mobile mammography van in Oregon. Staffed by one technologist and one nurse, they perform screening exams only, no diagnostics. Currently the van is equipped with analog technology, but there are near term plans to convert to digital imaging. The mobile van targets mainly insured or private-pay patients. Few, if any, are uninsured women. The van is stationed most days in the parking lot of Tuality Health Care in Forest Grove (Washington County), providing greater convenience to its patients than a hospital appointment. However, it does travel monthly to communities within an approximately 25 mile radius of Tuality Health. The mobile van staff partners with clinics, businesses, senior centers and others to provide mammography services for health fairs or other gatherings. Appointments are pre-scheduled and organizations must recruit ten or more patients for each event. They have current screening event partnerships with Nike, Intel and Fred Meyer and Coffee Creek Correctional Facility. Most of the marketing for an employer screening event involves encouraging the business or organization to put information about the mobile mammography screening event on their website, send out information via an all staff email or place posters on employee bulletin boards. In partnership with the Providence Health System, the Tuality van goes to once per month to their clinic in Vernonia, which has on-site mammography capabilities. While this is an added local resource, it is not available to women in other parts of the state. Tuality Health is an OBCCP provider and serves a diverse group of women -- 25% of clients are non-English speaking, most are Hispanic and Spanish speaking, as well as Asian/Pacific Islander and Russian/Slavic women. No interpreter services are provided. One of the commonly visited workplaces is Intel, where many of the non-English speaking women screened are the wives of employees originally from India. Strengths  They developed an approach for doing outreach to insured women  Have the State’s only mobile mammography van. Challenges  Feel providers need more education around “when to screen”       Outreach Activities  Partnerships  Provider for the Oregon Breast and Cervical Cancer Program (OBCCP)  Mobile van to workplaces: Nike, Intel, and Fred Meyer  Coffee Creek Correctional Facility OHSU Knight Cancer Institute                                          September 30, 2011  12 
  • 13.   3. Columbia County Women’s Resource Center, St. Helens, OR Rachael Barry-Dame, Director May 26, 2011 The Columbia County Women’s Resource Center (WRC) is an organization dedicated to ending family violence and sexual assault. Their program includes The Starting Place, which is a 22-bed shelter for women and children who have experienced domestic and sexual abuse. The shelter is a safe haven where women can begin to put their lives back together following traumatizing relationships. Their trained team of advocates provides 24-hour services to victims and their families. They are there to listen and offer whatever information and support they can. Norma's Place Thrift Shop supports the Resource Center by providing funding for programs and services, giving job training to those in need, and offering low-cost items for sale to the community. The Columbia County Women’s Resource Center provides NO direct clinical services. Rachael feels the Women’s Resource Center doesn’t have the capacity to do breast health outreach, but would stock and distribute resources to her cliental. She would be interested in doing some kind of partnership with us on an awareness event. Some data she offered:  Large faith communities in Rainer and Clatskanie  22,000 people living in unincorporated area of the county  70% commute outside of the county everyday to work  People travel outside the county for health services o Rainer or Clatskanie residents are likely to go to Cowlitz County, WA o Vernonia residents seek services in Washington County o St. Helens/Scappoose residents seek services in Multnomah County o Rainer is a hot place for Bingo! Proceeds benefit WRC Strengths  WRC has a good sense of the people within the community and how they seek out social services.  Open to discussing education outreach collaboration. Challenges  No capacity for breast health outreach.  Cliental may not feel breast health is a current priority. Outreach Activities  Events  13 Nights on the River- Live music and market every Thursday during the summer. Partnerships  They offer job training via Norma’s Place with Oregon Department of Health Services (DHS).  Community Action Team (CAT) is a local resource for housing and energy assistance. They provide services to veterans and operate head start and other early childhood learning programs.  Family Violence Council is a group that is made up of local social services organizations as well as the commission on families, DHS and the District Attorney’s office. OHSU Knight Cancer Institute                              September 30, 2011    13 
  • 14.   Clatsop County   Summary   Located in the most northwestern corner of the state, Clatsop County encompasses just over 1,000 square miles bordered by the Pacific Ocean to the west and Columbia River to the north. The county gets its name from the Clatsop tribe of Native Americans, who lived along the coast of the Pacific Ocean prior to European settlement. The Lewis and Clark Expedition stayed for the winter of 1805-6. Astoria, Oregon's oldest city was established as a fur trading post in 1811 and named after John Jacob Astor. The first U.S. Post Office west of the Rocky Mountains was established in Astoria in 1847. The summer resort of Seaside was founded by Ben Holladay in the early 1870’s after he constructed the Seaside House, a famous luxury hotel for which the city was named. 14 A popular point of interest is the Astoria Column, a tower 125 feet. It sits in a wooded area 600 feet above sea level on Coxcomb Hill, Astoria’ s highest point. The column was built by the Astor family in 1926 to commemorate the region's early history. 15 The forested coast range bisects the county creating travel obstacles during the winter months. Forest products, retail and tourism and are the major industries. The majority of the rural population lives in two cities along the western coastline. Both Astoria and Seaside are designated Medically Underserved Area/Population areas.16 The greatest needs to access healthcare are in the north and mid-section of the county, particularly Warrenton and near Astoria, and to a lesser degree towards the south portion of the county. Due to our inability to connect with Providence Seaside, all of our key informant interviews were conducted in Astoria. Columbia Memorial Hospital in Astoria conducts a number of breast cancer outreach activities, funded for multiple years through Komen community grants, which are now part of the hospital’s programs. They understand the needs of their community but have limited resources. However, they are an eager community partner for piloting our “Let’s Get Healthy!” intervention. Geography & Demographics  The largest rural communities in Clatsop County are all along waterways - Astoria, Cannon Beach, Gearhart, Seaside, Warrenton – with approximately 37,000 residents over 1,085 square miles. 17 As noted on the tables below (Table 1), the percent of women over 45, appropriate for mammography screening, is slightly higher than the state. Approximately a third of residents in Astoria and Seaside are below 200% of the Federal Poverty line (FPL), which is slightly higher than the state average. The greatest concentration of Hispanics is in Seaside at 9% of the population. (Table 2) OHSU Knight Cancer Institute                              September 30, 2011    14 
  • 15.   Table 1 Population of Rural Women by Age City Ages 45-64 Ages 65-74 Ages 75+ # % # % # % Astoria 3,602 28.8% 1,127 9% 1,131 9% Seaside 1,985 31.2% 693 10.9% 728 11.4% Oregon 27.6% 7.8% 7.7% (Appendix B)    Table 2 Poverty Levels/Minority Populations  % Below 200% % for Largest % for % in City FPL* County Minority County OR Astoria 31.5% 31.9% Hispanic 5.9% 11.75% Seaside 31.9% Hispanic 9% Rural 33.3% Oregon 29.6% *Federal Poverty Level (Appendix C)                                  OHSU Knight Cancer Institute                              September 30, 2011    15 
  • 16.   To indentify the greatest need in the county, the Community Need Index maps indicate a needed focus in the north and mid-section of the county, particularly Warrenton (zip code 97121 and 97146) and near Astoria (zip code 97103), and to a lesser degree to the south (zip code 97138).       Breast Health Network  There are two major health systems in this county, both along the coast, that provide the cancer screening and treatment services for the county -- Columbia Memorial Hospital in Astoria to the north and Providence Hospital in Seaside to the south. There is a strong collaboration between Columbia Memorial Hospital and OHSU Knight Cancer Institute for oncology services. These hospitals are the mammography screening sites in the county. Astoria has the only low-income health clinic and three of the four OBCCP providers in the county. (See Table 3)     OHSU Knight Cancer Institute                              September 30, 2011    16 
  • 17.   Table 3 Name of Organization Location Type Columbia Memorial Hospital Astoria Hospital Komen Grantee Mammography Site Clatsop County Health Department Astoria Public Health Department Coastal Family Health Astoria Federally Qualified Health Center Providence Seaside Hospital Seaside Hospital Komen Grantee Mammography Site Mammography and Breast Cancer  As noted above, there are two places a woman can obtain a mammogram – in Astoria and Seaside. As the map below depicts, if a woman lives in the northwest corner of this county, her one-way drive is within 30 minutes of a mammography site. However there are sections within this county that are less densely populated that would require a drive greater than 30 minutes each way, mainly the southern portion of the county.     Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University      Legend: 61 to 180 minutes 31 to 60 minutes 0 to 30 minutes  OHSU Knight Cancer Institute                              September 30, 2011    17 
  • 18.   Oregon consistently ranks in the top 10 states for incidence and mid-range for mortality, so while neither the incidence nor mortality is statistically higher compared to that state average, there is significant burden of breast cancer in this county. (See Table 4) Table 4 Mammography Female Incidence Female Mortality Women MMG Cases Per 100,000 % Late Cases Per 100,000 40+ Screening per Year (age adjusted) Stage per Year (age adjusted) Rate Diagnosis Clatsop 10,021 64.0% 32 132.5 30% 7 28.0 Oregon 913,828 73.3% 2,707 131.9 27%* 511 23.9 Population es tim ates : US Cens us Bureau, Am erican Com m unity Survey (ACS) 2006-2008; ++ US Cens us Bureau, Population Es tim ates 2008 data s et Screening Data: BRFSS 2004-2007 Age Adjus ted data Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles Late s tage diagnos is : OSCaR 1996-2006 ^ Rate/trend is not calculated due to ins tability of s m all num bers *Statis tically Significant County (H=High, L=Low) + % Bas ed upon les ds than 50 res pondents , m ay not accurately reflect county   (Appendix A) Community Resources  Much of the cancer awareness/outreach in the county is associated with the American Cancer Society (ACS) Relay for Life event and the outreach efforts of Columbia Memorial Hospital, both in Astoria. While Seaside Providence Hospital is a large health system and presumably has their own outreach programs, to this point we have been unable to make direct connections with them to include their activities in our report. The major community events are in the summer months in the coastal communities of Astoria and Seaside. There are numerous worksites that employ a large number of people which could provide outreach opportunities. Community Events of Interest   April: Astoria/Warrenton Crab, Seafood and Wine Festival  June: Astoria Music Festival  June: Seaside Beach Soccer Tournament  July: All coastal towns have an event for the 4th  July: 2011 Relay For life of Clatsop County (Astoria)  August: Annual Seaside Beach Volleyball Tournament (30 years!)  September: Seaside Wheels & Waves Major Employers (100 + Employees) 18   Georgia-Pacific (1,038)  Costco (100)  State Agencies (430)  Seaside School District (187)  Clatsop County (224)  Safeway (two locations) (180)  Pig N Pancake (80 up to 130 Seasonal)  Steve Martin Management (24)  U.S. Coast Guard (391)  Astoria School District (249)  Columbia Memorial Hospital (240)  Fred Meyer (220)  Safeway (two locations) (180)  Weyerhaeuser Co. (155)  Clatsop Community College (145)  Pacific Coast Seafood Co. (125) OHSU Knight Cancer Institute                              September 30, 2011    18 
  • 19.   Key Informant Interviews  Our Community Health Educator was able to personally speak with breast health resources in Astoria only. We will continue to build this section more is learned. 1. Columbia Memorial Hospital, Astoria, OR Nancy Magathan, RN; Breast Health & Cancer Resource Coordinator March 4, 2011 Clatsop County has a champion for breast health outreach and education -- Nancy Magathan. She has built a robust breast cancer education program, first with Komen grant funding and now supported by the hospital. Her programs could be models for other hospitals looking to develop similar programs. According to Nancy, not all Clatsop residents seek care in the county, and instead travel to Pacific, Wahkiakum or Cowlitz counties in Washington State. Cancer treatment services are also sometimes sought at St. John Medical Center in Longview, WA (Cowlitz Co.), even though Columbia Memorial is closer. Strengths  Successful in using print media for outreach. Placing ads in the local newspaper, “The Daily Astorian,” is a popular outreach method. Usually receive referral calls from local women within 48 hours of ad placement.  Initially started with a Komen grant, the Breast Health education program is now financially supported by the hospital. They have added a Patient Navigator to their breast health program with funding from Susan G. Komen for the Cure, Oregon and SW Washington affiliate. The purpose of the grant is to assist women in the screening and treatment process. Challenges  Columbia Memorial only has one outreach person so they are limited in the amount of outreach they can do.  Hospital business practice requires a woman get a referral from her medical provider to obtain a screening mammogram.  Some people living in Clatsop County seek services in Washington State. To inform women that they can access those same mammography and cancer treatment services in Clatsop County, Nancy uses newspaper ads and articles to reach women outside her area of direct contact.  There is confusion about recent U.S. Preventive Services Task Force (USPSTF) mammography recommendations. Nancy stated that “most insurance companies follow recommendations of USPSTF so while a woman can get a mammogram at age 40, insurance may not cover the cost of the mammogram until she is 50.” She has heard this from women who see healthcare providers in Seaside.   Outreach Activities    Direct Care Services Educational Trainings  Assisting women to access screening services  Breast/Colorectal health (Quarterly) at hospital Health Fairs & Tabling Events Awareness Events  County Employee Health Fair (Annually)  Project Homeless Connect- (Annually)  Relay for Life (Annually)  County Fair (Annually)  Costco OHSU Knight Cancer Institute                              September 30, 2011    19 
  • 20.   Partnerships  Provider for State of Oregon Breast and Cervical Cancer Program (OBCCP)  Philanthropic Educational Organization  Clatsop Community College  Job Corps  Women’s Resource Center  Churches  Business Indirect  Newspapers: Daily Astorian (reaches 74% of Clatsop County including: Astoria, Warrenton, Gearhart, Seaside, Cannon Beach, Manzanita, Rockaway Beach; WA- Ilwaco, Sea view, Long Beach, Ocean Park Nahcotta and Oysterville.)  Social Media/websites: http://www.y-me.org/  Hand Out’s: Patient reminder post card, breast health brochures etc. 2. Clatsop County Health Department, Astoria, OR Steven Blakesley, Health Promotion Specialist November, 2011 Clatsop County Public Health is not currently involved with Oregon Breast and Cervical Cancer Program (OBCCP). The clinic does not do any breast cancer outreach or education as it is focused on family planning, STD/HIV testing, and immunizations. The public health program that is most aligned with the OBCCP is the Health Promotion and Chronic Disease Prevention program. The focus is primarily on reducing chronic disease prevalence by promoting changes to policy and environments that support increased physical activity and healthier food choices. The health promotion coordinator partners with both hospitals on various initiatives. Together with the Oregon Health Authority a colorectal cancer screening campaign was successfully piloted in Clatsop County in 2010. Strengths  Facilitate broad base of partnerships throughout the north and south region of the county, e.g. ongoing partnerships with both Seaside Providence and Columbia Memorial hospitals  Worked in partnership to pilot Colorectal Cancer Screening Campaign in 2010  Strong network of community partners including local rep for American Cancer Society Challenges  OBCCP not supported through current grant funding     OHSU Knight Cancer Institute                              September 30, 2011    20 
  • 21.   Tillamook County   Summary  Tillamook County is the land of trees, cheese and ocean breeze! The county was named after the Tillamook Indians who lived in the areas surrounding the Tillamook and Nehalem Bays. Tillamook is a Native American word meaning "Land of Many Waters." The major physical features of Tillamook County are a rocky and irregular coastline, stretches of coastal lowlands, and heavily timbered mountains of the Coast Range. With seventy-five miles of coastline, four bays, and nine rivers, recreational and tourist opportunities are numerous.19 The forested Coastal Range divides the county east to west, where snow is common resulting in travel obstacles during the winter months. When early settlers saw these green valley’s in 1851, they recognized that Tillamook’s mild climate, abundant water, and year around pastures were perfect for raising dairy cattle. Dairy farming and timber are the county's most significant employment sectors; there are 150 family dairy farms and 93% of the county is classified as forest land. The major rural communities are Medically Underserved Area/Population areas and have higher than state average poverty levels. Its residents are generally older than those living in other parts of the state, and Hispanics are the largest minority population. The county is served by one hospital, one mammography site and four, Federally Qualified Health Centers (FQHC). The FQHC in Wheeler conducts much of the community breast cancer outreach in this county funded by Komen grants. There is a local breast health coalition made up mostly by hospital staff and other safety net clinics. Most of this groups activities are centered around October Breast Cancer Awareness Month, although this group did collaborated with the Knight’s Regional Cancer Control Strategies team in 2009 to address a community concern surrounding confusion around the change in mammography screening guidelines. Statistically significant low mammography screening rates have been the issue the community has sought to address and therefore, may be an ideal community partner.       Geography & Demographics  Tillamook County encompasses just over 1,133 sq miles. The population of its rural communities is 25,250 with the majority living in three rural cities along the western coastline – Tillamook, Cloverdale, and Nehalem. All three are designated Medically Underserved Area/Population areas.20 The towns of Tillamook and Nehalem have a higher percentage of households living below 200% of the FPL at 38% and 37%, respectfully, than the state at 29.6%. (Table 1) As noted below (Table 2), the percentage of 65+ year old women is twice the state average and Hispanics represent the largest minority population and are concentrated in the town of Tillamook. OHSU Knight Cancer Institute                              September 30, 2011    21 
  • 22.   Table 1 Poverty Levels/Minority populations  % Below 200% % for Largest % for % in City FPL* County Minority County OR Cloverdale 27.7% 35.6% Hispanic 5.2% 11.75% Nehalem 38.0% Hispanic 5.0% Tillamook 35.6% Hispanic 10.3% Rural 33.3% Oregon 29.6% *Federal Poverty Level (Appendix C)    Table 2 Population of Rural Women by Age Ages 45-64 Ages 65-74 Ages 75+ City # % # % # % Cloverdale 798 33.2% 275 11.4% 258 10.7% Nehalem 555 32.9% 256 15.2% 242 14.3% Tillamook 2,463 28.2% 907 10.3% 884 10.1% Oregon 27.6% 7.8% 7.7% (Appendix D)  OHSU Knight Cancer Institute                              September 30, 2011    22 
  • 23.   To target the greatest access need in the county, the Community Needs Index map identifies the communities of Wheeler (zip code 97136), Cape Meares (zip code 97141) and Bay City (zip code 97107).       OHSU Knight Cancer Institute                              September 30, 2011    23 
  • 24.   Breast Health Network   There are four Federally Qualified Health Centers (FQHC) located in Cloverdale, Rockaway Beach and Tillamook. Tillamook County General Hospital (in Tillamook) is the only hospital and mammography site in the county. There are only two OBCCP providers for the county to serve low income women. Name of Organization Location Type Tillamook County Cloverdale Clinic Cloverdale Federally Qualified Health Center Rockaway Beach Clinic Rockaway Beach Federally Qualified Health Center Tillamook County Health Department Tillamook Federally Qualified Health Center Tillamook County General Hospital Tillamook Hospital Mammography Site Rinehart Clinic Wheeler Federally Qualified Health Center Komen Grantee   Mammography and Breast Cancer  While there is one mammography site in Tillamook County located in the town of Tillamook, many residents can drive to the mammography site in less than 30 minutes. Those in the northern portion of the county have a 30-60 minute drive one way to Tillamook, but also have the option of driving north to Seaside into Clatsop County.     Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University          OHSU Knight Cancer Institute                              September 30, 2011    24 
  • 25.   While the county level incidence and mortality rates are numerically higher than the state average, they are not statistically different. Based upon a five-year average, in this county just over 25 women are diagnosed with breast cancer and 5 die annually.21 Until recently, Tillamook County had a statistically significantly lower mammography rate (55%) than the state average. That has improved based upon the most recent BRFSS data (61%). However, there is a recognized community need to continue to address awareness and access to mammography for its residents, especially given its older female population. (Table 3) Table 3 Mammography Female Incidence Female Mortality Women MMG Cases Per 100,000 % Late Cases Per 100,000 40+ Screening per (age Stage per Year (age Rate Year adjusted) Diagnosis adjusted) Tillamook 7,198 61% 25 134.5 26% 5 25.0 Oregon 913,828 73.3% 2,707 131.9 27% 511 23.9 Population estim ates: US Census Bureau, American Com munity Survey (ACS) 2006-2008; ++ US Census Bureau, Population Estim ates 2008 data set Screening Data: BRFSS 2004-2007 Age Adjusted data Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles Late stage diagnosis: OSCaR 1996-2006 ^ Rate/trend is not calculated due to instability of sm all num bers *Statistically Significant County (H=High, L=Low) + % Based upon lesds than 50 respondents, may not accurately reflect county   (Appendix A) Community Resources  Local efforts over the past 3-5 years have been focused on improving the mammography screening rates through transportation assistance and awareness campaigns. Much of that outreach in the county is associated with the Rinehart Clinic, an FQHC and a Komen grantee, located in Wheeler, as well as the Breast Cancer Coalition located in Tillamook. While the latter group is small, they have been effective in local awareness raising and fundraising efforts to support breast cancer screening in their community. There are a number of community events and workplaces that, along with the energy of the breast health coalition, might be suitable venues for our “Let’s Get Healthy!” intervention. Community Events of Interest   March: Great Oregon Spring Beach Cleanup (Entire Oregon Coast)  May: Kite Festival (Rockaway Beach)  June: Dairy Parade “Tillamook County, Butter than the rest!” (Tillamook)  June: Tillamook County Rodeo (Tillamook)  July: American Cancer Society 2011 Relay For life (Tillamook) th  July: All coastal towns have an event for the 4  August: Tillamook County Fair (Tillamook) Major Employers (# of employees)   Dairy Manufacturing (474)  Timber/Saw Mills (341)  Meat Processing (275)  Fresh and Frozen Seafood Processing (66) OHSU Knight Cancer Institute                              September 30, 2011    25 
  • 26.   Key Informant Interviews   Our Community Health Educator was able to interview all the players for breast health/cancer outreach in the county. They include the FQHC, the hospital and the breast health coalition. In 2009, the Knight worked with these same players to address a need they identified in their community – discussing the changes in the mammography screening guidelines. 1.  The Rinehart Clinic - Wheeler, OR Suzie Whalen: Breast Health Coordinator June 15, 2011 Tillamook County has a champion for breast health outreach and education in Suzie Whalen at the Rinehart Clinic. She is knowledgeable about the screening issues in her community and is actively working to address them. She connects women with local, state and national resources and administers a transportation assistance program, made possible by a grant from Susan G. Komen, ACS and local fundraising efforts. This program provides a woman under 250% of the Federal Poverty Level (FPL) a $25 gas card to help to cover expenses for a well woman exam, mammogram or follow up breast health procedures. In addition, they can provide a gas card to any patient that requests help or has significant barriers, regardless of income level, to obtain her mammography screening or breast cancer treatment. This is significant as the average drive between Tillamook and Wheeler is 25 miles each way. In addition, the Rinehart Clinic organizes several community awareness events in October for Breast Cancer Awareness Month including a bra fashion show, art exhibit and fundraiser. Unlike many counties, Tillamook has an excess of OBCCP slots, potentially an indication of the lack of readiness of some the county’s low income women to obtain a mammogram. Tillamook General Hospital has a breast health educator one day per week via a partnership with the Rinehart Clinic that allows employee wellness events such as receiving their mammogram while “on the clock”. Women also receive a 15 minute neck and shoulder massage in addition to educational materials and other “pink” giveaways. Finally, the American Cancer Society holds an annual “Relay for Life” event to raise funds and increase cancer awareness in the community. Strengths  Started outreach with clinic patients. They had 17% compliance on screening rate and were able to increase it to 59%.  Has successfully organized multiple fundraising/awareness events including a bra fashion show which is now being hosted by the local museum.  Successfully implemented two Spa Days. Currently working on the third “Latina Spa Day”  Rinehart clinic has a solid relationship with the local hospital Tillamook General Hospital including providing office space for the Rinehart Clinic breast health educator.  They have a system for follow up with clients. Suzie works evenings 2 weeks per quarter to call Rinehart Clinic patients who are due for MMG. 1 day per month is spent following up with patients who have had an abnormal finding and require further diagnostics. Challenges  Distance to mammography services (general transportation)  Resources for men with breast cancer. (Currently there are three men with breast cancer in the county)  Large deductible’s make receiving preventative screenings difficult for some women  Suzie felt unsure about whether outreach information was getting to the patients via the providers and clinic staff (county-wide) OHSU Knight Cancer Institute                              September 30, 2011    26 
  • 27.    Susie feels that people in this county will only seek care if they are sick, won’t go to the doctor for preventative care. She feels more patient education is needed. Lack of ability to fill all the OBCCP vouchers available. It seems they started with 12 OBCCP slots then increased to 35 slots. In 2010 they entered into a partnership with OHSU and their OBCCP slots increased again to 65. It seems they now have more slots than they can fill with their current outreach strategies.  Lack of Spanish speaking staff. Poor attendance of a Latina Spa day (only four of the 35 slots were filled). Outreach Activities  Direct Care Services  Assisting women in setting mammography appointments  Patient Navigator is available one day per week at Tillamook General Hospital to provide support services to women receiving breast cancer treatment at the hospital. Events  October Breast Cancer Awareness Month Events including: bra fashion show and exhibit  Spa Day Educational Trainings  Provider and clinic staff education happens via an early morning breakfast that takes place in the clinics. This method of outreach seems to work well for giving providers and clinic staff updates to the breast health program locally. Health Fairs & Tabling Events  They participate in a health fair that is part of the local County Fair. Approximately 500 women received educational materials last year. Partnerships  Tillamook Creamery  Tillamook General Hospital  Churches  Senator Betsy Johnson  OHSU- Dr. Elizabeth Steiner  School District  Women’s Resource Center Indirect  News Paper: Tillamook Headlight Harold a free local newspaper- usually gets a few referrals from the advertisements.  Flyers & Posters OHSU Knight Cancer Institute                              September 30, 2011    27 
  • 28.   2. Tillamook General Hospital, Tillamook, OR Ginny Gabel: Community Health Education & Community Health Improvement Partnership (CHIP) Director June 15, 2011 Ginny Gabel is a nurse and health educator at Tillamook General Hospital. She provides health education on various topics to patients and interested community members. Topics range from nutrition, to managing chronic illnesses, to breast cancer education. She also organizes various support groups including the Women’s Cancer support group. Ginny conducts outreach throughout the county, although infrequently in South County. She has identified Pacific City, located in south Tillamook County, as a tourist population. She is trying to reach residents and not the transient tourist population. She thinks locals living near Pacific City may be seeking screening services south in Lincoln City; or “over the hill” in Portland. In addition, Ginny feels that many people in Tillamook County have a “What I don’t know won’t hurt me” mentality, especially when it comes to preventative cancer screenings. People are VERY private, being a small community that they may be reluctant to allow others to know what’s happening in their lives. Strengths  Ginny and the staff at Tillamook General know their community and the concerns they have around confidentiality. She understands their general health and mammography screening issues. Challenges  Not enough printed materials and other educational resources that talk about cancer and lifestyle/diet changes  Low Literacy rates  Low Health Literacy rates Outreach Activities    Direct  American Cancer Society: Look Good Feel Better Program  Provides support to the Women’s Cancer Support Group Educational Trainings  Quarterly Breast Cancer Education Partnerships  Rinehart Clinic  American Cancer Society  Tillamook County Breast Health Coalition Indirect/Trusted Resources  Book: “The Cancer Project” by Neal D. Barnard and Jennifer K. Reilly OHSU Knight Cancer Institute                              September 30, 2011    28 
  • 29.   3. Tillamook County Breast Health Coalition, Tillamook, OR June 15, 2011 Our Community Health Educator was invited by Suzie Whalen to participate in the Tillamook County Breast Health Coalition meeting which took place at Tillamook General Hospital. It was a small group that met, but representatives from Tillamook General Hospital, The Rinehart Clinic, Area Health Education Center (AHEC) and American Cancer Society (ACS) were present. We learned about the groups collaborations with ACS, Tillamook General Hospital and the Rinehart clinic. They are in the process of planning a Latina Spa Day and were looking for advice on how to outreach to the Latina community. In addition they were excited to share that the ACS program “Look Good...Feel Better” is now happening in Tillamook County. “Look Good…Feel Better” provides a free two-hour workshop for women undergoing cancer treatment. This program helps improve the self-image, appearance, and quality of life of patients by teaching beauty techniques to help cope with the temporary appearance-related side effects of cancer treatment. Overall this group is trying to work together to address the Breast Cancer issues within Tillamook County. While they may have limited participants, they have been effective in mobilizing the people, resources and partnerships they do have. Strengths  Effective in mobilizing people, resources and partnerships within their community Challenges  Small group of people Outreach Activities  Events  Latina Spa Day (Tillamook) Partnerships  Tillamook General Hospital  Rinehart Clinic  American Cancer Society  Area Health Education Center  OHSU Knight Cancer Institute  North Lincoln Women’s Cancer Coalition     OHSU Knight Cancer Institute                              September 30, 2011    29 
  • 30.   Lincoln County   Summary  With miles of beach and coastline, Lincoln County is one of the most popular visitor destinations on the Oregon Coast.22 Lincoln County encompasses almost 1,000 square miles bordered by the Pacific Ocean. Named for Abraham Lincoln, 16th president of the United States, Lincoln County was created by the Oregon Legislature in 1893. For the first decades of its existence, Lincoln County was isolated from the rest of the state. The construction of U.S. Highway 101 (completed in 1925), and the Salmon River Highway (completed in 1930) created easy access to the more populated Willamette Valley. In 1936, as one of many federally funded construction projects, bridges were constructed across the bays at Waldport, Newport, and Siletz, eliminating the ferries needed to cross these bays. Principal industries of the county are tourism, trade, health services and construction. Paper manufacturing and fishing are still important sectors, although they contribute proportionally less to the county's employment than in the past. Newport is one of the two major fishing ports of Oregon (along with Astoria) and ranks in the top twenty of fishing ports in the U.S. The cities of Blodgett-Eddyville, Lincoln City, Toledo and Yachats are designated Medically Underserved Area/Population areas.23 Both Newport and Yachats have almost 40% of households living below 200% of the FPL. The percentage of women 65+ years old is twice the state average in Lincoln City, Waldport and Yachats. (Table 1) Lincoln County is served by the Samaritan Health System that operates two of its five hospitals in this county. There are Federally Qualified Health Centers, a health department and school-based health centers that serve low income women and their families. However, the breast cancer statistics reflect statistically significantly high rates for both of mortality in women 40 to 64 and late stage diagnoses in women over 65 years. There are many outreach efforts across this county to raise money for screening services. It seems many things happen in the northern part of the county as well as the southern portion, however there seems to be little happening in the middle section of the county.   Geography and Demographics  The majority of the population, accounting for 46,000 residents, lives along the western coastline in one of seven cities. The female population in Lincoln City, Waldport and Yachats is proportionately older with 12-14% and 11-12% of the population of women 65-74 years and 75+, respectively, compared to approximately 7% statewide (Table 2). Hispanics are the largest minority population in many Lincoln County communities, but Newport has the highest concentration at almost 13%. The northern part of Lincoln County includes the Siletz Reservation, created by treaty in 1855. The reservation was open to non-Indian settlement between 1895 and 1925. The Siletz's tribal status was terminated by the federal government in 1954, but became the first Oregon tribe to have their tribal status reinstated in 1977. As a result, there is a significant Native American community, 16% of the county’s population, in Siletz. The current reservation encompasses 3,666 acres (15 km).24 OHSU Knight Cancer Institute                              September 30, 2011    30 
  • 31.   Table 1 Poverty Level/Minority populations  % Below % for % for City 200% FPL* County Largest Minority County % in OR Blodgett-Eddyville 36.0% 36.1% Hispanic 3.4% 11.75% Lincoln City 36.4% Hispanic 8.6% Newport 39.7% Hispanic 12.9% Waldport 34.5% Hispanic 3.7% Yachats 39.5% Hispanic 4.9% Siletz 31.1% Native American 15.9% 1.4% Toledo 30.7% Native American 3.5% Rural 33.3% Oregon 29.6% *Federal Poverty Level (Appendix C) Table 2 Population of Rural Women by Age25  City Ages 45-64 Ages 65-74 Ages 75+ # % # % # % Blodgett-Eddyville 211 27.6% 53 7.8% 48 7.6% Lincoln City 2,936 32.6% 1,092 12.1% 1,089 12.1% Newport 1,815 29.7% 632 10.3% 683 11.1% Siletz 342 29.8% 90 7.8% 70 6.1% Toledo 777 29.6% 189 7.2% 166 6.3% Waldport 1,226 34.4% 501 14.4% 391 11.3% Yachats 309 38.0% 116 14.2% 97 11.9% Oregon 27.6% 7.8% 7.7% (Appendix B)     OHSU Knight Cancer Institute                              September 30, 2011    31 
  • 32.   Pinpointing need based upon access to healthcare, the Community Index map indicates highest need in Newport (zip code 97367), followed closely by Toledo (zip code 97391), Logsden (zip code 97357) and Neotsu (zip code 97364).       OHSU Knight Cancer Institute                              September 30, 2011    32 
  • 33.   Breast Health Network   There are two hospitals from one health system in this community; Samaritan North Lincoln Hospital in the north and Samaritan Pacific Communities Hospital in the south. There are four low-income health clinics in this county – three in Newport and one in South Beach – as well as multiple school based health centers (See Table 3). Table 3 Name of Organization Location Type Samaritan North Lincoln Hospital Lincoln City Hospital Mammography Site North Lincoln Women’s Cancer Coalition Lincoln City Cancer Coalition Samaritan Pacific Communities Hospital Newport Hospital Mammography Site Lincoln County Health and Human Services Newport Federally Qualified Health Center Newport Primary Care Clinic Newport Federally Qualified Health Center Centro De Ayudo Newport Federally Qualified Health Center Women’s Cancer Coalition of Linn, Lincoln Newport Cancer Coalition and Benton Counties South Beach Behavioral Health Clinic South Beach Federally Qualified Health Center Mammography and Breast Cancer  There are two mammography sites in Lincoln County located in Lincoln City in the north and Newport in the south. For women who live in the cities and towns along the coastline, access to mammography is generally less than 30 minutes one way. For those living in the hills or to the south, drive times increase to an hour or more each way. The Coast Range which bisects the county north to south creates a travel obstacle during the winter months with many on the east side traveling into Benton, Linn and Polk counties for services.    Map created by:  Domenico, Lisa J. (2009), Knight Cancer Institute at Oregon Health & Science University    OHSU Knight Cancer Institute                              September 30, 2011    33 
  • 34.   Lincoln County has statistically significant high mortality rates, as well as late stage diagnoses. While the screening rate is only 66% versus the state at 73%, this is not considered a significant difference. Based upon a five year average for this county, 45 women are diagnosed with breast cancer and 11 die annually.26 The percentage of women over 45, appropriate for mammography screening, is slightly higher than the state. (See Table 4) Table 4 Mammography Female Incidence Female Mortality Women MMG Cases Per 100,000 % Late Cases Per 100,000 40+ Screening per (age Stage per Year (age Rate Year adjusted) Diagnosis adjusted) County 14,241 66% 45 130.8 31%* 11 31.0* Oregon 913,828 73.3% 2,707 131.9 27%* 511 23.9 Population estimates: US Census Bureau, American Community Survey (ACS) 2006-2008; ++ US Census Bureau, Population Estimates 2008 data set Screening Data: BRFSS 2004-2007 Age Adjusted data Incidence & Mortality data: SEER 2002-2006 data, State Cancer Profiles Late stage diagnosis: OSCaR 1996-2006 ^ Rate/trend is not calculated due to instability of small numbers *Statistically Significant County (H=High, L=Low) + % Based upon lesds than 50 respondents, may not accurately reflect county   (Appendix A) Community Resources  Much of the cancer awareness outreach activities in the county are incorporated into fundraisers for local screening programs. An annual Fashion Show put on by Pacific Communities Hospital Foundation raises money for the screening services at Samaritan Pacific Communities Hospital. They have also been successful in implementing a Surviving to Thrive program for survivors in their community. In North Lincoln County, Area Health Education Center (AHEC) and North Lincoln Hospital partner with a group of local business women who put on a similar fundraiser. American Cancer Society programs are also visible here with Relay for Life being a successful event in this community. The Women’s Cancer Coalition of Linn, Lincoln and Benton Counties are a tri-county partnership to address women’s cancers within their community. This group has implemented a screening event in Benton County called “Mammathon” which successfully screened 100 women in one day last year. They hope to bring this program to Lincoln County. There is also an active Community Health Improvement Program (CHIP) that addresses many local health issues including breast health/cancer. There are year-around community events and large employers that could be leveraged for our outreach efforts. Community Events of Interest   January: Crab Krack (Newport)  April: Wooden Boat Show & Crab feed (Depoe Bay)  May :Waldport Great Garage Sale (Waldport)  May: Fashion Show Fundraiser for local mammography screening and patient care services (Newport)  June: Lincoln City Summer Kite Festival (Lincoln City)  July: Newport Clambake and Seafood BBQ: (Newport)  July: Lincoln County Fair (Newport)  August: Relay for Life (Newport)  August: Nesika Illahee Pow-Wow (Siletz)  August: Garage sale fundraiser for mammography screenings.( Newport) th  September: 56 Annual Indian-Style Salmon Bake (Depoe Bay)  October: Lincoln City Fall Kite Festival (Lincoln City)  October: Health Fair at Chinook Winds Casino (Lincoln City) OHSU Knight Cancer Institute                              September 30, 2011    34 
  • 35.    November: Siletz Tribal Restoration Pow-Wow (Siletz)  November: Chowder Cook Off (Lincoln City)  December: Fashion Show Fundraiser for local mammography screenings (Lincoln City)  December: Festival of Trees (Newport) Major Employers (100 + employees)   Confederated Tribes of Siletz Indians (1,127)  Samaritan Health Services (800)  Lincoln County School District (500)  Lincoln County (425)  Georgia Pacific Toledo (420)  OSU Hatfield Marine Science Center (401)  Pacific Seafood (200)  Fred Meyer (200)  City of Lincoln City (160)  Wal-Mart (157)  Central Lincoln PUD (136)  Salishan Lodge (130)  City of Newport (125)  Trident Seafood (seasonal) (120)  Shilo Inns (100)   Inn at Spanish Head (100)      OHSU Knight Cancer Institute                              September 30, 2011    35 
  • 36.   Key Informant Interviews    1. Lincoln County Health and Human Services (HHS) - Newport, OR Joell Archibald, RN, BSN, MBA; (Director) Rebecca McBee-Wilson: (Primary Care Division Director) Liz Young, BSN, RNC (Clinic Coordinator for Primary Care) June 16, 2011 Linn, Lincoln and Benton counties have a partnership with Samaritan called the “Coast to Cascade Wellness Network.” Prompted by grant requirements, HHS recently completed the Robert Wood Johnson Foundation (RWJF) health rankings; the Public Health Department just completed a health assessment utilizing the CDC’s CHANGE tool as a requirement of their Healthy Communities Grant. The county tobacco use is 3rd highest in the state with 26.9%.27 Our informant describes the socioeconomic climate as mixed -- high and low income earners with various levels of education. There are large numbers of retired people, tourists and those who work in the tourist industry, in often lower wage jobs. Those individuals who have health insurance may seek services “in the valley” (Corvallis & Salem) as opposed to locally. Low wage earners, often without insurance or unable to leave their jobs without losing pay, are less likely to seek services until they are sick. In her clinical experience, many never receive preventative health services like dental or vision screenings. Low income residents, particularly Hispanics, are served through school base health centers that have been successful in building trust within these vulnerable populations. The other two clinics run by the county are shared in a cooperative with Veterans Affairs (VA) one day per week. This clinic brings a VA doctor to the community including specialty doctors. This is the first clinic of its kind in the nation. It has been very successful and people appreciate having this resource in the community. The downside to sharing space is that the county-run clinics cannot operate when the VA runs their clinics. They are currently operating at maximum capacity but are looking to expand. Strengths  Public Health really understands their community and the challenges some community members face.  They have a community needs assessment and evaluation tools needed to track progress. Challenges  Women within the community do not know where to go for information  They feel there are communication issues with the two Samaritan hospitals that make creating a cohesive county-wide program difficult.  North Lincoln- concerned that there is no outreach person to engage with community  More women want to be screened through the OBCCP than is currently allocated to the county     OHSU Knight Cancer Institute                              September 30, 2011    36 
  • 37.   Outreach Activities    Direct Care Services  4 school based health centers  2 county FQHCs Events  Lincoln County Fair (Senior Day)- Annually Educational Trainings  Limited- by invitation Health Fairs & Tabling Events  Senior Health Fair (2,500 attended in past years) at Casino- Annually Partnerships  Dental Group  Obesity Group  Early Childhood Committee- Weekly  Veterans Affairs (VA) Indirect  The local radio station allows interviews and other advertisements. Public Health has been on before talking about health OHSU Knight Cancer Institute                              September 30, 2011    37 
  • 38.   2. Women’s Cancer Coalition of Linn, Lincoln and Benton Counties Cindy McConnell, RN June 16, 2011 The Women’s Cancer Coalition is a group of women who formed a coalition to address the unmet breast health screening needs within their community. This group meets quarterly and is made up of volunteers: Beth Evans (Samaritan), Jane Glassman and Joann Stutzman (Corvallis Clinic), Sarah Blanton (Project HER/Corvallis Clinic) and Cindy McConnell (Community Cancer Survivor). It is a small but effective group. This group began as the Benton Breast and Cervical Coalition, but has since expanded to all three counties. Most of their work is around fundraising for one of their annual screening events, Mammathon which is collaboration with local clinics and generous funders to screen up to 100 women in one day. In previous years they have been able to enroll 50 women onto the OBCCP program and have detected as many as three cervical and two breast cancers. Many more women received biopsies and colposcopies from the screenings they received at this event. Mammathon has been so successful that they have added information packets, transportation child care and snacks. They hope to expand this event in upcoming years to Lincoln County. This event is possible because of successful fundraising throughout the year, as well as local clinicians who volunteer their time to staff the screening event. When talking about educational resources Cindy mentioned a few resources that were not currently available within her community, and that she wishes was available. She explained the need for simple materials that are visually pleasing, nothing “too bulky.” In addition, the materials need to be available for different age levels including young people and the elderly. This was important to her because so much of their outreach is done via information sharing. Strengths  They learned how to effectively run a large scale screening event with limited financial resources and great partnerships.  As a coalition, they are small in numbers but highly effective in getting work done.  There group has managed to survive and thrive even through structural changes.  They have gained community support for their screening event. Challenges  There are some difficult business relationships between the Corvallis Clinic and Samaritan Hospital.  Newport is lacking resources.  Feeling that there is misinformation by providers about available services.  Lacking a good tracking system for documenting the mammography screening events and other outreach.  Problems printing NCI materials. Limited funding to print resources, and need to be in Spanish and Asian languages.     OHSU Knight Cancer Institute                              September 30, 2011    38 
  • 39.   Outreach Activities    Events  Pink Ribbon Tea  Homeless Connect Partnerships  Samaritan Health System  Corvallis Clinic in Benton County  Luna Bars Indirect  Flyers  Newspaper ads (2 weeks prior to event)  Word of mouth  Radio Trusted Cancer Resources  NCI website OHSU Knight Cancer Institute                              September 30, 2011    39 
  • 40.   3. Samaritan Pacific Health Services, Newport, OR Rebecca Fransham (Social Worker), Ursula Marinelli (Pacific Communities Health District Foundation Director), Lorie Williams (RN, CWCN) June 16, 2011 Samaritan Women’s Clinic is based out of Samaritan Pacific Hospital in Newport, OR (south Lincoln County). They see a mix of unemployed, uninsured or underinsured women. Many women are diagnosed with breast cancer at late stages. Pacific Community Hospital Foundation organizes a few fundraisers for Samaritan Pacific Hospital, including a fashion show which provides prescription assistance, mammography screening and gas card vouchers. The American Cancer Society (ACS) program “Relay for Life” event occurs annually at Newport High School. Samaritan Pacific works primarily with women in treatment services, but is interested in getting more involved with preventive breast health. Strengths  Work well with local community groups to organize fundraising events to support their screening program and support services for women in treatment.  Have patient education information for patients going through treatment within their hospital. Challenges  Transportation to appointments or screenings is a challenge for some women.  No programs for undocumented clients who have an abnormal finding and require follow up services or treatment.  Samaritan requires a doctor’s referral to get a mammogram; a woman cannot self-refer. This is an issue for women who can’t afford the office visit. However, once established with a provider, the reminder letter can be used to schedule future screenings.  Women, clinicians and clinic staff need to be educated that there is no longer a deductible or co-pay for mammography screening.  Education and literacy levels are low in some populations.  Need patient education materials on pain management.   Outreach Activities    Events Partnerships  Fashion shows raise money and patient  American Cancer Society support for women’s cancer program (May)  Janet Sutherland: volunteer esthetician, lives in south county (Waldport) Educational Trainings  Educational opportunities for patients going Indirect through treatment  Resources- NCI, American Cancer Society  Created patient education packets and DVD OHSU Knight Cancer Institute                              September 30, 2011    40 
  • 41.   4. Area Health Education Center Lincoln City, OR Karen Bondley (Program Manager) Monica Di Pietrantonio (Admin Assistant) June 16, 2011 The Area Health Education Center (AHEC) implements health education to many different age groups in Lincoln County, but especially K-12. AHEC understand the needs of the local clinics, have worked with community based organizations and local Parish Nurses on a variety of health topics. The Parish Nurses promote OBCCP on an ongoing basis. Much of AHEC’s local breast health activities are centered on their leadership in the Lincoln County Breast Cancer Coalition which meet quarterly at North Lincoln Hospital. As a result, they are particularly familiar with the players in North County. They have a partnership with the Snowflake Foundation, a sub-committee of the North Lincoln Hospital Foundation, which is made up of local business women who raise funds to support local mammography screening and follow-up services. They have also been involved in breast health education via the OBCCP Program and act as an educational resource for women interested in getting screened. In the past, AHEC been instrumental in getting 165 women screened through the OBCCP over a 60 day period through community partnerships, including the OHSU Knight Cancer Institute, and other outreach activities. It is their experience that working with private clinics is easier than working within hospital systems. Strengths  Lincoln County Breast Cancer Coalition  Lincoln Co is supportive of women’s health issues  AHEC is good at delivering health education to small populations within the community, especially youth.  Organizing educational screening events for nurses and providers.  Understand North Lincoln County and the dynamics of the clinics and hospital systems in the surrounding area.  They have worked with OHSU in the past and completed a community breast health needs assessment and program implementation in 2009 (provider education on mammography screening guidelines). Challenges  Lack of insurance  Lack of understanding that there is no a co-pay for mammograms.  Fear of mammogram and that it will be painful.  Many “Hispanic Healers” in the community. Some Latino women seek their services instead of a western medical provider.  Not reaching the Latino /Undocumented communities  Social issues around breast health  Middle aged women working in tourist industry are not being reached.  Low literacy levels  29% high school dropout rate  Young women lack info on breast health     OHSU Knight Cancer Institute                              September 30, 2011    41 
  • 42.   Outreach Activities    Education  Youth Education Events  Snowflake Foundation Fashion Show- run by local business women Partnerships  Lincoln County Breast Cancer Coalition  Partnerships with 4 clinics (2 in Newport 2 in Lincoln City)  Snowflake Foundation Indirect Outreach Activities  Newspaper  102.7 radio station offers free ads for non-profits  Informational posters in dressing rooms, laundry mats, etc. Trusted Cancer Resources  National Library of Medicine  Medline Plus  Mayo clinic  Susan G. Komen for the Cure OHSU Knight Cancer Institute                              September 30, 2011    42 
  • 43.   5. North Lincoln Hospital; Lincoln City, OR Johneen Benham July 19, 2011 Johneen Benham is a Mammography Technologist at North Lincoln Hospital in Lincoln City, OR. Johneen provided similar information as AHEC and the Lincoln County Breast Cancer Coalition as she is an active participant and collaborator. As a Mammography Technologist, Johneen’s perspective is on how women access mammography screening services locally. Samaritan North Lincoln Hospital screens approximately 2,000 women per year. Samaritan North Lincoln Foundation has funding to assist any women interested in a screening mammogram. If the woman has an abnormal result however, she would be responsible for any follow up costs. If cost is an issue, the hospital will work out payment plan options. When needed, Samaritan North Lincoln refers patients to other Samaritan Health System hospitals in Corvallis or Albany where they provide the newest treatments in chemotherapy and radiation therapy in Lincoln City and Corvallis, respectively. North Lincoln Hospital and staff, like Johneen, understand the needs and challenges within their community and collaborate with local partners to address those issues. North Lincoln Hospital actively partners with AHEC and the Lincoln County Breast Health Coalition for breast cancer screening, education and outreach opportunities in North Lincoln County. Strengths  Educating women about mammography during screening visit. Challenges  Not enough providers are aware of the OBCCP program.  Transportation Outreach Activities  Partnerships  Lincoln County Breast Cancer Coalition  AHEC OHSU Knight Cancer Institute                              September 30, 2011    43