"Words for a Journey: A Pattern Language for Living Well with Dementia" in Plenary Session 3: Innovation in health and social care, at Gerontech and Innovation Expo cum Summit, Hong Kong, June 2017

1. Gerontech and Innovation Expo cum Summit
Plenary Session 3: Innovation in health and social care
Words for a Journey
A Pattern Language for Living Well with Dementia
Takashi Iba
Associate Professor
Faculty of Policy Management, Keio University
Ph.D in Media and Governance
旅旅ののここととばば
認認知知症症ととととももにによよりりよよくく生生ききるるたためめののヒヒンントト
旅旅程程的的關關鍵鍵字字
與與認認知知障障礙礙症症共共存存的的啟啟示示

2. Studying methodology to support people
to enhance the Quality of Life with their daily creativity
Learning CollaborationPresentation
Surviving Earthquakes
Change Making
Living well with dementiaProject Design
Cooking
Parenting & Working
Open Dialogue
…..
All Books Available in Amazon

3. Gerontech and Innovation Expo cum Summit
Plenary Session 3: Innovation in health and social care
Words for a Journey
A Pattern Language for Living Well with Dementia
Takashi Iba
Associate Professor
Faculty of Policy Management, Keio University
Ph.D in Media and Governance
旅旅ののここととばば
認認知知症症ととととももにによよりりよよくく生生ききるるたためめののヒヒンントト
旅旅程程的的關關鍵鍵字字
與與認認知知障障礙礙症症共共存存的的啟啟示示

4. 旅旅程程的的關關鍵鍵字字
與與認認知知障障礙礙症症共共存存的的啟啟示示
三三聯聯書書店店（（香香港港））
編編著著：：井井庭庭崇崇、、岡岡田田誠誠
著著 ：：慶慶應應義義塾塾大大學學井井庭庭研研究究室室、、
認認知知障障礙礙症症 FFRRIIEENNDDLLYY JJAAPPAANN··IINNIITTIIAATTIIVVEE
港港幣幣$$8888

5. When diagnosed with dementia, many people often become
depressed by negative images of disability and lose the will
to do anything else.

6. When diagnosed with dementia, many people often become
depressed by negative images of disability and lose the will
to do anything else.
There are people who
are living well with
dementia.

7. How to live well
with Dementia
When diagnosed with dementia, many people often become
depressed by negative images of disability and lose the will
to do anything else.
There are people who
are living well with
dementia.

8. How to live well
with Dementia
When diagnosed with dementia, many people often become
depressed by negative images of disability and lose the will
to do anything else.
There are people who
are living well with
dementia.
Many people can
improve their quality of
life by themselves with
the practical knowledge.

9. How to live well
with Dementia
When diagnosed with dementia, many people often become
depressed by negative images of disability and lose the will
to do anything else.
There are people who
are living well with
dementia.
Many people can
improve their quality of
life by themselves with
the practical knowledge.

10. http://www.amazon.com/dp/1312734841/
The book of English-version is available at
You are putting effort into caregiving.If you do everything for the cared person, including the tasks
that they can do on their own, eventually they would become
unable to do anything.
Provide small opportunities for the cared person
to
contribute to the family.
▼ In the context
▼ Therefore
Chance to Shine
Small contributions matter.
21
FOR THE CARING
You have begun spending less time outside and more time
inside your home.
Staying inside your home all the time is not fun and may be
tiring.
Find a place where you can go by yourself without any
trouble, and make sure your family knows about the place
too.
▼ In the context
▼ Therefore
Favorite Place
A place outside the home,
which your family also knows about.
9FOR THE CARED

11. Silver News 2015.01.16 Silver News 2015.06.19
Sankei 2015.07.03 Kanagawa 2014.11.08Asahi 2015.06.12
Ohayo 21. 2015 Oct
Gendai 2015.10.28
Japanese Newspapers

12. Kawasaki Innovation Standard
Grand Prix of Dementia Friendly Award

13. Newspaper in UK

14. http://www.amazon.com/dp/1312734841/
The book of English-version is available at
You are putting effort into caregiving.If you do everything for the cared person, including the tasks
that they can do on their own, eventually they would become
unable to do anything.
Provide small opportunities for the cared person
to
contribute to the family.
▼ In the context
▼ Therefore
Chance to Shine
Small contributions matter.
21
FOR THE CARING
You have begun spending less time outside and more time
inside your home.
Staying inside your home all the time is not fun and may be
tiring.
Find a place where you can go by yourself without any
trouble, and make sure your family knows about the place
too.
▼ In the context
▼ Therefore
Favorite Place
A place outside the home,
which your family also knows about.
9FOR THE CARED

15. WORDS FOR
CARING FAMILIES
WORDS FOR THOSE
LIVING WITH
DEMENTIA
WORDS FOR
EVERYONE
The patterns are categorized into three groups.
Each group contains words that provide problems and solutions
for the person in the corresponding group.

17. WORDS FOR THOSE LIVING WITH DEMENTIA
15 Gift of Words12 Live in the
Moment
13 Self-Intro Album 14 Own Way of
Expressing
11 Turning the Tide10 Voice of
Experience
7 Daily Chore 8 Self-Reflecting
Room
9 Favorite Place
6 Can-Do List5 Fellow Travelers2 The First Step 3 Departure
Announcement
4 Travel Plan

19. Context You recently have many opportunities to meet new people.
▼ In this context
You sometimes have trouble introducing yourself with words.
You notice yourself taking more time putting yourself into words.
Or you may notice the person having trouble understanding your
words. It is not unusual to have trouble remembering things about
yourself on the spot. This might cause you a small panic, making
the situation worse. If such situations occur multiple times, you
might become afraid to meet new people again.
▼ Therefore
Problem

20. Keep a small item with you, such as an album, which you can
use to show who you are. The album can contain pictures of
your family, your work, and your hobby, for example. It can be
anything related to you or your past: magazine clippings, favorite
sayings…. When you meet someone new, you can show them the
album to introduce and talk about yourself. Spend time with your
family and friends to create the album together.
▼ Consequently
This will basically become your portable “Self-Reflecting
Room.” With it, you can stay calm and easily introduce yourself
to others. Better yet, the pictures and items in your “Self-Intro
Album” will make your introduction more attractive and
interesting. New conversations can start from the items in the
album too. In addition, creating the album itself will become a
fun and valuable time to reflect on yourself and your life. If you
create it with your family and friends, even better.
Solution
Consequence

24. at a day care center,
Machida, Tokyo“Can-Do List”

25. “I was able to realize that I should select and practice the ones
that I personally felt effective. For example, I would like to use
No.8 (Self-Reflecting Room) and No.13 (Self-Intro Album)
starting today. … This also gave me a chance to reconsider
what kind of a family relationship I want to have.”

26. WORDS FOR CARING FAMILIES
16 Going Together 17 Team Leader
30 Generational Mix 31 The Amusement
Committee
32 Hint of Feelings28 Casual Counseling 29 Special Day
25 The Seen World 26 Personal Time 27 Emotion Switch23 Make it Funny 24 Usual Talk
20 Disclosing Chat 21 Chance to Shine 22 Preparation for
the Dream
18 Family Expert 19 The Three
Consultants

30. “Especially with caregiving, I feel that friends you feel empathy
with you and time off from the caregiving that you can enjoy
for yourself are the key points to endurance. People often feel
bad for caregiving family members to go out to enjoy, but I
think I can use patterns like ‘The Amusement Committee,’
‘Special Day,’ and ‘Encouraging Supporter’ effectively to
make my life more and more fulfilled.”

31. WORDS FOR EVERYONE
37 Mix-Up Event
33 Job-Specific
Contributions
38 Inventing Jobs
34 On-the-Spot
Helper
39 Delivering
the Voice
35 Encouraging
Supporter
40 Warm Design
36 Personal
Connections

35. http://runtomo.org

36. “By seeing the word ‘dementia’ as not something that is ‘dark,
suffering, and going down into a deep ditch,’ but by recapturing
it with the Words for a Journey, the society as a whole (the
local areas, people working for welfare, the family, and the
people with dementia themselves) will be able to change how
they see ‘dementia’. ”

37. The words can be used as vocabulary for communication

38. Reading one page when finishing the Orange
cafe gathering, Kamakura, Kanagawa

39. “The simple expressions made it easy to understand, and with
the cute illustrations, a theme that could easily become very
depressing was shown in a very positive way.”

40. You are putting effort into caregiving.If you do everything for the cared person, including the tasks
that they can do on their own, eventually they would become
unable to do anything.
Provide small opportunities for the cared person to
contribute to the family.
▼ In the context
▼ Therefore
Chance to Shine
Small contributions matter.
21
FOR THE CARING
You have begun spending less time outside and more time
inside your home.
Staying inside your home all the time is not fun and may be
tiring.
Find a place where you can go by yourself without any
trouble, and make sure your family knows about the place
too.
▼ In the context
▼ Therefore
Favorite Place
A place outside the home,
which your family also knows about.
9FOR THE CARED

41. Doctor and Nurse select and display some cards
everyday in Hospital, Ibasaki, Osaka

42. “I want to give it to everyone who receives a dementia
diagnosis along with their families. There are too many cases
where people just have to go home after they receive the
despair from their doctors”
“The people with dementia, the family members, and the
caregiving employees all get confused on what to do next once
they get diagnosed with dementia.”

43. Action Guidebook for people with dementia,
provided by local government, Kawasaki, Kanagawa

44. Training courses for care staffs of residences with
health and welfare services for the elderly, Tokyo

45. Applying to Education of Nursing
Undergraduate Program, Fujisawa, Kanagawa

46. Planning among city officers and dementia
supporters, Nagoya, Aichi

47. Dialogue Workshop in the Dementia
Friendly Japan Summit 2015, Tokyo

48. Idea Generation Workshop,
Fujisawa, Kanagawa

49. Idea Generation Workshops,
Rome, Italy; IL & CA, USA

50. An idea was actually
realized as an event, Tokyo
“Own Way of Expressing”

55. Mining Dialogue (Interview) with people with dementia and caring families

56. Clustering, Writing, and Illustrating

58. “Even with the uncertainty of dementia, the idea of looking at
the the future that the dementia patient and their family is about
to create as a ‘journey’ was very heartwarming. This would
become a goal for many without becoming too pushing. I was
attracted to the idea of thinking how you can actualize
the things you want to do through
the metaphor of a journey, and not
giving up just because you have
dementia. ”
“Journey” as a metaphor for living with dementia

59. How to live well
with Dementia
There are people who
are living well with
dementia.
Many people can improve
their quality of life by
themselves with the
practical knowledge.
Words for a Journey

60. outside inside
Pick my handout later
at the exit of this room

61. 旅旅程程的的關關鍵鍵字字
與與認認知知障障礙礙症症共共存存的的啟啟示示
三三聯聯書書店店（（香香港港））
編編著著：：井井庭庭崇崇、、岡岡田田誠誠
著著 ：：慶慶應應義義塾塾大大學學井井庭庭研研究究室室、、
認認知知障障礙礙症症 FFRRIIEENNDDLLYY JJAAPPAANN··IINNIITTIIAATTIIVVEE
港港幣幣$$8888

62. A11
Words for a Journey
旅旅程程的的關關鍵鍵字字 A11

63. Gerontech and Innovation Expo cum Summit
Plenary Session 3: Innovation in health and social care
Words for a Journey
A Pattern Language for Living Well with Dementia
Takashi Iba
Associate Professor
Faculty of Policy Management, Keio University
Ph.D in Media and Governance
旅旅ののここととばば
認認知知症症ととととももにによよりりよよくく生生ききるるたためめののヒヒンントト
旅旅程程的的關關鍵鍵字字
與與認認知知障障礙礙症症共共存存的的啟啟示示

64. Takashi Iba, Aya Matsumoto, Arisa Kamada, Nao Tamaki, and Tomoki Kaneko, “A Pattern Language for
Living Well with Dementia: Words for a Journey,” International Journal of Organisational Design and
Engineering, Volume 4, No. 1/2, 2016, pp.85-112.
Takashi Iba, Tomoki Kaneko, Arisa Kamada, Nao Tamaki, and Makoto Okada, “Words for a Journey: A
Pattern Language for Living Well with Dementia,” Peter Baumgartner, Tina Gruber-Muecke, Richard
Sickinger (Eds.), Pursuit of Pattern Languages for Societal Change. Designing Lively Scenarios in
Various Fields. Berlin: epubli, 2016, pp.152-176.
井庭 崇, 岡田 誠（編著）, 慶應義塾大学 井庭崇研究室, 認知症フレンドリージャパン・イニシアチブ, 『旅の
ことば：認知症とともによりよく生きるためのヒント』, 丸善出版, 2015.
Takashi Iba & Makoto Okada (eds), Iba Lab., and DFJI (Dementia Friendly Japan Initiative), Words for a
Journey: The Art of Being with Dementia, CreativeShift Lab, 2015.
井庭崇, 岡田誠 (編著), 慶應義塾大學井庭研究室, 認知障礙症 FRIENDLY JAPAN・INITIATIVE, 旅程的關鍵字 -
與認知障礙症共存的啟示, 三聯書店（香港）有限公司, 2017