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3
Someone
who can’t be cured
can still be helped.
VERA Hospice Charity Fund is the only non-profit
organization in Russia supporting palliative and
hospice care for children, adults and elderly.
We fundraise to assist hospices in Moscow and
other regions of the country, we provide support
to patients and their families and implement
social programs for hospice staff.
4
Why we do
what we do
We are here because no matter how little time one may have left,
there’s still much we can do to help them.
We are here because Russian state medical and social system
does not cover the care for those who can
never be cured.
We are here because Russian hospices cannot survive without
charity input, and hospice patients
need good lobby in mass media and
in governmental structures.
We are here because without charity money hospices in Russia
lack essential medical equipment
and daily care products such as diapers
and bandages, they lack qualified staff and
social support for patients and employees.
We are here because we know how to help effectively and
we are certain that efforts make a real
difference for patients and their families.
5
Palliative care
in Russia –
achievements and goals
Palliative care practice was first brought to Russia relatively late. It was
not until the 90s
that the first hospice was established.
Even today state budgeting does not cover most of what hospices need.
Palliative care is still not fully included into the federal and municipal
medical care programs.
Thus it is essential that VERA Hospice Charity Fund expands and
provides necessary funding to cover more needs of more terminal
patients suffering from severe pain syndrome and other physical and
psycological symptoms in Moscow and all over Russia.
NUMBER OF HOSPICES
IN RUSSIA
number of hospices
looked after
by VERA
19941994
2
0
1
30
98
500 for adults
50 for children
20072014 2015needed
6
What we do:
VERA Hospice Charity Fund
key programs
Regional
Hospice Support
Program – over
30 hospices all
over Russia
Moscow Hospice
No. 1 Support
Program – over
40,000 patients
in care during the
operating years
since 1994
Providing medical equipment and improving facilities
Assisting limited-means patients and their families
in fulfilling their last wishes and in making their life
more comfortable and dignified
Providing training for staff and lectures from world’s leading
specialists in palliative care
Providing financial and social assistance to staff
Building and maintaining the system of volunteer help
(a well-built team of over 400 volunteers in 2015)
Providing first-ever in Russia bereavement and grieving
program for the relatives
Renovating the building and the wards of the hospice
Providing the hospice-at-home service with medical cars
Providing medical equipment to hospices all over Russia
working with regional administration to establish
hospice-at-home service
Training medical palliative care personnel
Providing financial support to employees
7
Palliative care
for terminally ill
children
(there are only
4 children hospices
in Russia none of them
in Moscow, thus Fund
Vera team is the only
professional children
in-home care team)
Direct support to over 300 children and young adults in
Moscow and other regions diagnosed with terminal
diseases (including oncology, neurology, and genetic
diseases)
Building the first hospice for children in Moscow providing
financial support to hospitals and scarce hospice units
in the country that work with terminally ill children
Supporting parents and relatives in bereavement period
Organizing training and education for hospice staff
abroad in world’s leading hospices
Palliative and
Hospice Care
Awareness
Program
Social advertising and media publications
Public speeches and events
Educating hospice staff and medical community in general
about hospice values and philosophy
Volunteer
Fostering
Program
Developing volunteering as an alternative way to support
hospice patients
Organizing and maintaining the volunteer support system
in hospices for both in-care and hospice-at-home patients.
Organizing programs for emotional burn-out of hospice staff
and volunteers
9
VERA Fund:
growth dynamics
When first established in 2006 with First Moscow Hospice as its basis,
VERA Fund had 4 employees and 1 institution in care. Within 12 years
we’ve grown significantly, developing professional palliative care in
Moscow and regions, including in our activities individual patients all
over Russia. Today we are an organization with over 60 employees and
second most reputed NPO in Russia. Below is the chart demonstrating
the increase in charitable funds we accumulate and spend on Fist
Moscow Hospice.
10
The funds
we attract and spend
Efficiency and transparency of our
financial flows is top-priority for Vera Fund
trustees.
Financial statements
for each month
and annual audit
resolutions can be
found at our website
www.hospicefund.ru/
fund/report/
11
How we raise
charity funds
Charity is a rapidly growing market in Russia. And some charities,
including helping the aged and the dying, are called “non-popular
charities”. Attracting funds to provide palliative and hospice care
is therefore a challenging task in Russia. Death, dying and the dying
have always been a taboo subject in our communicative culture.
And society responds easier to children-oriented charities.
The chart below demonstrates the number of non-profit foundations by the
type of institutions they provide support to. This data is based on the research
held by the “Donors Forum” for the Ministry of Economic Development of RF in
April 2013 and includes all the NPFs registered and actively working in Russia:
www.donorsforum.ru/wp-content/uploads/2013/04/doklad_2013.pdf
Nursing Homes
Orphanages
Hospitals and Clinics
Hospices
Shelter for homeless
Educational Institutions
Religious Organizations
1
30
26
13
9
54
11
12
Over the years, whilst striving to
overcome the stereotype and spread
the idea of how important it is not
to ignore the needs of terminally ill,
but rather to use our knowledge and
our assets to make them live a better
life, we have worked out different
ways of fundraising.
How we fundraise:	
Commercial projects – such as publishing
series of unique literature collections, with all the sales revenue going
to the VERA Fund.
Events – with some of them having become
an annual tradition, we organize concerts, performances, festivals and
auctions, working alongside with our partners – musicians, directors,
magazines and commercial companies who provide the necessary
technical budget.
In 2008 our board has established
an Endowment program, which has been enlarging since and
is managed by 3 major financial companies in Russia.
13
Where the money
comes from
The list of Legal entities supporting our activities is wide and
includes Russian companies as well as international corporations
operating in Russia. For more details please refer to our webpage:
http://www.hospicefund.ru/fund/partners/
As the chart shows, the largest source of charity funds incoming
to VERA is Individual donations.
Legal enitities’ donations
Indivi
dua
l
dona
tions
Endowment
Commercial projects
Events
Rollover from previous period
€  819 841
€  200 500
€  16 743
€  59 000
€  13 155
€  2 436 930
Incoming
funds
2014
14
Crowd
funding
In 2014, crowd funding has become one of key fundraising instruments
in Russia. The crowd funding project raising money our little patients
for collecting is currently run at planeta.ru/campaigns/6706. It has
attracted 1200 donors and over 2,000,000 rub (60,000 euro) within
two months.
VERA Hospice Fund is
the first Russian NGO
to have raised such a
significant amount for
charity purposes in this
period of time with the
help of crowd funding.
One of our most
successful instruments
is fundraising is social
network: eg. Facebook
We are currently
undergoing
registration procedure
www.globalgiving.org,
a major international
charity fundraising
web site.
15
VERA Fund’s
regional coverage
We currently provide aid to over 30 hospices in Russia — only those that
are transparent, that guarantee quality and professionalism in their
work; those eager to learn and grow and those sharing our vision of
palliative care, which includes 247 access for friends and relatives and
are 100 % free of charge.
Hospices in Tula, Izhevsk,
Saint Petersburg, Lipetsk,
Kazan’, Chelyabinsk,
Taganrog, Tula, Perm,
Pskov, Moscow, Volgograd,
Tyumen and Kiev
(Ukraine).
Patients included
in VERA’s childcare
program come from all
over Russia and CIS.
Tula
Chelyabinsk
Volgograd
Izhevsk
Taganrog
Tyumen
Saint Petersburg
Perm
Kiev (Ukraine)
Lipetsk
Moscow
Pskov
Kazan’
16
What we see
as activity headlines
for 2015–2016
Further increase of incoming
funds flow via expanding to the
regions and creating regional
fundraising network;
Enlarging our endowment that
is targeted to provide for salaries
and social care for hospice staff.
Completing the construction
of The First Children Hospice
in Moscow by 2016 and meanwhile
recruit and train its future staff.
Expanding Childcare program
further into the regions.
Proceeding with educational
programs for VERA hospices all
over Russia.
Working together with municipal
and federal authorities, amend
certain medical care regulations
to include palliative care needs
and patients rights.
Actively develop the Professional
all-Russian Hospice Care
Association which was
established by Vera Funds’
initiative in 2014.
Launching a 24-hour hotline
meant to assist terminal patients
and their families.
Attracting more volunteers
to hospices all over Russia.
17
Every day we work on making our purpose trustworthy and our help
efficient. We are proud of what has been done and look forward to doing
much more. Our largest asset is people. That includes our patients,
hospices staff, foundation employees and our guardians. The VERA
Hospice Charity Fund’s Board of Trustees includes Russia’s prominent
economists and businessmen, scientists and medical doctors, artists and
journalists, writers, directors and musicians.
These people have joined together
to make things better
for those who cannot be cured,
but can still be helped
18
VERA Fund’s international supporters and inspirers include
Dr. Satbir Jassal, Chief Physician at Rainbow Hospice for
children and young people in East Midland (sat.jassal@gmail.com),
Mark Hunter, Medical Director at Acorns Childrens Hospices Trust
(mfhunt@globalnet.co.uk) and Robert Thycross, Director of the
World Health Organization’s Collaborating Centre for Palliative Care
from 1988–2005 (robtwy@yahoo.com).
Over the last year I have had the great
pleasure of working very closely with the
Hospice Foundation Vera, in Moscow. They
have pioneered the care of the dying children
within the Moscow having adopted many of
the concepts and advice from around the world
and then adapting it for the Russian children
and families. I would strongly commend the
type of work that they have started to do and
the ideas that they have to bring Moscow
and Russia up to world standard in looking
after its life limited and dying children.
As an organisation they have excellent core
administrative structure as well as some of the
most hard-working and a visionary doctors
and nurses that I have ever met. Any support
that you give this organisation will be greatly
appreciated and every rouble will be spent
wisely to benefit the people of Moscow.
Dr Sat Jassal MBE
B Med Sci, BM, BS, DRCOG,
Dip Pal Med, DFSRH,
PGCME, MRCGP,
FRCPCH (Hon)
Medical Director
Rainbows Children’s Hospice
Lark Rise, Loughborough,
Leicestershire, UK
01509 230800
19
VERA Hospice
Charity Fund Details
TELEPHONE: +7 (965) 372-57-72
E-MAIL: fund@hospicefund.ru
LEGAL ADDRESS: Kooperativnaya ul., d. 10,
kv. 12, Moscow, Russia
119048
ACTUALfund@hospicefund.ru ADDRESS: Dovatora ul., d. 10 (inside
Moscow Hospice No. 1
building), Moscow, Russia
119048
Recipient: Fund “Vera”
Bank: Sberbank of Russia OAO Moscow
Account number: 40703810438180133973
(in Russian roubles)
TIN 7724296034, KPP 770401001
BIC 044525225
Correspondent account:
30101810400000000225
Principal State Registration Number:
1067799030826
(certificate 77 № 008801539 of 28/11/06)
By donating to Vera, you confirm that you
agree to the donation terms and conditions.
20

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Helping the Terminally Ill in Russia

  • 1.
  • 2.
  • 3. 3 Someone who can’t be cured can still be helped. VERA Hospice Charity Fund is the only non-profit organization in Russia supporting palliative and hospice care for children, adults and elderly. We fundraise to assist hospices in Moscow and other regions of the country, we provide support to patients and their families and implement social programs for hospice staff.
  • 4. 4 Why we do what we do We are here because no matter how little time one may have left, there’s still much we can do to help them. We are here because Russian state medical and social system does not cover the care for those who can never be cured. We are here because Russian hospices cannot survive without charity input, and hospice patients need good lobby in mass media and in governmental structures. We are here because without charity money hospices in Russia lack essential medical equipment and daily care products such as diapers and bandages, they lack qualified staff and social support for patients and employees. We are here because we know how to help effectively and we are certain that efforts make a real difference for patients and their families.
  • 5. 5 Palliative care in Russia – achievements and goals Palliative care practice was first brought to Russia relatively late. It was not until the 90s that the first hospice was established. Even today state budgeting does not cover most of what hospices need. Palliative care is still not fully included into the federal and municipal medical care programs. Thus it is essential that VERA Hospice Charity Fund expands and provides necessary funding to cover more needs of more terminal patients suffering from severe pain syndrome and other physical and psycological symptoms in Moscow and all over Russia. NUMBER OF HOSPICES IN RUSSIA number of hospices looked after by VERA 19941994 2 0 1 30 98 500 for adults 50 for children 20072014 2015needed
  • 6. 6 What we do: VERA Hospice Charity Fund key programs Regional Hospice Support Program – over 30 hospices all over Russia Moscow Hospice No. 1 Support Program – over 40,000 patients in care during the operating years since 1994 Providing medical equipment and improving facilities Assisting limited-means patients and their families in fulfilling their last wishes and in making their life more comfortable and dignified Providing training for staff and lectures from world’s leading specialists in palliative care Providing financial and social assistance to staff Building and maintaining the system of volunteer help (a well-built team of over 400 volunteers in 2015) Providing first-ever in Russia bereavement and grieving program for the relatives Renovating the building and the wards of the hospice Providing the hospice-at-home service with medical cars Providing medical equipment to hospices all over Russia working with regional administration to establish hospice-at-home service Training medical palliative care personnel Providing financial support to employees
  • 7. 7 Palliative care for terminally ill children (there are only 4 children hospices in Russia none of them in Moscow, thus Fund Vera team is the only professional children in-home care team) Direct support to over 300 children and young adults in Moscow and other regions diagnosed with terminal diseases (including oncology, neurology, and genetic diseases) Building the first hospice for children in Moscow providing financial support to hospitals and scarce hospice units in the country that work with terminally ill children Supporting parents and relatives in bereavement period Organizing training and education for hospice staff abroad in world’s leading hospices Palliative and Hospice Care Awareness Program Social advertising and media publications Public speeches and events Educating hospice staff and medical community in general about hospice values and philosophy Volunteer Fostering Program Developing volunteering as an alternative way to support hospice patients Organizing and maintaining the volunteer support system in hospices for both in-care and hospice-at-home patients. Organizing programs for emotional burn-out of hospice staff and volunteers
  • 8.
  • 9. 9 VERA Fund: growth dynamics When first established in 2006 with First Moscow Hospice as its basis, VERA Fund had 4 employees and 1 institution in care. Within 12 years we’ve grown significantly, developing professional palliative care in Moscow and regions, including in our activities individual patients all over Russia. Today we are an organization with over 60 employees and second most reputed NPO in Russia. Below is the chart demonstrating the increase in charitable funds we accumulate and spend on Fist Moscow Hospice.
  • 10. 10 The funds we attract and spend Efficiency and transparency of our financial flows is top-priority for Vera Fund trustees. Financial statements for each month and annual audit resolutions can be found at our website www.hospicefund.ru/ fund/report/
  • 11. 11 How we raise charity funds Charity is a rapidly growing market in Russia. And some charities, including helping the aged and the dying, are called “non-popular charities”. Attracting funds to provide palliative and hospice care is therefore a challenging task in Russia. Death, dying and the dying have always been a taboo subject in our communicative culture. And society responds easier to children-oriented charities. The chart below demonstrates the number of non-profit foundations by the type of institutions they provide support to. This data is based on the research held by the “Donors Forum” for the Ministry of Economic Development of RF in April 2013 and includes all the NPFs registered and actively working in Russia: www.donorsforum.ru/wp-content/uploads/2013/04/doklad_2013.pdf Nursing Homes Orphanages Hospitals and Clinics Hospices Shelter for homeless Educational Institutions Religious Organizations 1 30 26 13 9 54 11
  • 12. 12 Over the years, whilst striving to overcome the stereotype and spread the idea of how important it is not to ignore the needs of terminally ill, but rather to use our knowledge and our assets to make them live a better life, we have worked out different ways of fundraising. How we fundraise: Commercial projects – such as publishing series of unique literature collections, with all the sales revenue going to the VERA Fund. Events – with some of them having become an annual tradition, we organize concerts, performances, festivals and auctions, working alongside with our partners – musicians, directors, magazines and commercial companies who provide the necessary technical budget. In 2008 our board has established an Endowment program, which has been enlarging since and is managed by 3 major financial companies in Russia.
  • 13. 13 Where the money comes from The list of Legal entities supporting our activities is wide and includes Russian companies as well as international corporations operating in Russia. For more details please refer to our webpage: http://www.hospicefund.ru/fund/partners/ As the chart shows, the largest source of charity funds incoming to VERA is Individual donations. Legal enitities’ donations Indivi dua l dona tions Endowment Commercial projects Events Rollover from previous period €  819 841 €  200 500 €  16 743 €  59 000 €  13 155 €  2 436 930 Incoming funds 2014
  • 14. 14 Crowd funding In 2014, crowd funding has become one of key fundraising instruments in Russia. The crowd funding project raising money our little patients for collecting is currently run at planeta.ru/campaigns/6706. It has attracted 1200 donors and over 2,000,000 rub (60,000 euro) within two months. VERA Hospice Fund is the first Russian NGO to have raised such a significant amount for charity purposes in this period of time with the help of crowd funding. One of our most successful instruments is fundraising is social network: eg. Facebook We are currently undergoing registration procedure www.globalgiving.org, a major international charity fundraising web site.
  • 15. 15 VERA Fund’s regional coverage We currently provide aid to over 30 hospices in Russia — only those that are transparent, that guarantee quality and professionalism in their work; those eager to learn and grow and those sharing our vision of palliative care, which includes 247 access for friends and relatives and are 100 % free of charge. Hospices in Tula, Izhevsk, Saint Petersburg, Lipetsk, Kazan’, Chelyabinsk, Taganrog, Tula, Perm, Pskov, Moscow, Volgograd, Tyumen and Kiev (Ukraine). Patients included in VERA’s childcare program come from all over Russia and CIS. Tula Chelyabinsk Volgograd Izhevsk Taganrog Tyumen Saint Petersburg Perm Kiev (Ukraine) Lipetsk Moscow Pskov Kazan’
  • 16. 16 What we see as activity headlines for 2015–2016 Further increase of incoming funds flow via expanding to the regions and creating regional fundraising network; Enlarging our endowment that is targeted to provide for salaries and social care for hospice staff. Completing the construction of The First Children Hospice in Moscow by 2016 and meanwhile recruit and train its future staff. Expanding Childcare program further into the regions. Proceeding with educational programs for VERA hospices all over Russia. Working together with municipal and federal authorities, amend certain medical care regulations to include palliative care needs and patients rights. Actively develop the Professional all-Russian Hospice Care Association which was established by Vera Funds’ initiative in 2014. Launching a 24-hour hotline meant to assist terminal patients and their families. Attracting more volunteers to hospices all over Russia.
  • 17. 17 Every day we work on making our purpose trustworthy and our help efficient. We are proud of what has been done and look forward to doing much more. Our largest asset is people. That includes our patients, hospices staff, foundation employees and our guardians. The VERA Hospice Charity Fund’s Board of Trustees includes Russia’s prominent economists and businessmen, scientists and medical doctors, artists and journalists, writers, directors and musicians. These people have joined together to make things better for those who cannot be cured, but can still be helped
  • 18. 18 VERA Fund’s international supporters and inspirers include Dr. Satbir Jassal, Chief Physician at Rainbow Hospice for children and young people in East Midland (sat.jassal@gmail.com), Mark Hunter, Medical Director at Acorns Childrens Hospices Trust (mfhunt@globalnet.co.uk) and Robert Thycross, Director of the World Health Organization’s Collaborating Centre for Palliative Care from 1988–2005 (robtwy@yahoo.com). Over the last year I have had the great pleasure of working very closely with the Hospice Foundation Vera, in Moscow. They have pioneered the care of the dying children within the Moscow having adopted many of the concepts and advice from around the world and then adapting it for the Russian children and families. I would strongly commend the type of work that they have started to do and the ideas that they have to bring Moscow and Russia up to world standard in looking after its life limited and dying children. As an organisation they have excellent core administrative structure as well as some of the most hard-working and a visionary doctors and nurses that I have ever met. Any support that you give this organisation will be greatly appreciated and every rouble will be spent wisely to benefit the people of Moscow. Dr Sat Jassal MBE B Med Sci, BM, BS, DRCOG, Dip Pal Med, DFSRH, PGCME, MRCGP, FRCPCH (Hon) Medical Director Rainbows Children’s Hospice Lark Rise, Loughborough, Leicestershire, UK 01509 230800
  • 19. 19 VERA Hospice Charity Fund Details TELEPHONE: +7 (965) 372-57-72 E-MAIL: fund@hospicefund.ru LEGAL ADDRESS: Kooperativnaya ul., d. 10, kv. 12, Moscow, Russia 119048 ACTUALfund@hospicefund.ru ADDRESS: Dovatora ul., d. 10 (inside Moscow Hospice No. 1 building), Moscow, Russia 119048 Recipient: Fund “Vera” Bank: Sberbank of Russia OAO Moscow Account number: 40703810438180133973 (in Russian roubles) TIN 7724296034, KPP 770401001 BIC 044525225 Correspondent account: 30101810400000000225 Principal State Registration Number: 1067799030826 (certificate 77 № 008801539 of 28/11/06) By donating to Vera, you confirm that you agree to the donation terms and conditions.
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