Venture Capital World Summit 2015 Alan Thomas
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Venture Capital World Summit 2015 Alan Thomas
- 1. Atacsia a Fi - Ataxia and Me #VCWS15 1
- 2. Atacsia a Fi - Ataxia and Me #VCWS15 2 Ataxia means ‘lack of order’ Coordination Speechbalance
- 3. Atacsia a Fi - Ataxia and Me #VCWS15 3 Ataxia means ‘lack of order’ Coordination Speechbalance My Mission is to bring back the Order to the “Lack of Order”
- 4. Atacsia a Fi - Ataxia and Me #VCWS15 4
- 5. Atacsia a Fi - Ataxia and Me #VCWS15 5
- 6. Atacsia a Fi - Ataxia and Me #VCWS15 6 350 million 6000 - 8000 350 million 6% 3.5 million Slide provided by Findacure
- 7. “Your most unhappy customers are your greatest source of learning.” Bill Gates (Microsoft) Atacsia a Fi - Ataxia and Me #VCWS15 7
- 8. The Patient Is the Expert In their own Condition Atacsia a Fi - Ataxia and Me #VCWS15 8
- 9. Atacsia a Fi - Ataxia and Me Has been established by Patients for Patients Atacsia a Fi - Ataxia and Me #VCWS15 9
- 10. Atacsia a Fi - Ataxia and Me Based in Wales Utilising the power of the internet Sharing good practice and information Atacsia a Fi - Ataxia and Me #VCWS15 10
- 11. Atacsia a Fi - Ataxia and Me #VCWS15 11 Atacsia a Fi - Ataxia and Me
- 12. Atacsia a Fi - Ataxia and Me Unique in encompassing Ataxia, associated rare conditions and movement disorders Atacsia a Fi - Ataxia and Me #VCWS15 12
- 13. Atacsia a Fi - Ataxia and Me Unique in being keen to promote Co- production, Collaboration. Plus Innovative ideas Atacsia a Fi - Ataxia and Me #VCWS15 13
- 14. Atacsia a Fi - Ataxia and Me Awareness Logo Branding Website Database, of patients Atacsia a Fi - Ataxia and Me #VCWS15 14
- 15. Atacsia a Fi - Ataxia and Me Thank You / Diolch Alan Thomas onamission.thomas@btinternet.com @alanROYGBIV Atacsia a Fi - Ataxia and Me #VCWS15 15
Editor's Notes
- Thank You, for this Amazing oppertunity
- I am part of those stats But I am a person who happens to have a condition called ATAXIA ! 'Ataxia' means ‘lack of order’. People with ataxia have problems with Cordination Balance and speech communication is something that is very important to us all
- My Mission is to bring back the Order to the “Lack of Order” Using the Internet has made this possible – giving ME “the patient” a voice
- Patient Crossing Borders to Customer maybe seen as “Going over to the Dark side”
- Crossing Borders I see it as “seeing the Light” And opening Avenues to exciting oppertunities
- Anyone know these stats 6000 – 8000 Rarediseases That’s 6% of population 3.5 million in UK and 350 million in the World will be affected by a raredisease I am one of those stats Thats ALOT of patients or “potential customers” -
- “Your most unhappy customers are your greatest source of learning.” – Bill Gates A true quote that applies to ALL organisations – BIG and small.
- 8 A TRUE Fact The Patient Is the Expert In their own Condition A fantastic source of REAL Life health information, this knowledge can be used by all Health related organisations.
- Atacsia a Fi - Ataxia and Me Has been established by Patients for Patients It was put in place by numerous requests within the Health community.
- Atacsia a Fi - Ataxia and Me Based in Wales - Will be Utilising the power of the internet connecting to the World Sharing good practice and information
- Interacting via Social Media As well as face to face communication
- Unique > in encompassing Ataxia, associated rare conditions and movement disorders
- Atacsia a Fi – Ataxia and Me Unique in being keen to promote Co-production, Collaboration. Plus Innovative ideas
- Future developments include Raising Awareness A Positive Logo An Eye catching and proactive Branding Plus a Website that is uplifting while sharing information Database of pateints that will be valueable the health industry Plus alot more ....
- Thank You / Diolch Alan Thomas Onamission.thomas@btinternet.com @alanROYGBIV