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Annie Williams
MLHD Manager of Innovation & Redesign
Palliative Patient Journeys
Providing Services in a Regional and Rural Setting
Palliative Care Service Delivery in MLHD
NSW Health
Palliative Care
Services Plan
NSW Palliative Care
Strategic
Framework
MLHD Palliative Care Clinical Services Plan
How are we
delivering
Palliative Care
Services now?
Western
eastern
Primary
Enhanced
Level 1:
Specialist.
MLHD Palliative Care Model
Objective:
 To provide a current state business process and patient
journey analysis of the MLHD Palliative Care Patients
whom access services within Griffith and the
surrounding region
Scope:
 Documentation of current palliative patient flow, operational activities and business
processes centred on Griffith, and local communities
 Processes from Patient referral to EOL care
160 KM
65KM
110KM
90
KM
140KM
60
KM
Geographical Implications:
Project Methodology:
Patient and Carer Interviews:
De-identified interviews conducted with palliative patients,
and/or carers whom have referred to or accessed the
services of the Palliative Care Service.
Process Mapping:
Patient Flow - Data Analysis Outreach Sites:
PC Team Roster &
Service Model Changes
MLHD: GRIFFITH CH PALLIATIVE CARE SERVICE ACTIVITY
OCCASIONS OF SERVICE – IN HOURS AND AFTER HOURS
Patient Flow - Data Analysis Griffith:
Admissions28 %decrease
 
Patient Flow – Community to Acute Care:
MLHD: PALLIATIVE CARE
Multiple Admissions & Readmissions to Griffith Base Hospital
71 %
decreas
e
Patient Flow – Readmissions to Acute Care:
 A decrease in the 
number of acute 
Palliative Care 
admissions
 A consistent length of
stay for Palliative Care 
patients [median 4 days 
from 2012 to 2015] 
 A significant drop in 
Palliative Care patients 
whom are admitted to
the acute service on
more than one
occasion    
 Early identification of 
patients 
  A proactive approach to 
resourcing and delivery of 
supported palliative care in 
patients homes,  
 Provision of  after hours 
services to unstable patients 
only as required 
 Building of enhanced 
relationships with outreach 
sites
Patient Flow – Key Findings:
Quantification of Patient Experience
Patient and carer perceptions of the healthcare journey comprise the 
“Patient Experience”. Research from the NHS & Picker Institute 
provides key themes valued by both patients and carers:
Access to Care
Respect for Patient values, preferences, and expressed needs
Coordination and integration of care
Information and education
Transition and continuity
Physical comfort
Emotional support and alleviation of fear and anxiety
Involvement of family and friends
What our patients and carers told us:
Early on, it was necessary
for Lois to have a syringe
driver, so that it could help
to manage her pain. This
worked as a partnership
between myself and the
Palliative Care Nurse; we
worked really well
together.
I think that this is a great
idea to investigate how to
do longer term patient
surveys and to talk about
our experiences – it is the
only way that we can
improve the services to our
communities and
acknowledge the great
services we have!
We wish we knew
about it sooner!
… things were
deteriorating; they
were there
whenever we
needed them.
…my GP who I knew very well and
was caring for me well, does not
have admitting rights to the
hospital, so each time I went in,
there was a process of
transferring my case over to
another doctor,
I had only ever heard about Palliative Care in
relation to cancer care, I didn’t realise that
they could support Charley in the end stages
of his illness
I was told by the
nurse to “get
dressed you are
going home”. ..no
one had told me
of any plans
Palliative Patient Journey – Acute Palliative Care Services
Palliative Patient Journey–Community Palliative Care Services
Quantification of Patient Experience
Patient Journey Impacts
GPPCT
HOM
E
AH
ED
ACUTE
D/C
Palliative Patient Journeys—providing services in a regional and rural setting
Palliative Patient Journeys—providing services in a regional and rural setting

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Palliative Patient Journeys—providing services in a regional and rural setting

  • 1.
  • 2. Annie Williams MLHD Manager of Innovation & Redesign Palliative Patient Journeys Providing Services in a Regional and Rural Setting
  • 3.
  • 4. Palliative Care Service Delivery in MLHD NSW Health Palliative Care Services Plan NSW Palliative Care Strategic Framework MLHD Palliative Care Clinical Services Plan How are we delivering Palliative Care Services now? Western eastern
  • 6. Objective:  To provide a current state business process and patient journey analysis of the MLHD Palliative Care Patients whom access services within Griffith and the surrounding region Scope:  Documentation of current palliative patient flow, operational activities and business processes centred on Griffith, and local communities  Processes from Patient referral to EOL care
  • 8. Project Methodology: Patient and Carer Interviews: De-identified interviews conducted with palliative patients, and/or carers whom have referred to or accessed the services of the Palliative Care Service.
  • 10. Patient Flow - Data Analysis Outreach Sites:
  • 11. PC Team Roster & Service Model Changes MLHD: GRIFFITH CH PALLIATIVE CARE SERVICE ACTIVITY OCCASIONS OF SERVICE – IN HOURS AND AFTER HOURS Patient Flow - Data Analysis Griffith:
  • 12. Admissions28 %decrease   Patient Flow – Community to Acute Care:
  • 13. MLHD: PALLIATIVE CARE Multiple Admissions & Readmissions to Griffith Base Hospital 71 % decreas e Patient Flow – Readmissions to Acute Care:
  • 14.  A decrease in the  number of acute  Palliative Care  admissions  A consistent length of stay for Palliative Care  patients [median 4 days  from 2012 to 2015]   A significant drop in  Palliative Care patients  whom are admitted to the acute service on more than one occasion      Early identification of  patients    A proactive approach to  resourcing and delivery of  supported palliative care in  patients homes,    Provision of  after hours  services to unstable patients  only as required   Building of enhanced  relationships with outreach  sites Patient Flow – Key Findings:
  • 15. Quantification of Patient Experience Patient and carer perceptions of the healthcare journey comprise the  “Patient Experience”. Research from the NHS & Picker Institute  provides key themes valued by both patients and carers: Access to Care Respect for Patient values, preferences, and expressed needs Coordination and integration of care Information and education Transition and continuity Physical comfort Emotional support and alleviation of fear and anxiety Involvement of family and friends
  • 16. What our patients and carers told us: Early on, it was necessary for Lois to have a syringe driver, so that it could help to manage her pain. This worked as a partnership between myself and the Palliative Care Nurse; we worked really well together. I think that this is a great idea to investigate how to do longer term patient surveys and to talk about our experiences – it is the only way that we can improve the services to our communities and acknowledge the great services we have! We wish we knew about it sooner! … things were deteriorating; they were there whenever we needed them. …my GP who I knew very well and was caring for me well, does not have admitting rights to the hospital, so each time I went in, there was a process of transferring my case over to another doctor, I had only ever heard about Palliative Care in relation to cancer care, I didn’t realise that they could support Charley in the end stages of his illness I was told by the nurse to “get dressed you are going home”. ..no one had told me of any plans
  • 17. Palliative Patient Journey – Acute Palliative Care Services Palliative Patient Journey–Community Palliative Care Services Quantification of Patient Experience

Editor's Notes

  1. Setting the scene
  2. Current Patient Flow Referral processes and pathways Operational activities and operational management of Palliative Care services within Griffith and surrounding referral communities Policy compliance
  3. Personal interviews will be undertaken, using NSW Health approved Patient and Carer Experience templates and tools. Information is de-identified, with participants asked to select an “alias” for the purpose of the interview. All participants, including patients and carer/s, are required to complete and sign a consent form, and have the option of opting out of the process. Participants have the option to review the documented interview prior to inclusion in the report.
  4. Comment on activity – variation in activity – not directly linked to population or staffing
  5. Service Capacity & Demand
  6. Patient Interview Methodology A key component of this analysis is to identify and quantify the current patient journey, utilising the approach of “The Patient and Carer Experience Methodology”. This approach is based on successful initiatives developed with collaboration by the National Health Trusts [UK], the Picker Institute [USA], and NSW Ministry of Health. The methodology, tools, templates and approach are available from and supported by the NSW Agency for Clinical Innovation [ACI] http://aci.health.nsw.gov.au Interview process
  7. Key themes
  8. Comments to be added