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Guided self help for
Obsessive Compulsive
Disorder
Professor Karina Lovell
Aims of the workshop





What is guided self help?
Does guided self help work in OCD?
How is guided self help applied with
someone with OCD
Obsessive compulsive disorder







OCD is a major disorder and under recognized
public health problem.
Obsessive-compulsive disorder can occur at any
age but most often presents for the first time in
adolescence
Lifetime prevalence (1.9-3.0%)
There is evidence that without adequate
treatment the disorder tends to have a chronic
fluctuating course
Obsessions
Obsessions are repetitive, recurring thoughts,
ideas, images or impulses that are
experienced as intrusive and are usually
distressing or anxiety provoking. Such
thoughts are often centered on dirt and
contamination, accidental harm, illness,
aggression, sex, orderliness and perfection.
Compulsions
Compulsions: (rituals) are repetitive and
intentional acts and serve to reduce anxiety
the thoughts provoke. The person
recognizes that their behavior is excessive or
unreasonable.
Obsessions and compulsions
Obsessions
 Bodily fluids
 Asbestos
 Unspecified germs
 Disease specific
 Radiation
 Animal specific

Compulsions
 Washing excessively
 Avoidance
 Reassurance
 Magical numbers
What is guided self help








A self-administered intervention
Involves a health technology (book,
computer, audio tape)
Facilitated by a health professional
Role of facilitator is to guide, support,
review and monitor
What is guided self help




GSH is one of many interventions deemed
a low intensity intervention
Others include, telephone, computer
delivered, groups and internet delivery.
Rationale for alternative
delivery systems






Does not meet policy recommendations
Lack of therapist’s
Traditional service delivery
Poor access
High waiting lists
Stepped-care model


The model provides a framework in which to
organise the provision of services in order to
identify and access the most effective
interventions



Stepped care attempts to provide the most
effective but least intrusive treatments
appropriate to a person’s needs



The recommendations in the NICE guidance are
structured around the stepped-care model
STEPPED CARE MODEL

STEP 6 Inpatient care or intensive treatment
programmes. CAMHS Tier 4

STEP 5 Multidisciplinary teams with specific expertise in
management of OCD. CAMHS Tiers 3 and 4

STEP 4 Multidisciplinary care in primary or secondary care.
CAMHS Tiers 2 and 3

STEP 3 GPs and primary care team, primary care mental health
worker, family support team. CAMHS Tiers 1 and 2

STEP 2 GPs, practice nurses, school health advisors, general health
settings. CAMHS Tier 1

STEP 1 Individuals, public organisations, NHS
Treatment options for adults with OCD
Mild functional
impairment

Brief CBT (+ERP)
< 10 therapist hours
(individual
or group
formats)

Moderate functional
impairment

Offer choice of:
more intensive CBT
(+ERP)
>10 therapist hours
or
course of an SSRI

Severe functional
impairment

Inadequate
response at 12
weeks

Multidisciplinary
review

Offer combined
treatment of
CBT (+ERP)
and an SSRI
Patient cannot engage in/CBT
(+ERP) is inadequate
Low intensity interventions definition






Less than 10 hours of therapist time
per patient
CBT includes exposure and response
prevention (ERP)
The intensity of the intervention is
dependent upon the degree of
functional impairment and patient
preference
Low intensity interventions


Brief individual CBT (including ERP) using
structured self help



Brief individual CBT (including ERP) by
telephone



Group CBT (including ERP)
Recommendations identified
as key priorities




All people with OCD should have
access to evidence-based treatments:
CBT including exposure and
response prevention (ERP) and/or
pharmacology
But, limited availability of CBT
Therapists
 Waiting times
 Access

Recommendations identified
as key priorities




CBT (including ERP) should be
offered in a variety of formats
Treatment programmes for formats
other than standard individual CBT
exist but have not been widely
disseminated (including guided self
help, telephone and groups)
Small group work


In small groups discuss your views on the
stepped care model recommended by the
NICE guidelines and the advantages and
disadvantages of guided self help.
Low intensity treatments – self-help
materials with minimal therapist
contact - The Evidence


Fritzler et al (1997) found that a third of
people with OCD made clinically significant
improvement with a CBT based self-help
manual and minimal therapist contact



Lovell (2005) uncontrolled study found self
help manuals and minimal therapist contact
with people with OCD promising
Low intensity treatments:
The Evidence







Lovell (2000) pilot study (CBT)
Taylor (2003) open study ( CBT with self help
book)
Griest (2002) RCT ( CBT- computer
accessed by telephone and work book)
Lovell (2005) RCT compared CBT by
telephone or face to face with adults with
OCD
Meta-analysis of treatment intensity for
CBT


Grouping Therapist hours/patient into bands

Treatment intensity Study

N

SMD

CI

arms

Low (<10 hrs)

11

261

.93

0.75 - 1.11

Medium (10-30)

22

461

1.44

1.29 - 1.59

High (> 30)

10

157

1.65

1.38 - 1.91




Medium, High > Low
Low works, medium and high work better
Self help materials











Wagner A. Up and down the worry hill: a children's book about obsessive
compulsive disorder and its treatment. New York: Lighthouse Press, 2002—
An illustrated book designed to help parents and professionals to explain
obsessive-compulsive disorder to younger children through the story of
"Casey," a young boy with the disorder
Wever C, Phillips N. The secret problem. Sydney: Shrink-Rap Press,
1996—A cartoon book that describes obsessive-compulsive disorder in
clear and simple language to help children, teenagers, and parents to
understand it and its treatment
Hyman B, Pedrick C. The OCD workbook: your guide to breaking free from
obsessive-compulsive disorder. Oakland, CA: New Harbinger Publications,
2005—A self help manual for adults and older adolescents, which guides
the patient through exposure with response prevention; includes advice for
family members
Veale D, Willson R. Overcoming obsessive compulsive disorder. London:
Constable & Robinson, 2005—A self help book suitable for adults and older
teenagers
Lovell, KOCD self help manual (available on request)
Schwartz JM. Brain lock: free yourself from obsessive compulsive
behaviour. New York: Harper Collins, 1997—A self treatment manual
suitable for adults and older adolescents
Application: self-help with
minimal therapist contact











Patient centred assessment
Involvement of families
Self help materials (which ones?)
Ongoing monitoring (process and
outcome measures)
Collaborative working
Includes exposure and response
prevention
20-40 minute sessions
Small group work




Discuss the self help resources that you
have used and would recommend?
Identify a spokesperson to feed back to
the larger group
Questions
Thank you for listening
Karina.Lovell@manchester.ac.uk

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OCD Action - Guided Self Help – Karina Lovell

  • 1. Guided self help for Obsessive Compulsive Disorder Professor Karina Lovell
  • 2. Aims of the workshop    What is guided self help? Does guided self help work in OCD? How is guided self help applied with someone with OCD
  • 3. Obsessive compulsive disorder     OCD is a major disorder and under recognized public health problem. Obsessive-compulsive disorder can occur at any age but most often presents for the first time in adolescence Lifetime prevalence (1.9-3.0%) There is evidence that without adequate treatment the disorder tends to have a chronic fluctuating course
  • 4. Obsessions Obsessions are repetitive, recurring thoughts, ideas, images or impulses that are experienced as intrusive and are usually distressing or anxiety provoking. Such thoughts are often centered on dirt and contamination, accidental harm, illness, aggression, sex, orderliness and perfection.
  • 5. Compulsions Compulsions: (rituals) are repetitive and intentional acts and serve to reduce anxiety the thoughts provoke. The person recognizes that their behavior is excessive or unreasonable.
  • 6. Obsessions and compulsions Obsessions  Bodily fluids  Asbestos  Unspecified germs  Disease specific  Radiation  Animal specific Compulsions  Washing excessively  Avoidance  Reassurance  Magical numbers
  • 7. What is guided self help     A self-administered intervention Involves a health technology (book, computer, audio tape) Facilitated by a health professional Role of facilitator is to guide, support, review and monitor
  • 8. What is guided self help   GSH is one of many interventions deemed a low intensity intervention Others include, telephone, computer delivered, groups and internet delivery.
  • 9. Rationale for alternative delivery systems      Does not meet policy recommendations Lack of therapist’s Traditional service delivery Poor access High waiting lists
  • 10. Stepped-care model  The model provides a framework in which to organise the provision of services in order to identify and access the most effective interventions  Stepped care attempts to provide the most effective but least intrusive treatments appropriate to a person’s needs  The recommendations in the NICE guidance are structured around the stepped-care model
  • 11. STEPPED CARE MODEL STEP 6 Inpatient care or intensive treatment programmes. CAMHS Tier 4 STEP 5 Multidisciplinary teams with specific expertise in management of OCD. CAMHS Tiers 3 and 4 STEP 4 Multidisciplinary care in primary or secondary care. CAMHS Tiers 2 and 3 STEP 3 GPs and primary care team, primary care mental health worker, family support team. CAMHS Tiers 1 and 2 STEP 2 GPs, practice nurses, school health advisors, general health settings. CAMHS Tier 1 STEP 1 Individuals, public organisations, NHS
  • 12. Treatment options for adults with OCD Mild functional impairment Brief CBT (+ERP) < 10 therapist hours (individual or group formats) Moderate functional impairment Offer choice of: more intensive CBT (+ERP) >10 therapist hours or course of an SSRI Severe functional impairment Inadequate response at 12 weeks Multidisciplinary review Offer combined treatment of CBT (+ERP) and an SSRI Patient cannot engage in/CBT (+ERP) is inadequate
  • 13. Low intensity interventions definition    Less than 10 hours of therapist time per patient CBT includes exposure and response prevention (ERP) The intensity of the intervention is dependent upon the degree of functional impairment and patient preference
  • 14. Low intensity interventions  Brief individual CBT (including ERP) using structured self help  Brief individual CBT (including ERP) by telephone  Group CBT (including ERP)
  • 15. Recommendations identified as key priorities   All people with OCD should have access to evidence-based treatments: CBT including exposure and response prevention (ERP) and/or pharmacology But, limited availability of CBT Therapists  Waiting times  Access 
  • 16. Recommendations identified as key priorities   CBT (including ERP) should be offered in a variety of formats Treatment programmes for formats other than standard individual CBT exist but have not been widely disseminated (including guided self help, telephone and groups)
  • 17. Small group work  In small groups discuss your views on the stepped care model recommended by the NICE guidelines and the advantages and disadvantages of guided self help.
  • 18. Low intensity treatments – self-help materials with minimal therapist contact - The Evidence  Fritzler et al (1997) found that a third of people with OCD made clinically significant improvement with a CBT based self-help manual and minimal therapist contact  Lovell (2005) uncontrolled study found self help manuals and minimal therapist contact with people with OCD promising
  • 19. Low intensity treatments: The Evidence     Lovell (2000) pilot study (CBT) Taylor (2003) open study ( CBT with self help book) Griest (2002) RCT ( CBT- computer accessed by telephone and work book) Lovell (2005) RCT compared CBT by telephone or face to face with adults with OCD
  • 20. Meta-analysis of treatment intensity for CBT  Grouping Therapist hours/patient into bands Treatment intensity Study N SMD CI arms Low (<10 hrs) 11 261 .93 0.75 - 1.11 Medium (10-30) 22 461 1.44 1.29 - 1.59 High (> 30) 10 157 1.65 1.38 - 1.91   Medium, High > Low Low works, medium and high work better
  • 21. Self help materials       Wagner A. Up and down the worry hill: a children's book about obsessive compulsive disorder and its treatment. New York: Lighthouse Press, 2002— An illustrated book designed to help parents and professionals to explain obsessive-compulsive disorder to younger children through the story of "Casey," a young boy with the disorder Wever C, Phillips N. The secret problem. Sydney: Shrink-Rap Press, 1996—A cartoon book that describes obsessive-compulsive disorder in clear and simple language to help children, teenagers, and parents to understand it and its treatment Hyman B, Pedrick C. The OCD workbook: your guide to breaking free from obsessive-compulsive disorder. Oakland, CA: New Harbinger Publications, 2005—A self help manual for adults and older adolescents, which guides the patient through exposure with response prevention; includes advice for family members Veale D, Willson R. Overcoming obsessive compulsive disorder. London: Constable & Robinson, 2005—A self help book suitable for adults and older teenagers Lovell, KOCD self help manual (available on request) Schwartz JM. Brain lock: free yourself from obsessive compulsive behaviour. New York: Harper Collins, 1997—A self treatment manual suitable for adults and older adolescents
  • 22. Application: self-help with minimal therapist contact        Patient centred assessment Involvement of families Self help materials (which ones?) Ongoing monitoring (process and outcome measures) Collaborative working Includes exposure and response prevention 20-40 minute sessions
  • 23. Small group work   Discuss the self help resources that you have used and would recommend? Identify a spokesperson to feed back to the larger group
  • 25. Thank you for listening Karina.Lovell@manchester.ac.uk