TJFS/TIKVAH Presentation given at Easter Seals parent support group

1. Raising Children with Special Needs Presenter: Lydia Abrams, LCSW Tikvah Special Needs Program Coordinator Tampa Jewish Family Services www.tjfs.org

3. This presentation does not reflect the experiences of all parents/primary caregivers of children with special needs. Each family unit and every family member experiences the impacts of raising a child with special needs in their own unique way.

4. Every Child is an Individual Each Parents’ Experience is Unique Some Families May Have Similarities but None are the Same

9. Upon initial diagnosis of a child with special needs, most families have begun a journey…. They will experience various emotions… And will hopefully learn how to cope with the unexpected changes in their lives.

13. Feelings of Guilt: Unable to protect child Child’s suffering “ What did I do to cause this?” “ How could I have prevented this?” Less attention toward other children Loss of intimacy with partner Less focus on personal needs

23. Extended Family Members Other Committ- ments Therapies Finances Careers Schools Medications Hospitals/ Clinics/ Labs Community Accomodations Insurance Companies Early Steps Or Related Programs Specialized Equipments Case Worker Specialized Physician(s) Primary Pediatrian Spouse Other Children Child/ren With Special Needs Parents/ Primary Caregivers

32. Feelings of Acceptance may Come and Go Some may never accept situation; but may learn to cope “ It is the journey that counts – not the destination.” - You Will Dream New Dreams

33. If the parents’ emotional needs are met – then they can better care for their children

41. Empowering Parents/Primary Caregivers Parents/caregivers are capable of making decisions that work for their families Higher self-confidence can lead to positive parenting “ Walk life’s path with gentle footsteps” -Flavia

42. “ Stuff happens, people do the best they can, and very often they learn and grow thereby.” - Louise Rachel, Mothering

45. http://specialchildren.about.com/od/needinspiration/ig/Notes-of-Encouragement/