The document summarizes an HCV HUB, which is a knowledge management platform that centralizes up-to-date information on hepatitis C virus (HCV) from various stakeholders. The HCV HUB aims to support organizations and communities in planning and implementing HCV cure and control strategies. It allows users to collect relevant HCV publications and resources, connect with the global HCV community, and learn from other experiences. Content is organized into tools, case studies, interventions, action plans, and publications. The HCV HUB is intended to benefit various stakeholders, including patient associations for advocacy efforts.
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HCV HUB planning and implementation: Benefits for Patient Associations
1.
2. Index
1. Why was the HCV HUB Created?
2. What is the HCV HUB?
3. What is the HCV HUB objective?
4. How is the content organized in the
HCV HUB?
5. Who is the HCV HUB for?
6. Why is the HCV HUB interesting for
patient associations?
7. Join us
3. 1. Why was the HCV HUB created?
Hepatitis C (HCV) is an increasingly important global public health issue.
The burden of disease, high prevalence rates, impact on patients’ quality of life and
overall high cost to society all contribute to the urgency in addressing HCV.
The HCV situation is complex:1
To effectively control and prevent the ongoing HCV epidemic, a comprehensive
approach is required: holistic and inclusive of prevention, early intervention, disease
management and follow up strategies.
130 - 170 million
individuals are chronically
infected worldwide
350,000 - 500,000
deaths occur annually from
HCV worldwide
75%
of people are unaware
they are infected
3 – 5%
of people infected worldwide receive
treatment each year
1: DBSHEALTH, Hepatitis C: The Big Picture. A global burning platform (October, 2014)
4. 1. Why was the HCV HUB created?
It is essential to collaborate, by sharing knowledge and expertise among different key
stakeholders, to move forward effectively.
However:
There is an absence of structured
databases that store relevant and up-to-
date information related to HCV cure and
control.
There are few organizations responsible
for identifying trends and good
practices that are replicable in other
environments.
Not all information is published, leaving
intervention, implementation and
strategy knowledge unavailable for
collaboration.
There are few opportunities to share
good practices around HCV cure and
control interventions and learn from
other´s experiences.
5. 2. What is the HCV HUB?
The HCV HUB Planning and Implementation is a knowledge management
platform where up-to-date and relevant information about HCV is gathered
and centralized online.
The HUB contains a
collection of scientific
publications, action plans,
interventions, case
studies, and tools to
support you and your
organization/community
in the planning and
implementation of
strategies to cure and
control HCV.
6. 3. What is the HCV HUB objective?
The overarching aim of the HCV HUB is to promote action toward a world
free of HCV by supporting you and your organization/community:
Collect
The HCV HUB collects
up-to-date and reputable
HCV materials on one
platform, reducing the
amount of time you
spend searching for
information!
Connect
The HUB connects you
with the global HCV
community!
Learn
The HUB facilitates HCV
knowledge exchange,
allowing you to learn
from the best
international
experiences!
7. 3. The HCV HUB offers the opportunity to
Collect
Access up-to-date and relevant information in one single
centralized website. Only the latest, accurate and reliable
resources are included.
Find information from different key stakeholders (policy
makers, payers, community agents, researchers, patient
associations) in the cure and control of HCV.
Search quickly and effectively. Information is organized,
analyzed and summarized to help you scan the key
messages.
8. 3. The HCV HUB offers the opportunity to
Connect
Understand what members of the global HCV community
are doing.
Identify potential partners and opportunities to
collaborate.
Showcase good practices and drive change.
Raise awareness of specific resources through
your social network.
9. 3. The HCV HUB offers the opportunity to
Learn
Explore the big picture and also understand the HCV
context in more depth.
Benefit from the ongoing exchange of reputable HCV
knowledge from both published and unpublished sources.
Learn how other local, national, and global organizations
are addressing HCV.
Contribute to improving the knowledge and capacity of
the global HCV community.
10. 4. How is the content organized in the HCV HUB?
Content is collected by a variety of experts who…
Include the most
reputable HCV sources
and publications
Select relevant and up-
to-date information
Document previously
unrecorded good
practices
Classify and organize
the information in a
comprehensive and
accessible database
11. 4. How is the content organized in the HCV HUB?
Tools
Case Studies
Interventions
Action plans
Analyses of the situation
Published scientific journal articles highlighting the epidemiological,
economic, and political impact of HCV
Documents to guide and support policymakers and stakeholders in the HCV
planning and implementation process
Experiences that describe how interventions have been implemented
(including barriers and lessons learned) in order to encourage and facilitate
replication into other HCV settings
Scientific publications containing quantitative and qualitative results that
measure an approach taken in the prevention, diagnosis, treatment, and/or
management of HCV
Strategic policies that fight HCV at the regional, national, international, or
global levels
12. 5. Who is the HCV HUB for?
The HCV HUB Planning and Implementation is aimed at any individual or
group of stakeholders interested in driving improvements to HCV planning,
management and control at local, regional, national or international levels.
Members of government
and state agencies and/or
health jurisdictions
Payers Medical educators and
researchers
Public Health Experts Professional society
representatives
Managers
Health professionals Industry
representatives
Community
representatives
13. 6.WhyistheHCVHUBinterestingforpatientassociations?
The HUB supports patient associations in the development, implementation and
improvement of HCV cure and control plans and interventions
The HUB can also support patient associations at any stage of their journey by providing
resources to promote action and collaboration
There is a unique window of opportunity to work collaboratively to create plans and
interventions to cure and control HCV
More needs to be done to remove significant barriers to access HCV treatment and care, but
governments can’t solve it alone
Patient associations play a key role in advocating for national HCV action plans and supporting
new models of HCV care delivery
There is a paradigm shift in HCV management
Disease awareness has grown significantly
New diagnostic tools, drugs, and guidelines are available
More HCV-specific strategies and plans are being developed and implemented
14. 6.WhyistheHCVHUBinterestingforpatientassociations?
Collect
Connect
Learn
Access the latest data and find support to build stronger advocacy
messages
Promote interventions based on good practices identified
worldwide
Create a sense of community and find peers who share a common
objective
Increase awareness, drive change, and raise standards by sharing
knowledge with a diverse network of stakeholders
Access resources to support advocacy efforts: epidemiological
information, education and awareness, access to treatment, etc.
15. 7.Joinus
The most complete database of resources on HCV prevention and control to
begin planning and implementation initiatives.
The first of its kind!
Join us as we seek broad
collaboration on critical efforts
to bring an end to HCV by
sending your initiatives to
hcv.hub@deusto.es
The HCV HUB is an independent platform developed by DBSHealth and supported by a voluntary independent
sponsorship contribution from AbbVie. All content is solely developed, controlled and owned by DBSHealth.