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Electronic Data Methods Forum - Portable Consent 2.0

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Electronic Data Methods Forum - Portable Consent 2.0

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Electronic Data Methods Forum - Portable Consent 2.0

  1. 1. portable consent 2.0: “consent as code” ! EDM Forum 26 March 2014
  2. 2. requires multiple layers of data interoperability.
  3. 3. 1. legal interoperability by blanket consent.
  4. 4. terms in blue pop up definitions
  5. 5. volunteer must click to proceed all boxes must be checked
  6. 6. user experience “breadcrumbs”
  7. 7. 25
  8. 8. 27
  9. 9. 26
  10. 10. 2. code is law. law is code.
  11. 11. templates for: genetic sequence clinical labs self-tracking EHR/PHR view model
  12. 12. “notwithstanding the foregoing”
  13. 13. collect syndicate use return
  14. 14. drag and drop language UX elements implementation guides
  15. 15. templates for: genetic sequence clinical labs self-tracking EHR/PHR view model controller?
  16. 16. controller?
  17. 17. 3. interaction of controls on users with consent.
  18. 18. 22memory triggers plain language action-based triggers legally binding documents
  19. 19. 23 access to higher-level user powers after certification exams
  20. 20. rebalance the risks and rewards for digital distribution and reuse.
  21. 21. thank you. ! @wilbanks john.wilbanks@sagebase.org

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