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SOCIAL MEDIA
& HEALTHCARE
IRIS THIELE ISIP TAN MD, MSC
Professor, UP College of Medicine
Chief, UP Medical Informatics Unit
Director, UP Manila Interactive Learning Center
@endocrine_witch
Patients are increasingly using online social networks to
connect with other patients and healthcare professionals
PEER-TO-PEER HEALTHCARE
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
Isip Tan ITC, Madamba H,
Balandra RJ. Acta Medica
Philippina 2016;50(4):
295-301
Content Analysis
of Tweets of
Pregnant Women
with Diabetes
Concepcion AO, Garcia
AM, Isip Tan ITC,
Fernando G
Reliability of Health
Information
Websites for Breast
Cancer in Twitter
The Main Sources of Anxiety &
Dissatisfaction of Women with
Gestational Diabetes Determined by
Content Analysis of their Blogs
Automated Sentiment Analysis
of Commentaries in a HCP-
moderated Facebook Page in
R programming Language
Evaluation of Facebook’s Capacity
as a Platform for Health
Communication: A Process
Evaluation Strategy
Social Media & Healthcare
Lung Cancer-related
Twitter Activity among
Patients & Healthcare
Professionals
Garcia AM, Concepcion
AO, Isip Tan ITC,
Fernando G
Li, R & Isip Tan ITC
Obrero RJ & Isip Tan ITC
Tiongson N & Isip Tan ITC
SYMPLUR HEALTHCARE HASHTAGS PROJECT
Allow exploration by either hashtag
or healthcare subject matter
Thomas M. Lee @tmlfox
http://www.symplur.com/blog/healthcare-hashtags-social-project/
#HEALTHXPH
STANFORD MEDICINE X & SYMPLUR
SOCIAL MEDIA ANALYTICS RESEARCH CHALLENGE
… precious little is known
about health system or
societal factors that hinder
compliance and what can
be done to improve it.”
“
Nielsen KK, Kapur A, Damm P, de Courten M & Bygbjerg IC.
BMC Pregnancy and Childbirth 2014, 14:41.
PREGNANCY & DIABETES
Describe health beliefs of pregnant
women with diabetes using tweets
OBJECTIVES
Describe how information on diabetes in
pregnancy is shared on Twitter
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
#diabetes
#pregnancy
#gestationaldiabetes
SYMPLUR
Signals
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
RESULTS
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
SEARCH yielded
6433 tweets
1024 tweets
by patients
524 tweets from manual
scan of 4260 tweets
1548 tweets
coded for content
184 status tweets
79 women
Pregestational diabetes
292 status tweets
206 women
Gestational diabetes
239 tweets with links
93 unique domains
24 women T1D
16 wrote blogs
4 women from Philippines
Status tweets
Personal
Temporal
Location
Mechanical
Physical
Work
Automated
Activity
Dann, S. Twitter content classification. First Monday, 15(12). 2010. doi:10.5210/fm.v15i12.2745
Rosenstock IM, Becker VJ, Marshall H (1988). Social learning theory and the
health belief model. Health Education & Behaviour 15(2):175-183
Modifying
variables
Perceived
seriousness
Perceived
susceptibility
Perceived benefits vs
perceived barriers
Perceived threat
Self-efficacy
Cues to action
Likelihood of
engaging in health-
promoting behavior
HEALTH BELIEF MODEL
Tweets
0
40
80
120
160
Susceptibility Benefits Cues to action Severity Barriers Self efficacy
Pregestational diabetes
Gestational diabetes
Distribution of status tweets mapped to constructs
of the Health Belief Model comparing women with
gestational and pregestational diabetes
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Perceived severity
So, my baby weighs 9 pounds at only 36 weeks gestation.
Hmmmmm..... #pregnancy
#SlightlyApprehensive #birth #gestationaldiabetes
Mom has had way way way too many carbs today. Poor baby
is gonna be on sugar overload. #GestationalDiabetes :(
Heading to an ultrasound to see how big baby girl is...
eeeeeek! #29weeks #gestationaldiabetes
Opinion of how serious a condition and its consequences are
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Logically I know #GestationalDiabetes is not my
fault...pregnancy hormones make it impossible to be logical
#PregnancyProblems #hormonal
Why do I have cravings for sweets a week before my Glucose
Tolerance test?! :P Super worried about #gestationaldiabetes :/
Help me, Oh Lord!
Damn Pregnancy hormones! Kung kelan malapit na! T_T
#gestationaldiabetes #30weeks
Perceived susceptibility
Opinion of chances of getting a condition
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Meat sauce over baked garlic cabbage. #lowcarb
#gestationaldiabetes
Healthy snack. #29weekspregnant #gestationaldiabetes
#healthy #snack #cucumber #carrot #yoghurt
I will do anything for love -- poke my finger 7x a day and get
shots 4x a day #gestationaldiabetes #babylove
Found out I can eat air popped popcorn!! #gestationaldiabetes
woohoo! (Little things make me happy these days)
Perceived benefits
Belief in the efficacy of the advised action to reduce risk
or seriousness of impact
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Perceived barriers
Cheating on a diet and feeling like a murderer while you
frantically hide the evidence! #gestationaldiabetes #sucks
#nosugar #thestruggle
Omg today is national cream filled donut day and I can't
participate because of stupid #gestationalDiabetes, that’s just
crap!
I am sick of this frickin' diet... Just hate it #PregnancyProblems
#gestationaldiabetes #GDM #pregnant
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Opinion of the tangible and psychological costs
of the advised action
Tweets (gestational diabetes)
Food restriction & hunger 61%
Dealing with emotions 9%
Blood glucose monitoring 7.6%
Clinic consults 6.2%
Lab tests 4%
Tweets (pregestational diabetes)
Emotional 33% Dietary restrictions 23.5%
Perceived Barriers
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Perceived barriers
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Opinion of the tangible and psychological costs of the advised action
I miss my mum and sisters.feeling emotional n scared. being
pregnant without them to help is no fun!#diabetes #pregnancy
Well.. I could use a vacation from needles and not-as-low-as-
the-drs-would-like blood sugars today...*sigh* #diabetes
#pregnancy #insulin
Diabetes sucks! #diabetes #diabetics #bloodsugars #pregnancy
#diabeticpregnancy #troubles
WHAT?! After 50 units of #insulin, a 12.1mmol/L
result?!?! UGH!! #pregnancy #diabetes
Stupid elevated after lunch sugar number. Hitting the
treadmill. #gestationaldiabetes #32weeks
#30weekspregnant #babybump #gestationaldiabetes
#walking #stayfit #stayhealthy #iloveexercise
Cues to action
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Strategies to activate "readiness"
Self-efficacy
Hopped on the treadmill for 30 min after work, made dinner, AND walked
the dogs tonight. Woooooot! #kickass #gestationaldiabetes #30weeks
Been monitoring my blood sugar today. Whooped that elevated sugar's
butt! #gestationaldiabetes #aintgotshitonme #pregnancyproblems
Tested my sugar after dinner and it was well within range. #Victorious
#GestationalDiabetes #CelebrateTheSmallThings
Proud that I've learned to inject insulin by myself - have overcome my
deep fear of needles! #gestationaldiabetes
Two miles done and done. Before work. Before 6am. Woooo!
#gestationaldiabetes #kickass #pregnant
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Confidence in one's ability to take action
Pass along tweets
Retweets
User generated content
Endorsement
Dann, S. Twitter content classification. First Monday, 15(12). 2010. doi:10.5210/fm.v15i12.2745
Health on the Net Foundation
https://www.hon.ch/
Health on the Net Foundation
https://www.hon.ch/
9/93 (9.7%) unique domains had HON Code seal
Women with preexisting diabetes shared
blog posts (67%)
Women with gestational diabetes shared links
from organisations or news sites(64%)
Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
Examining tweets of pregnant
women with diabetes identifies
issues important to them
Women with gestational diabetes
and preexisting diabetes had
differing perceptions of barriers
Conclusion
IRIS THIELE ISIP TAN MD, MSC
Professor, UP College of Medicine
Chief, UP Medical Informatics Unit
Director, UP Manila Interactive Learning Center
@endocrine_witch

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Social Media & Healthcare

  • 1. SOCIAL MEDIA & HEALTHCARE IRIS THIELE ISIP TAN MD, MSC Professor, UP College of Medicine Chief, UP Medical Informatics Unit Director, UP Manila Interactive Learning Center @endocrine_witch
  • 2. Patients are increasingly using online social networks to connect with other patients and healthcare professionals PEER-TO-PEER HEALTHCARE Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 3. Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4): 295-301 Content Analysis of Tweets of Pregnant Women with Diabetes Concepcion AO, Garcia AM, Isip Tan ITC, Fernando G Reliability of Health Information Websites for Breast Cancer in Twitter The Main Sources of Anxiety & Dissatisfaction of Women with Gestational Diabetes Determined by Content Analysis of their Blogs Automated Sentiment Analysis of Commentaries in a HCP- moderated Facebook Page in R programming Language Evaluation of Facebook’s Capacity as a Platform for Health Communication: A Process Evaluation Strategy Social Media & Healthcare Lung Cancer-related Twitter Activity among Patients & Healthcare Professionals Garcia AM, Concepcion AO, Isip Tan ITC, Fernando G Li, R & Isip Tan ITC Obrero RJ & Isip Tan ITC Tiongson N & Isip Tan ITC
  • 4. SYMPLUR HEALTHCARE HASHTAGS PROJECT Allow exploration by either hashtag or healthcare subject matter Thomas M. Lee @tmlfox http://www.symplur.com/blog/healthcare-hashtags-social-project/ #HEALTHXPH
  • 5. STANFORD MEDICINE X & SYMPLUR SOCIAL MEDIA ANALYTICS RESEARCH CHALLENGE
  • 6. … precious little is known about health system or societal factors that hinder compliance and what can be done to improve it.” “ Nielsen KK, Kapur A, Damm P, de Courten M & Bygbjerg IC. BMC Pregnancy and Childbirth 2014, 14:41. PREGNANCY & DIABETES
  • 7.
  • 8. Describe health beliefs of pregnant women with diabetes using tweets OBJECTIVES Describe how information on diabetes in pregnancy is shared on Twitter Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 9. #diabetes #pregnancy #gestationaldiabetes SYMPLUR Signals Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 10. RESULTS Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301 SEARCH yielded 6433 tweets 1024 tweets by patients 524 tweets from manual scan of 4260 tweets 1548 tweets coded for content 184 status tweets 79 women Pregestational diabetes 292 status tweets 206 women Gestational diabetes 239 tweets with links 93 unique domains 24 women T1D 16 wrote blogs 4 women from Philippines
  • 11. Status tweets Personal Temporal Location Mechanical Physical Work Automated Activity Dann, S. Twitter content classification. First Monday, 15(12). 2010. doi:10.5210/fm.v15i12.2745
  • 12. Rosenstock IM, Becker VJ, Marshall H (1988). Social learning theory and the health belief model. Health Education & Behaviour 15(2):175-183 Modifying variables Perceived seriousness Perceived susceptibility Perceived benefits vs perceived barriers Perceived threat Self-efficacy Cues to action Likelihood of engaging in health- promoting behavior HEALTH BELIEF MODEL
  • 13. Tweets 0 40 80 120 160 Susceptibility Benefits Cues to action Severity Barriers Self efficacy Pregestational diabetes Gestational diabetes Distribution of status tweets mapped to constructs of the Health Belief Model comparing women with gestational and pregestational diabetes Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 14. Perceived severity So, my baby weighs 9 pounds at only 36 weeks gestation. Hmmmmm..... #pregnancy #SlightlyApprehensive #birth #gestationaldiabetes Mom has had way way way too many carbs today. Poor baby is gonna be on sugar overload. #GestationalDiabetes :( Heading to an ultrasound to see how big baby girl is... eeeeeek! #29weeks #gestationaldiabetes Opinion of how serious a condition and its consequences are Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 15. Logically I know #GestationalDiabetes is not my fault...pregnancy hormones make it impossible to be logical #PregnancyProblems #hormonal Why do I have cravings for sweets a week before my Glucose Tolerance test?! :P Super worried about #gestationaldiabetes :/ Help me, Oh Lord! Damn Pregnancy hormones! Kung kelan malapit na! T_T #gestationaldiabetes #30weeks Perceived susceptibility Opinion of chances of getting a condition Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 16. Meat sauce over baked garlic cabbage. #lowcarb #gestationaldiabetes Healthy snack. #29weekspregnant #gestationaldiabetes #healthy #snack #cucumber #carrot #yoghurt I will do anything for love -- poke my finger 7x a day and get shots 4x a day #gestationaldiabetes #babylove Found out I can eat air popped popcorn!! #gestationaldiabetes woohoo! (Little things make me happy these days) Perceived benefits Belief in the efficacy of the advised action to reduce risk or seriousness of impact Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 17. Perceived barriers Cheating on a diet and feeling like a murderer while you frantically hide the evidence! #gestationaldiabetes #sucks #nosugar #thestruggle Omg today is national cream filled donut day and I can't participate because of stupid #gestationalDiabetes, that’s just crap! I am sick of this frickin' diet... Just hate it #PregnancyProblems #gestationaldiabetes #GDM #pregnant Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301 Opinion of the tangible and psychological costs of the advised action
  • 18. Tweets (gestational diabetes) Food restriction & hunger 61% Dealing with emotions 9% Blood glucose monitoring 7.6% Clinic consults 6.2% Lab tests 4% Tweets (pregestational diabetes) Emotional 33% Dietary restrictions 23.5% Perceived Barriers Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 19. Perceived barriers Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301 Opinion of the tangible and psychological costs of the advised action I miss my mum and sisters.feeling emotional n scared. being pregnant without them to help is no fun!#diabetes #pregnancy Well.. I could use a vacation from needles and not-as-low-as- the-drs-would-like blood sugars today...*sigh* #diabetes #pregnancy #insulin Diabetes sucks! #diabetes #diabetics #bloodsugars #pregnancy #diabeticpregnancy #troubles WHAT?! After 50 units of #insulin, a 12.1mmol/L result?!?! UGH!! #pregnancy #diabetes
  • 20. Stupid elevated after lunch sugar number. Hitting the treadmill. #gestationaldiabetes #32weeks #30weekspregnant #babybump #gestationaldiabetes #walking #stayfit #stayhealthy #iloveexercise Cues to action Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301 Strategies to activate "readiness"
  • 21. Self-efficacy Hopped on the treadmill for 30 min after work, made dinner, AND walked the dogs tonight. Woooooot! #kickass #gestationaldiabetes #30weeks Been monitoring my blood sugar today. Whooped that elevated sugar's butt! #gestationaldiabetes #aintgotshitonme #pregnancyproblems Tested my sugar after dinner and it was well within range. #Victorious #GestationalDiabetes #CelebrateTheSmallThings Proud that I've learned to inject insulin by myself - have overcome my deep fear of needles! #gestationaldiabetes Two miles done and done. Before work. Before 6am. Woooo! #gestationaldiabetes #kickass #pregnant Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301 Confidence in one's ability to take action
  • 22. Pass along tweets Retweets User generated content Endorsement Dann, S. Twitter content classification. First Monday, 15(12). 2010. doi:10.5210/fm.v15i12.2745 Health on the Net Foundation https://www.hon.ch/
  • 23. Health on the Net Foundation https://www.hon.ch/ 9/93 (9.7%) unique domains had HON Code seal Women with preexisting diabetes shared blog posts (67%) Women with gestational diabetes shared links from organisations or news sites(64%) Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301
  • 24. Examining tweets of pregnant women with diabetes identifies issues important to them Women with gestational diabetes and preexisting diabetes had differing perceptions of barriers Conclusion
  • 25. IRIS THIELE ISIP TAN MD, MSC Professor, UP College of Medicine Chief, UP Medical Informatics Unit Director, UP Manila Interactive Learning Center @endocrine_witch