several mhealth apps already in cancer care but lots need still to be done-patients want safely accessible, transferable data everywhere-eSMART project using ASyMS promises to improve the quality of life of cancer patients undergoing chemotherapy- mhealth conference at Bocconi University - Milan

1. mHealth in cancer supportive care
How eSMART can improve quality of life?
Kathi Apostolidis-Vice President
ECPC-European Cancer Patient Coalition
Milano, 4.04.2014

2. What is ECPC-European Cancer Patient Coalition
Cancer patient experience of chemotherapy
mhealth and cancer patients
eSMART project in supportive cancer care
Cancer patients’ expectations from the introduction
of mhealth in cancer supportive care

3. ECPC: "Nothing about us, without us
• Representing 341 cancer patient groups in 45 countries
• All cancers – common and rare
• Run and governed by patients
• Promoting timely access to appropriate prevention, screening, early
diagnosis, treatment and care for all cancer patients
• Reducing disparity and inequity across the EU
• Encouraging the advance of cancer research & innovation
• Increasing cancer patients' influence over European health and
research policy
• High visibility with EU Commission, EU Parliament (MEP MAC), EMA

4. ECPC Advocacy :
bridging diversity to support cancer survivors
Coordination
& Advocacy

5. Planned & Current Activities
Working Groups:
•Rare Cancers, Paediatric Oncology, Melanoma–
Personalised Medicine, Head & Neck Cancers,
Biobanking, Social Benefits & Employment, Access
to Medicines & Radiotherapy
• Research Projects:

6. The experience of chemotherapy in cancer
• Fear of the unknown
• Lack of information
• Working while in therapy
• Anorexia, cachexia, anaemia,
pain, sleep disturbance,
fatigue, chemobrain, hair loss
• Lack understanding of patients
needs & preferences about
work & therapy

7. Keys to Better Cancer
Patient Experience
• Compassion
• Communication
• Personal
• Practical
• Access to Patient
Records
• Cancer Patients often
travel to seek for better
or expert care
Who holds the keys?
 The physician
 The nurses
 The family
 Other patients
 The internet & social
media

8. Survivorship
• Not one meaning for “survivor”
• Transition from intensive care to health
care follow-up
• Difficulties of resuming normal life
• Rehabilitation services
• Return to work
• Where to turn for health care after the
initial follow-up period?

10. THE POWER
Of HIT
Health
Information
Technology
Art slide from presentation of Regina Holliday

11. Patients and mHealth
 Promotes patient engagement->self-management
 Provides educational resources for health & cancer care
 Improves doctor-patient relationship
 Supports caregivers’ mission
 Creates personalization of healthcare -> better following
of instructions - better outcomes
 Convergence of many technologies -> simplification,
convenience
 Connects patients to their physicians & other patients
 Applications specific for the needs of cancer patients

12. Mobile technologies in cancer:
Enablers of patient empowerment

13. Barriers to Adoption of mHealth
• Nebulous regulatory guidance
• Lack of reliability, security/privacy
• Lack of mobile strategy by providers
• Lack of smart phones by older patients
• High cost of mobile internet
• Low digital & health literacy in patients
over 50years of age

14. mHealth and silos of knowledge & information

15. Mobility increases number of Silos
Mobile App for
health professionals
Patient access App to
a portal
(appointments,
reminders,
access to
results and
records).
Device specific
cloud-based
personal health
management
application
Interoperability challenges in the deployment of mHealth
Specific Healthcare
IT system or device
within a care
delivery
organization: EMR,
PACS/RIS, etc.
Portal of a specific
Healthcare delivery
organization:
hospital, insurance,
laboratory, etc.
Personal health
management app
either
stand-alone
or
connected

16. Patients demand for Interoperability & Access
to their information
© DG INFSO

17. eSMART tends an information safety net

18. Advanced
Symptom
Management
System
ASyMS
ASyMS
eSMART project slide

19. ASyMS: Home Chemotherapy Monitoring
Self-care
Respons
e
Acute care
Patient completes
ASyMS symptom
questionnaire
eSMART project slide

20. What patients expect from mhealth
Patients need open access toTHEIR DATA
Use Standards for this if possible

21. (change footnote using Menu "View > Change
headline/footnote")
Thank you for your attention
Website : www.ecpc.org
Twitter: @cancereu
Facebook: European Cancer Patient Coalition
YouTube: ecpcTV
email: info@ecpc.org
Artwork graciously borrowed from Art Cancer Advocate Regina Holliday
http://reginaholliday.blogspot.com #TheWalkingGallery
CHAMPIONING THE INTERESTS OF EUROPEAN CANCER PATIENTS