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Barriers and Enablers Associated with Differentiated Models of
ART Distribution at the Community Level: A Three-Country Study
Nikki Davis1
, Malia Duffy2
, Sabrina Eagan2
, Melissa Sharer1, 3
, Ugochukwu Amanyeiwe4
1
JSI Research & Training Institute, Inc. Arlington, VA, United States, 2
JSI Research & Training Institute, Inc., Boston, MA, United States,
3
St. Ambrose University, Davenport, Iowa, United States, 4
United States Agency for International Development, Washington, D.C., United States
Fifth Global Symposium on Health Systems Research • Liverpool, UK • October 8-12, 2018
This publication is made possible by the generous support of the American people through the U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) with the United States Agency for International Development (USAID) under the Cooperative
Agreement Strengthening High Impact Interventions for an AIDS-free Generation, number AID-OAA-A-14-00046. The information provided does not necessarily reflect the views of USAID, PEPFAR, or the U.S. Government.
Background
In an effort to expand access to antiretroviral treatment (ART), countries across sub-Saharan Africa have begun to implement and scale up
differentiated approaches to ART distribution, particularly at the community level. These distribution models are typically designed to cater
to stable adult patients and aim to bring ART closer to where patients live, which, in turn, serves to decongest clinics and reduce the overall
strain on a country’s health system. While documentation on the results of these models exists, there is limited
information on the specific barriers and enablers that have impacted the implementation of such models.
This cross-country study describes various models of differentiated ART distribution and the barriers and enablers associated with their
implementation.
Methodology
The assessment was conducted between October 2016 and November
2017 and aimed to document existing models of differentiated ART
distribution and their associated barriers and enablers in three countries:
South Africa
Uganda
Zimbabwe
These three countries were chosen because of their varied HIV prevalence,
different strengths of their overall health system, and the fact that they
were implementing differentiated models at the community level.
The research team conducted the assessment utilizing a
qualitative participatory action approach to uncover a
comprehensive understanding of barriers and enablers associated
with the implementation of differentiated models for ART
distribution. Data was collected through semistructured interviews
and focus group discussions with 163 participants across
the three countries. Respondents were multilevel stakeholders
representing policy, programmatic, provider, and patient
perspectives.
Conclusions
While differentiated models of ART distribution aim to broaden
patient access to ART, models that provide these services at the
community level have additional challenges and considerations
that should be assessed and planned for prior to implementation.
Two important barriers seen across all countries assessed included
stigma and poor linkage to care; considerations for addressing
these barriers should be included in the design of the models.
Peer support and education for both patients and providers were
noted as important drivers of the success of community models.
Peer support was a desirable element of some of these models for
patients, and providers reported increased support for community
interventions as the programs evolved and the gains became
more apparent. Intensive education at the front-end of scale-up
can help providers effectively market the community-level models
and help patients pick a model that would work best for them.
Understanding these barriers and enablers will help country
programs effectively and efficiently implement differentiated
models of ART distribution to fit varying contexts, and allow
for rapid scale-up, resulting in expanded access to ART and
the ability to better meet the demands of patients on ART on
a global level.
Results
Community models for ART distribution typically faced additional
challenges and considerations due to the decentralization of services
outside of the health facility and into the community, making oversight
and management a more difficult process. Respondents discussed
multiple barriers and enablers associated with the implementation
of these programs and often found effective ways to address barriers
and harness enablers in order to implement each model.
Enablers
Patient and Provider Education was cited by respondents as
absolutely necessary for successful implementation. Once patients
were oriented to the available models, they were able to choose
the one that best fit their needs. Since providers are the ones who
“market” the idea of enrolling in a differentiated model of ART
distribution to patients, it is key for providers to not only buy in to
the models but to also have a clear understanding of models in
order to properly identify patients for enrollment.
Peer Support was the most-cited enabler for implementing
community-level models. This factor was most often associated with
the Community Adherence Club model which has an inherent
element of peer support.
Both Barriers and Enablers
Provider Attitudes were often described as a common barrier before
and during the early stages of implementation, but later became an
enabler once positive outcomes such as improved patient adherence
or reduced workloads for clinic staff began to emerge.
Barriers
Stigma and Discrimination is an inherent issue associated with
community-level models. Because patients are receiving services in
the community, many expressed concern that their HIV status was
likely to be exposed.
Poor Linkage to Care was cited most often by health care providers
as a potential barrier to implementing differentiated models of ART
distribution at the community level. Many providers expressed fear
that community-level models reduce their ability to monitor patients
routinely and effectively.
Differentiated Models of ART Distribution are
mechanisms through which the dispensing of ART
is decentralized. These models aim to expand ART
access―usually for stable patients―by providing
multiple options through which they can collect
their ART less frequently and/or closer to home.
Community Models Of ART Distribution Explored
Community
Adherence Clubs
Groups meet in the community and
members take turns collecting everyone’s
ART from the facility each month and
bringing it back to the group.
Outreach
Health facility staff provide ART
distribution services to remote communities
or patients with transport challenges. Also
includes ART distribution at worksites.
Community
Distribution Points
Clients pick up ART from a pre-identified
distribution point in the community,
such as a church, meeting hall,
or retail pharmacy.
!
Peer
Support
Patient and
Provider Education
Provider and
Patient Attitudes
Poor Linkage
to Care
Stigma and
Discrimination
ENABLERS BARRIERS
HSR_conference poster_press ready_092818.indd 1 9/28/18 10:59 AM

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Barriers and Enablers Associated with Differentiated Models of ART Distribution at the Community Level: A Three-Country Study

  • 1. Barriers and Enablers Associated with Differentiated Models of ART Distribution at the Community Level: A Three-Country Study Nikki Davis1 , Malia Duffy2 , Sabrina Eagan2 , Melissa Sharer1, 3 , Ugochukwu Amanyeiwe4 1 JSI Research & Training Institute, Inc. Arlington, VA, United States, 2 JSI Research & Training Institute, Inc., Boston, MA, United States, 3 St. Ambrose University, Davenport, Iowa, United States, 4 United States Agency for International Development, Washington, D.C., United States Fifth Global Symposium on Health Systems Research • Liverpool, UK • October 8-12, 2018 This publication is made possible by the generous support of the American people through the U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) with the United States Agency for International Development (USAID) under the Cooperative Agreement Strengthening High Impact Interventions for an AIDS-free Generation, number AID-OAA-A-14-00046. The information provided does not necessarily reflect the views of USAID, PEPFAR, or the U.S. Government. Background In an effort to expand access to antiretroviral treatment (ART), countries across sub-Saharan Africa have begun to implement and scale up differentiated approaches to ART distribution, particularly at the community level. These distribution models are typically designed to cater to stable adult patients and aim to bring ART closer to where patients live, which, in turn, serves to decongest clinics and reduce the overall strain on a country’s health system. While documentation on the results of these models exists, there is limited information on the specific barriers and enablers that have impacted the implementation of such models. This cross-country study describes various models of differentiated ART distribution and the barriers and enablers associated with their implementation. Methodology The assessment was conducted between October 2016 and November 2017 and aimed to document existing models of differentiated ART distribution and their associated barriers and enablers in three countries: South Africa Uganda Zimbabwe These three countries were chosen because of their varied HIV prevalence, different strengths of their overall health system, and the fact that they were implementing differentiated models at the community level. The research team conducted the assessment utilizing a qualitative participatory action approach to uncover a comprehensive understanding of barriers and enablers associated with the implementation of differentiated models for ART distribution. Data was collected through semistructured interviews and focus group discussions with 163 participants across the three countries. Respondents were multilevel stakeholders representing policy, programmatic, provider, and patient perspectives. Conclusions While differentiated models of ART distribution aim to broaden patient access to ART, models that provide these services at the community level have additional challenges and considerations that should be assessed and planned for prior to implementation. Two important barriers seen across all countries assessed included stigma and poor linkage to care; considerations for addressing these barriers should be included in the design of the models. Peer support and education for both patients and providers were noted as important drivers of the success of community models. Peer support was a desirable element of some of these models for patients, and providers reported increased support for community interventions as the programs evolved and the gains became more apparent. Intensive education at the front-end of scale-up can help providers effectively market the community-level models and help patients pick a model that would work best for them. Understanding these barriers and enablers will help country programs effectively and efficiently implement differentiated models of ART distribution to fit varying contexts, and allow for rapid scale-up, resulting in expanded access to ART and the ability to better meet the demands of patients on ART on a global level. Results Community models for ART distribution typically faced additional challenges and considerations due to the decentralization of services outside of the health facility and into the community, making oversight and management a more difficult process. Respondents discussed multiple barriers and enablers associated with the implementation of these programs and often found effective ways to address barriers and harness enablers in order to implement each model. Enablers Patient and Provider Education was cited by respondents as absolutely necessary for successful implementation. Once patients were oriented to the available models, they were able to choose the one that best fit their needs. Since providers are the ones who “market” the idea of enrolling in a differentiated model of ART distribution to patients, it is key for providers to not only buy in to the models but to also have a clear understanding of models in order to properly identify patients for enrollment. Peer Support was the most-cited enabler for implementing community-level models. This factor was most often associated with the Community Adherence Club model which has an inherent element of peer support. Both Barriers and Enablers Provider Attitudes were often described as a common barrier before and during the early stages of implementation, but later became an enabler once positive outcomes such as improved patient adherence or reduced workloads for clinic staff began to emerge. Barriers Stigma and Discrimination is an inherent issue associated with community-level models. Because patients are receiving services in the community, many expressed concern that their HIV status was likely to be exposed. Poor Linkage to Care was cited most often by health care providers as a potential barrier to implementing differentiated models of ART distribution at the community level. Many providers expressed fear that community-level models reduce their ability to monitor patients routinely and effectively. Differentiated Models of ART Distribution are mechanisms through which the dispensing of ART is decentralized. These models aim to expand ART access―usually for stable patients―by providing multiple options through which they can collect their ART less frequently and/or closer to home. Community Models Of ART Distribution Explored Community Adherence Clubs Groups meet in the community and members take turns collecting everyone’s ART from the facility each month and bringing it back to the group. Outreach Health facility staff provide ART distribution services to remote communities or patients with transport challenges. Also includes ART distribution at worksites. Community Distribution Points Clients pick up ART from a pre-identified distribution point in the community, such as a church, meeting hall, or retail pharmacy. ! Peer Support Patient and Provider Education Provider and Patient Attitudes Poor Linkage to Care Stigma and Discrimination ENABLERS BARRIERS HSR_conference poster_press ready_092818.indd 1 9/28/18 10:59 AM