TASHIA: Show q&a - how Patients Like Me makes moneyInvisibility of cash flow – third party and no ads, etc.Purpose – rare conditions and knowledge sharingLack of disclosure about data farming
Show Philosophy of OpennessJESS: PLM believes in open sharing of personal info, but they do not share company info and income generationPLM does not openly disclose third party contributors who may have access to patient dataPseudo privacy with Pseudonymity – future implications of sharing such information without more advanced privacy controlCreating patient profile – anyone can join, but not as a researcher, under the desire to share knowledgeLack of User control over info: Centralization of PLM user experience without transparency of profit structure and third party contributors
JESS:What do patients get?Options for sharing knowledge - limited
TASHIA: MEDICINE 2.0Centralized
TASHIA: CENTRALIZEDEXTREMELY PERSONALIZED
TASHIA:Openness between professionals and other users- different levels of gatekeeping
TASHIA
TASHIA:PROBLEMS:Profit vs. nonprofit – values on each side and conflictsCentralized professional feature and decentralized knowledge sharing feature
![PLM Transparency “No surprises. Our members shouldn't be surprised by anything we do. Our goal is to disclose what we do with members' information, how we make money, as well as all of our partnerships on the site.” Structure of the Company ,[object Object]](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)