Grainne Flynn , Blood Sugar Trampoline:Patient Speaker
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My Journey - A Patient Empowered
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Grainne Flynn , Blood Sugar Trampoline:Patient Speaker
- 1. My Journey - A Patient Empowered Grainne Flynn, Person with Diabetes
- 2. Diabetes Blogger Co-founder & event organiser Volunteer, Diabetes Advocate, Support group facilitator Editor & Project Manager
- 3. My Journey began….. 1993 Diagnosed Diabetes Control & Complications Trial (DCCT) published
- 4. Got on the Bus 1999 This bloke The Internet
- 5. 1st Transfer - Diabetes Education 2003 Married Living in the US Family
- 6. 2007 A source of Information, Motivation and Inspiration. 2nd Transfer - Peer Support
- 7. The Core Elements; Diabetes Education Destination Reached – Patient Empowered
- 8. The Core Elements; Diabetes Education Support • At home • Diabetes health care team • Peers Destination Reached – Patient Empowered
Editor's Notes
- Good Aft & Thank you - lovely intro Honoured and Excited to be here. Thank you Event organisers & fellow panel members Theme Empowering the Patient, Information, Choice & Accountability. Decided to focus on Empowering ... Before I take you on my journey…, I’d like to explain a little about myself.
- Stay at home mum 23 years at age 20. - Worked, Wife and Mother, Moved abroad, I’ve Volunteer with Diabetes Ire for 10 yrs, as’; Advocate, Facilitate, Organise D Events,, editor & PM of T1D Starter Kit, Fundraising. Blood Sugar Trampoline: blog -experiences living with t1d. Thriveabetes – Volunteers. Focuses on psychosocial. I’ll do anything to get out of cleaning my house! My journey didn’t happen overnight and it contains 2 core elements which are; Diabetes Ed & Support. Let’s go back to the beginning….
- The Journey Began 23 yrs ago, dxd, in 1993. The Diabetes Control and Complications Trial (DCCT) was published. Diabetes Education was extremely basic – if it existed. My diabetes mgt involved; Fixed amt of insulin twice, Eating the same amt at the same time, Checking BG’s, Recognise & treat a hypo For those 1st 6 yrs - I blindly coasted through my diabetes care. I did what I was asked. No idea why I was doing any of it, except to stay alive. What changed? How did I get on the bus? Corny Love
- I met this bloke. Notions. Asked 4 Info Stunned 3 reasons - 1st person - didn’t expect educate. Moving too fast I had nothing. What I did have was the internet. Websites; The Mayo, Joslin Centre, JRDF. Be a better way to live. This thinking Got Shelved b/c My bus was not on an express route. Couple of Transfers
- Page 2 - 2003 - Married - moved - family. Dietitian - counting carbs, insulin dose adjusting and sliding scales. Thro this knowledge, I felt I actually had some control over this thing called diabetes. I felt supported; supported by my D team and supported with knowledge. The 2nd transfer on my journey towards empowerment was finding peer support...
- 2007 - back to Ire- 2nd baby. increasingly frustrated - my lowest point Propelled into action - Newspaper -New branch of D Ire. Tel. Instantly connected. - Wanted to meet more people - set up D support groups. Continue to be a source of information, motivation and inspiration for me. This is where I feel my journey towards empowerment was completed. My destination was reached.
- The scenic route The Core elements should be available to all PWD. To recap on those Core Elements. They are; Diabetes Education - Not university - lectures. Ongoing 2-way conversational style. My knowledge has to adapt to how my diabetes changes as I go through life’s changes and stages.
- Support from 3 sources; At home - I may be the person with diabetes …. The more supported I am at …. Diabetes team – Listens, Acknowledges , Doesn’t focus my failings, Continues to teach. Continues to learn. Peers – undervalued, under used resource. Who else knows what it’s like to live with diabetes than other pwd. We learn so much from sharing our experiences….
- My journey towards empowerment has been completed but life with diabetes journey still continues. And I hope to continue that journey for many, many decades.