Don't miss our upcoming webinars! Subscribe today! In this webinar: Join Alies, a patient partner, and Ambreen, a patient-oriented researcher, as they explore ways to listen and learn from seldom heard patient populations. Both speakers share their experiences in the world of patient engagement, discuss the need to include patient-identified priorities in the delivery of healthcare and reflect on the current structure of patient partnerships which can be exclusionary. As a way forward, Alies and Ambreen introduce Equity-Mobilizing Partnerships in Community (EMPaCT) as an approach which strives to centre diverse patient voices, create a culture of listening and learning from the experiences of patient partners and develop a learning healthcare system ecosystem which is responsive to the needs of all patients in order to improve health outcomes, in particular health equity. View the YouTube video: https://youtu.be/Yx762mVjML8 Follow CCSN on social media: Twitter - https://twitter.com/survivornetca Facebook - https://www.facebook.com/CanadianSurvivorNet Instagram: https://www.instagram.com/survivornet_ca/ Pinterest - https://www.pinterest.com/survivornetwork

1. Listening and Learning with EMPaCT
– exploring ways to partner with
those who are seldom heard.
With Alies and Ambreen
Alies Maybee
Experienced Patient Partner, Co-
founder, Patient Advisors Network
(PAN)
Twitter: @AMaybee
Ambreen Sayani, MD, PhD
Patient-Oriented Researcher at
Women's College Hospital,
Toronto, Canada.
Twitter: @SayaniAmbreen

2. Agenda
Introductions
Patient
Partnerships in
Healthcare
EMPaCT
1 2 3

3. Who am I and how did I get here?

4. Who am I and how did I get here?

5. Who am I and how did I get here?

6. Who am I and how did I get here?
Collector of pearls
Disruptive innovator

7. What brings us together

8. Landscape of patient engagement
• Across Canada
• Across healthcare
• Across types of activities

9. What are patient partnerships in
healthcare?

10. Challenges
• Language and culture
• Place and space
• Practical considerations

11. COVID19 Pandemic
• Disproportionate burden in
racialized and lower income
communities;
• Structural inequalities already
present have been widened;
• Voices already missing from
decision-making have been left
further excluded;
• Deliberate plan to engage and
build partnerships with diverse
communities is needed.

12. Challenging the concept
• Who is seldom heard?
• Becoming inclusionary versus exclusionary;
• Disrupting norms;
• Listening to the community;
• Learning from the community what these best
practices look like.

13. Opportunities
Relationships
Funding
Experienced
partnerships
Recognition
of need
Support
Knowledge
to date
Confluence
of
resources

14. What led to EMPaCT?

15. What led to EMPaCT?
• Action towards health
inequities;
• Structural violence –
recognition that the
inequitable distribution of
the determinants of
health leads to and
perpetuates health
inequities
Source: Ford-Gilboe, M. Et al. (2018). How Equity‐Oriented Health Care Affects Health: Key Mechanisms and Implications for Primary Health Care Practice and Policy. The
Milbank Quarterly.

16. What led to EMPaCT?
• Regardful - caring for
patients 'regardful' of their
differences
• Equality is not the same as
equity
Source: Richardson, S., & Williams, T. (2007). Why Is Cultural Safety Essential in Health Care Patients’ Rights. Medicine and Law, 26, 699–708.

17. What led to EMPaCT?
• Listen, learn, reflect and
co-build a community of
practice

18. Pathways to change

19. Exploring ways to listen and learn

20. Changing the places and spaces where
we build EMPaCT
CHANGE

21. Changing the places and spaces where
we build EMPaCT
CHANGE

22. Changing the places and spaces where
we build EMPaCT
CHANGE

23. Changing the places and spaces where
we build EMPaCT
CHANGE

24. Building safe virtual spaces

25. Key messages
• Building community one relationship at a time;
• Consider issues of access during COVID19, in particular
equitable digital enablement;
• Listening and learning how to create safe and regardful
spaces and places.

26. Acknowledgments
Aisha Lofters, MD PhD CCFP, Associate Professor and Clinician Scientist, Department of Family and Community Medicine, University of
Toronto. Chair in Implementation Science, Peter Gilgan Centre for Women’s Cancers, Women’s College Hospital.
Jay Shaw, PT, PhD, Scientist at Institute for Health System Solutions and Virtual Care, Women's College Research Institute, Women's
College Hospital, Toronto, ON.
Stephen Hwang, MD MPH, Director, MAP Centre for Urban Health Solutions, Li Ka Shing Knowledge Institute, St. Michael’s Hospital,
Toronto, ON. Professor, Department of Medicine, University of Toronto, Toronto, ON.
Gary Bloch, MD CCFP FCFP, Family physician with St. Michael’s Hospital and co-founder Inner City Health Associates & Health Providers
Against Poverty, Toronto, ON.
Janet Parsons, PT, MSc, PhD, Scientist at the Applied Health Research Centre, and the Li Ka Shing Knowledge Institute, and Co-Director,
Research Training Centre, St. Michael’s Hospital, Unity Health Toronto. Associate Professor, Department of Physical Therapy and
Rehabilitation Sciences Institute, University of Toronto, ON.
Jackie Manthorne, Patient Partner, CEO, Canadian Cancer Survivor Network.
Erika Nicholson, MHS, Director, Screening and Early Detection at the Canadian Partnership Against Cancer.
Dara Gordon, MPH, Co-Chair, Equity Committee, Institute for Health System Solutions and Virtual Care (WIHV)
Women’s College Hospital, Toronto, ON.
Shivani Chandra, MSc, Co-Chair, Equity Committee, Institute for Health System Solutions and Virtual Care (WIHV)
Women’s College Hospital, Toronto, ON.
Ann Marie Corrado MSc, Innovation Spread & Scale Lead at the Peter Gilgan Centre for Women’s Cancers, Women's College Hospital,
Toronto, ON.

27. Listening and learning for EMPaCT
• alies.maybee@gmail.com; @AMaybee
• Ambreen.sayani@wchospital.ca; @SayaniAmbreen

28. Canadian Cancer Survivor Network
Contact Info
1750 Courtwood Crescent, Suite 210
Ottawa, ON K2C 2B5
Telephone / Téléphone : 613-898-1871
E-mail: jmanthorne@survivornet.ca or info@survivornet.ca
Website: www.survivornet.ca
Twitter: @survivornetca
Facebook: www.facebook.com/CanadianSurvivorNet
Instagram: @survivornet_ca
Pinterest: http://pinterest.com/survivornetwork/