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Stop Complaining & Start Advocating

         Advocacy in Action
                     Susanne Nasewich, RN
                         Greg Riehl, RN
                        Laurel Stang, RN


Be the Voice – QUALITY AND PATIENT SAFETY
Saskatchewan Registered Nurses Association
Annual Conference
Regina, SK               May 1,2 & 3, 2012
DID YOU
KNOW ?
The CNA
Code of Ethics
mentions
ADVOCACY 15 times
ADVOCACY & THE CODE OF ETHICS
• quality work environments
• social justice issues that affect heath & well-being – including policies & programs

• use of the least restrictive measure possible for those in their care

• adequate relief of discomfort and pain
• accessible, universal & comprehensive health-care services
     •access to their own health-care records
• fair treatment & fair distribution of resources for those in their care

• changes to unethical health & social policies, legislation and regulations; equity
     • ethical discussions
• initiatives to reduce environmentally harmful practices
• if they believe the health of those in their care is being
   compromised by factors beyond their control, includes
   decision-making of others; ethical discussions
ORGANIZATIONS SUPPORT
     ADVOCACY…
CANAC
• A national professional nursing organization
  committed to fostering excellence in HIV/AIDS
  nursing, promoting the health, rights and dignity of
  persons affected by HIV/AIDS and to preventing the
  spread of HIV infection
CANAC
• Position statements
   • Recognition of HIV/AIDS nursing as a speciality
        • specialized knowledge and skills; committed to ongoing professional
        development to maintain skills; have acquired specialized knowledge
        and skill
   • Human rights statement
        • CANAC fully supports Human Rights to be extended to all people
        regarding access to HIV/AIDS education, prevention, treatment, care
        and support
   • HIV and criminalization
        • the criminal law is an ineffective and inappropriate
        tool to prevent HIV exposure and transmission

• HIV/AIDS Nursing Guidelines
SRNA

Promoting Equity Through Harm Reduction in
Nursing Practice (2008)
   • HR is a vital component in the continuum of
     health care services provided by RNs in SK
   • Gives clients choices, so they are involved in their
     health care



http://www.srna.org/images/stories/promoting_equity.pdf
WHAT WOULD YOU DO?

• male, history of IDU but not currently using,
  admitted with MRSA/osteomyelitis
• reports pain at 10/10; only analgesia ordered
  is Tylenol, plain, q4h
WHAT IS ADVOCACY
• Why advocacy?
• How to start advocating?
• How does the CNA Code of Ethics support
  professional advocacy?
• What seems to work best?
• Does it really make a difference?
• How to put advocacy into ACTION?
WHAT IS ADVOCACY?

• the act or process of supporting a cause or
  proposal: the act or process of advocating
  something
   – To advocate is to plead in favor of



• action to lead to changes by influencing someone
  who can make changes
  http://www.global-campaign.org
TYPES OF ADVOCACY




All interventions
have impacts on
advocacy.
Some impacts are
direct and others
are indirect.
WHY ADVOCACY?


Unless we engage in advocacy, we will only be
reacting to symptoms and not looking at the
roots of the problem
WHAT WOULD YOU DO?

• transgender client admitted to your unit: MTF
• admitted into a private room; needs to be
  transferred from the private room
• Charge RN asks you to move him into a male,
  4-bed ward
WHO IS AN ADVOCATE?

• Consider who is/is not an advocate?
  – What are barriers to advocacy?
  – who will be able to participate in the different
    advocacy actions and who cannot?
• Need to maximize opportunities to advocate…
HOW TO START?

• Support & resources
  – CANAC
  – Organized a PPG; SK HIV/HCV Nursing Education
    Organization
• Relevancy to local situation/issue(s)
  – What is the problem?
  – How can it be addressed?
ADVOCACY: PLAN DO REVIEW
               • Planning
                  – Formal and informal
                    meetings
               • Do
                  – Action is necessary
                  – Have an experience
               • Review
                  – What worked in the past,
                    what did we learn
HOW DOES THE CNA SUPPORT?

• Promoting Equity through Harm Reduction in
  Nursing Practice
http://www2.cna-aiic.ca/CNA/documents/pdf/publications/Resolution1_CANAC_Harm_Reduction_2007_e.pdf



• Harm Reduction and Currently Illegal Drugs
     – Implications for Nursing Policy, Practice, Education
       and Research
     – Discussion Paper
http://www2.cna-aiic.ca/CNA/documents/pdf/publications/Harm_Reduction_2011_e.pdf
Nurses Praise Supreme Court Ruling:
Insite Saves Lives And Improves Health

 "Nurses throughout Canada are incredibly
  encouraged by this decision," says Rachel Bard, chief
  executive officer of CNA. "We see firsthand the
  evidence of how well harm reduction programs work
  to improve the health of Canadians, especially
  vulnerable populations dealing with poverty, mental
  illness and homelessness. As nurses, we're
  responsible for and committed to providing safe,
  compassionate, competent care and
  improving the health of those in need."
DOES IT MAKE A DIFFERENCE?

 Yes!
 • Able to affect attitudes, laws, policies, and the situations in need
 of change
 • Increases awareness, behaviour, and common knowledge




 Indicators of success?
 • policy change or implementation; laws or practices reviewed, revised,
 introduced
PUTTING ADVOCACY INTO ACTION?
•Work from within the system – sitting at decision-makers’ tables (e.g., consultations,
planning committees, community advisory boards, etc.)
•Lobbying or petitioning government and other civic officials
•Arranging face-to-face meetings with decision-makers
•Writing and delivering position papers and briefing notes
•Preparing and giving public presentations
•Creating and performing dramatic presentations
•Staging public demonstrations
•Writing letters
•Writing e-mails
•Making phone calls
•Working with the media:
    • Newspapers, magazines and other print media;
    television; radio ; internet
•Working with the media in these ways:
    • Writing press releases and media advisories;
    press conferences; media interviews; website or blog
We were there . . .
                      Keeping the Minister of Health
                      Informed through RN Advocacy
                      September 2012
PLANNING AND IMPLEMENTING
• Step 1 – Select an issue or problem you want to address
• Step 2 – Analyse and gather information on the issue or
  problem
• Step 3 – Develop an aim and objectives for your
  advocacy work
• Step 4 – Identify your targets
• Step 5 – Identify your allies
• Step 6 – Create an action plan
• Step 7 – Identify your resources
• Step 8 – Implement, monitor and evaluate
COSTS OF ADVOCATING

• Increased work
• Increased public visibility
  – good and bad; some negative results?
• Increases in stigma and discrimination
• Perception of not being politically neutral
DOES ADVOCACY WORK?

• Monitor
• Evaluate
ADVOCACY IN OUR DAILY WORK
• advocacy does NOT require a complete shift
  of focus away from other valuable work
• can actually reduce your workload by
  improving the environment in which you and
  your clients live
• advocacy can happen at all levels of service
  delivery
  – advocacy work by making use of
    opportunities
WHAT WOULD YOU DO?
• HIV+, new Canadian, female
• just delivered a baby girl; you go in to
asses and mom BFing; husband and
exended family present; upon further
assessment, mom discloses issues of
cultural practices r/t BF
• family unaware of her dx
ADVOCACY AND OUR PPG

Consider:
• Client voice
  – peers
• Nurses’ voice
  – Knowledge exchange, mentoring
• Local issues
  – HIV/HCV
• Strength in numbers
MISSION STATEMENT
The mission for the Saskatchewan HIV/HCV Nursing Education
Organization is achieved through:
• Providing accessible and affordable education and learning
  opportunities
• Creating a network of members by which support and mentorship
  can occur
• Serving as a provincial voice for issues related to HIV and Hepatitis
  nursing care
• Advocating for the rights and dignity of people who are living with
  HIV/AIDS and/or HCV, or who are vulnerable to these infections
• Supporting a collaborative professional practice environment
• Promoting professional growth
• Improving patient/client/resident outcomes
ADVOCACY=ACTION
•   TeleHealth
•   Email
•   Participating with PPGs/SRNA
•   Promoting and sharing - World AIDS Day and
    World Hepatitis Day
•   Face-to-face meetings
•   Partnerships
•   Mentoring
•   Networking
OUR ACTIONS-
         ADVOCACY SUPPORTS NURSES

• Effective advocates communicate clearly and memorably.
   • People need to understand and remember the ideas being
       advocated
• Effective advocates build credibility and generate affinity.
   • Trust and reputation is crucial to inspiring confidence.
• Effective advocates build relationships that let ideas prosper.
   • Coordination and alliances support networking and
      relationships.
• Effective advocates influence others.
   • Advocacy is about persuasion
Ask questions, get answers, stay quiet.


What we have learned from our experiences is that we should . . .



  WITHOUT RELATIONSHIPS,
WE HAVE NO POWER AS A GROUP
“It isn't that they cannot see the solution,
it is that they cannot see the problem”
             G.K. Chesterton


     ADVOCACY,
THIS IS WHAT WE DO…
SK HIV/HCV PPG

               Contact us at:
            skhivhcv@gmail.com

               Save The Date
Face-2-Face HIV & Hepatitis C Education Event
             September 8, 2012
              Prince Albert, SK
          More information to follow – email us!

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Stop complaining and start advocating advocacy in action.

  • 1. Stop Complaining & Start Advocating Advocacy in Action Susanne Nasewich, RN Greg Riehl, RN Laurel Stang, RN Be the Voice – QUALITY AND PATIENT SAFETY Saskatchewan Registered Nurses Association Annual Conference Regina, SK May 1,2 & 3, 2012
  • 3. The CNA Code of Ethics mentions ADVOCACY 15 times
  • 4. ADVOCACY & THE CODE OF ETHICS • quality work environments • social justice issues that affect heath & well-being – including policies & programs • use of the least restrictive measure possible for those in their care • adequate relief of discomfort and pain • accessible, universal & comprehensive health-care services •access to their own health-care records • fair treatment & fair distribution of resources for those in their care • changes to unethical health & social policies, legislation and regulations; equity • ethical discussions • initiatives to reduce environmentally harmful practices • if they believe the health of those in their care is being compromised by factors beyond their control, includes decision-making of others; ethical discussions
  • 5. ORGANIZATIONS SUPPORT ADVOCACY…
  • 6.
  • 7. CANAC • A national professional nursing organization committed to fostering excellence in HIV/AIDS nursing, promoting the health, rights and dignity of persons affected by HIV/AIDS and to preventing the spread of HIV infection
  • 8. CANAC • Position statements • Recognition of HIV/AIDS nursing as a speciality • specialized knowledge and skills; committed to ongoing professional development to maintain skills; have acquired specialized knowledge and skill • Human rights statement • CANAC fully supports Human Rights to be extended to all people regarding access to HIV/AIDS education, prevention, treatment, care and support • HIV and criminalization • the criminal law is an ineffective and inappropriate tool to prevent HIV exposure and transmission • HIV/AIDS Nursing Guidelines
  • 9. SRNA Promoting Equity Through Harm Reduction in Nursing Practice (2008) • HR is a vital component in the continuum of health care services provided by RNs in SK • Gives clients choices, so they are involved in their health care http://www.srna.org/images/stories/promoting_equity.pdf
  • 10. WHAT WOULD YOU DO? • male, history of IDU but not currently using, admitted with MRSA/osteomyelitis • reports pain at 10/10; only analgesia ordered is Tylenol, plain, q4h
  • 11. WHAT IS ADVOCACY • Why advocacy? • How to start advocating? • How does the CNA Code of Ethics support professional advocacy? • What seems to work best? • Does it really make a difference? • How to put advocacy into ACTION?
  • 12. WHAT IS ADVOCACY? • the act or process of supporting a cause or proposal: the act or process of advocating something – To advocate is to plead in favor of • action to lead to changes by influencing someone who can make changes http://www.global-campaign.org
  • 13. TYPES OF ADVOCACY All interventions have impacts on advocacy. Some impacts are direct and others are indirect.
  • 14. WHY ADVOCACY? Unless we engage in advocacy, we will only be reacting to symptoms and not looking at the roots of the problem
  • 15.
  • 16. WHAT WOULD YOU DO? • transgender client admitted to your unit: MTF • admitted into a private room; needs to be transferred from the private room • Charge RN asks you to move him into a male, 4-bed ward
  • 17. WHO IS AN ADVOCATE? • Consider who is/is not an advocate? – What are barriers to advocacy? – who will be able to participate in the different advocacy actions and who cannot? • Need to maximize opportunities to advocate…
  • 18. HOW TO START? • Support & resources – CANAC – Organized a PPG; SK HIV/HCV Nursing Education Organization • Relevancy to local situation/issue(s) – What is the problem? – How can it be addressed?
  • 19. ADVOCACY: PLAN DO REVIEW • Planning – Formal and informal meetings • Do – Action is necessary – Have an experience • Review – What worked in the past, what did we learn
  • 20. HOW DOES THE CNA SUPPORT? • Promoting Equity through Harm Reduction in Nursing Practice http://www2.cna-aiic.ca/CNA/documents/pdf/publications/Resolution1_CANAC_Harm_Reduction_2007_e.pdf • Harm Reduction and Currently Illegal Drugs – Implications for Nursing Policy, Practice, Education and Research – Discussion Paper http://www2.cna-aiic.ca/CNA/documents/pdf/publications/Harm_Reduction_2011_e.pdf
  • 21. Nurses Praise Supreme Court Ruling: Insite Saves Lives And Improves Health "Nurses throughout Canada are incredibly encouraged by this decision," says Rachel Bard, chief executive officer of CNA. "We see firsthand the evidence of how well harm reduction programs work to improve the health of Canadians, especially vulnerable populations dealing with poverty, mental illness and homelessness. As nurses, we're responsible for and committed to providing safe, compassionate, competent care and improving the health of those in need."
  • 22. DOES IT MAKE A DIFFERENCE? Yes! • Able to affect attitudes, laws, policies, and the situations in need of change • Increases awareness, behaviour, and common knowledge Indicators of success? • policy change or implementation; laws or practices reviewed, revised, introduced
  • 23. PUTTING ADVOCACY INTO ACTION? •Work from within the system – sitting at decision-makers’ tables (e.g., consultations, planning committees, community advisory boards, etc.) •Lobbying or petitioning government and other civic officials •Arranging face-to-face meetings with decision-makers •Writing and delivering position papers and briefing notes •Preparing and giving public presentations •Creating and performing dramatic presentations •Staging public demonstrations •Writing letters •Writing e-mails •Making phone calls •Working with the media: • Newspapers, magazines and other print media; television; radio ; internet •Working with the media in these ways: • Writing press releases and media advisories; press conferences; media interviews; website or blog
  • 24. We were there . . . Keeping the Minister of Health Informed through RN Advocacy September 2012
  • 25. PLANNING AND IMPLEMENTING • Step 1 – Select an issue or problem you want to address • Step 2 – Analyse and gather information on the issue or problem • Step 3 – Develop an aim and objectives for your advocacy work • Step 4 – Identify your targets • Step 5 – Identify your allies • Step 6 – Create an action plan • Step 7 – Identify your resources • Step 8 – Implement, monitor and evaluate
  • 26. COSTS OF ADVOCATING • Increased work • Increased public visibility – good and bad; some negative results? • Increases in stigma and discrimination • Perception of not being politically neutral
  • 27. DOES ADVOCACY WORK? • Monitor • Evaluate
  • 28. ADVOCACY IN OUR DAILY WORK • advocacy does NOT require a complete shift of focus away from other valuable work • can actually reduce your workload by improving the environment in which you and your clients live • advocacy can happen at all levels of service delivery – advocacy work by making use of opportunities
  • 29. WHAT WOULD YOU DO? • HIV+, new Canadian, female • just delivered a baby girl; you go in to asses and mom BFing; husband and exended family present; upon further assessment, mom discloses issues of cultural practices r/t BF • family unaware of her dx
  • 30. ADVOCACY AND OUR PPG Consider: • Client voice – peers • Nurses’ voice – Knowledge exchange, mentoring • Local issues – HIV/HCV • Strength in numbers
  • 31. MISSION STATEMENT The mission for the Saskatchewan HIV/HCV Nursing Education Organization is achieved through: • Providing accessible and affordable education and learning opportunities • Creating a network of members by which support and mentorship can occur • Serving as a provincial voice for issues related to HIV and Hepatitis nursing care • Advocating for the rights and dignity of people who are living with HIV/AIDS and/or HCV, or who are vulnerable to these infections • Supporting a collaborative professional practice environment • Promoting professional growth • Improving patient/client/resident outcomes
  • 32. ADVOCACY=ACTION • TeleHealth • Email • Participating with PPGs/SRNA • Promoting and sharing - World AIDS Day and World Hepatitis Day • Face-to-face meetings • Partnerships • Mentoring • Networking
  • 33. OUR ACTIONS- ADVOCACY SUPPORTS NURSES • Effective advocates communicate clearly and memorably. • People need to understand and remember the ideas being advocated • Effective advocates build credibility and generate affinity. • Trust and reputation is crucial to inspiring confidence. • Effective advocates build relationships that let ideas prosper. • Coordination and alliances support networking and relationships. • Effective advocates influence others. • Advocacy is about persuasion
  • 34. Ask questions, get answers, stay quiet. What we have learned from our experiences is that we should . . . WITHOUT RELATIONSHIPS, WE HAVE NO POWER AS A GROUP
  • 35. “It isn't that they cannot see the solution, it is that they cannot see the problem” G.K. Chesterton ADVOCACY, THIS IS WHAT WE DO…
  • 36. SK HIV/HCV PPG Contact us at: skhivhcv@gmail.com Save The Date Face-2-Face HIV & Hepatitis C Education Event September 8, 2012 Prince Albert, SK More information to follow – email us!

Editor's Notes

  1. What is Advocacy
  2. advocacy refers to actions that are intended bring about other actions At its most basic, advocacy refers to the various kinds of actions we take to get other people – usually people in positions of power, the ones who can change things like the laws and policies that affect and even control our lives and the quality of our lives – to make the changes that are our ultimate goal.
  3. http://www.global-campaign.org/clientfiles/APCASO%20HIV%20Advocacy%20Toolkit.pdf page 13 would be good for a handout There are three different types of advocacy that we probably do in our daily work • Public advocacy –to influence behaviour, opinion and practices of the public in order to influence groups and institutions that are involved in affecting change in policies • Community advocacy – to influence groups and institutions that are involved in affecting change in policies by working • Policy advocacy – to influence policy and regulations directly
  4. looks like a lot of the other things we do, it’s easy to think that advocacy is just a new name for everything our organisations already do. But the truth is that even the people who are doing it don’t always know that they are Barriers to advocacy can include funding opportunities, policies, etc.
  5. PLAN - plan a way to approach the next round of experience; Planning advocacy work is similar to other kinds of planning; it is easier to come up with the right activities if we first identify our aims and objectives. DO - have an experience REVIEW - review what happened and what can be learned Greenaway, R. (1988). Powerful Learning Experiences in Management Learning and Development Burton translates this model into What? So what? Now what?
  6. Part II – Ethical Endeavors “As much as possible, nurses individually and collectively should advocate for and work towards eliminating social inequities” (CNA Code of ethics, 2008) Resolution brought forward by RNAO, Supported by CANAC, Tour of Insite with CNA representatives prior to this resolution, need to work with each other, Position Papers Nurses release paper on harm reduction and illegal drugs – Advisory WHEN? May 12, 2011 WHAT? “ Harm reduction ” has been identified as a public health response to reduce the negative consequences associated with risky behaviours, including substance use. A great deal of evidence supports the public health and safety benefits of harm reduction strategies. WHERE? www.cna-aiic.ca WHY? Providing nursing care in the context of substance use, particularly illegal substance use, can raise questions and issues for RNs who may be caught between evidence, ethics and policy. This paper comes at an opportune time, as CNA, along with the Registered Nurses’ Association of Ontario and the Association of Registered Nurses of British Columbia, will today be presenting arguments before the Supreme Court of Canada in support of Insite, a supervised injection facility in Vancouver. Open discussion Many nurses and members of other helping professions are alarmed by the addictive misery that they see and are committed to doing something about it. It is a great loss when we, as compassionate, dedicated professionals do not respect and support each other.
  7. http://www.newswire.ca/en/story/851133/nurses-praise-supreme-court-ruling-insite-saves-lives-and-improves-health
  8. Open discussion
  9. Open discussion
  10. http://www.global-campaign.org/clientfiles/APCASO%20HIV%20Advocacy%20Toolkit.pdf
  11. Not only must you help your clients get their life-sustaining, often life-saving, daily needs met, you must do it in a non-judgmental,fair, honest and cost-effective manner. You must also document it in the internally and externally required ways that may or may not contribute to the success of the actual work. In addition, you must balance everything you do with all of the needs and requirements of all clients, your supervisor, your organisation, the government and the community. And now we are asking you to add advocacy work to all of this. Whew! p.29-31 http://www.global-campaign.org/clientfiles/APCASO%20HIV%20Advocacy%20Toolkit.pdf
  12. Discussion here with the group, - what is planning? What is reviewing? And what is doing?
  13. We put ourselves where networking happens. What we have learned from our experiences is that we should . . . DO SOMETHING POSITIVE TO ELICIT CHANGE